Comments on: New Wrinkle in Botox Treatment for Migraine Headaches

By: Troy

Troy — Mon, 19 Sep 2005 20:52:27 +0000

My wife had botox injections on May 27, 2005 for Chronic Daily Headache. Immediately after, she had a burning pain in the back of her neck. The botox Dr. said it was because the botox hasn’t had a chance to sink in yet, so he put her on Valium for a couple weeks. The pain never went away. Over the next month, the pain started spreading to her back. She describes the pain as burning pain, or like flesh being ripped from her bones. The pain also has gone into her legs (hips and knees). She also has tingling in her hands and feet, and sometimes they get numb. It just isn’t letting up. She is “down for the count” right now, and no one seems to know if the botox could cause this problem. The botox Dr. say’s it wouldn’t, but the other Dr.’s say they don’t know enough about it. We have seen our family Dr., a Neurologist, Internal Medicine Dr., a Rheumatologist, and the pain Dr., no one has any info, and say’s on paper, she is perfectly healthy. It has been almost 4 months since her injections and no improvement. Her headaches haven’t been as bad, but now the pain in her body is probably worse than the headaches. Does this go away in time? If anyone has any information for me, I’d appreciate it.

Thanks.

By: Susan Schwitz

Susan Schwitz — Thu, 28 Jul 2005 02:21:02 +0000

Hi, I had seen my doctor today regarding my chronic pain,TMJ, Fibromelgia pain all over my body from head to toe…The pain is getting worse…I have tried everything my doctor has given me as well have had cat scans to learn od disk degenerate disease from neck to lower lumbar…Well after reading all these stories on taking Botox and all the side effects…I am very confused because it has helped many people with no side affects and others caused more illness and damage….Need advise on should I go for my first injection just got the prescription today July 27/05….So my million dollar question is do I continue to suffer, take the risk and pray I will be one of the lucky one’s that Botox works on or should I just try alternatives?

Sincerely yours, Susan

By: Pam Perdue

Pam Perdue — Sat, 16 Jul 2005 16:51:09 +0000

URGENT REQUEST FOR ANSWERS*************

I had Botox injections 1.5 weeks ago,

on a Thursday, by Friday I had flu like symptoms which I was advised of that. I then started having severe dizziness, blood pressures dropping with sitting/standing, I became very dehydrated, I was hopitalized yet they weren’t sure what the cause was. I was released after 3 days, I continue to have the dizziness severly any range of motion I nearly pass out. Could someone please help me out, just wondering could this Botox have caused these symptoms, aling with unable to eat properly (get sick afterwards).

I look forward hearing from someone (any/all) replys greatly appreciated so that I can know which direction I should go to get help. I can;t stand this feeling I also hurt between the skull and neck lines, my Botox was injected @ neck-line of skull and neck line down the shoulders.

Please reply asap!

Pam Perdue

By: Karen

Karen — Thu, 14 Jul 2005 17:14:26 +0000

I started having botox shots less than a year ago, today my face is saging on the left side. I have lost part of my sight in my left eye.My eyes no longer close all the way. I can’t drive at nigth anymore because I can’t see, or stay out in the sun or heat from the pain in my eyes.I live with headackes that are so bad I cry. No doctor seems to know what to do!I beleive that I had to many botox injections in to short of a time or I was injected wrong. I am still looking for answers.I didn’t have a problem untill the last shot. In less than 24 after my last shot I had the head the size of a cow.The doctor first said I a reaction to botox then he said I had a reaction to the a cream I used. Then in the same office visit he said I don’t know what happened. I saw him one week after that and he said I had bell-palsy.This is 5 months later and there is very little change.The only good change is that I can feel most of my face again.I did have my shots done by a very reputable doctor. Before I had anything done I had very long talks about the risks involved. He told me how safe botox is. He stressed to me and lead me to beleive that it was one of the safest drugs on the market.Sad to say as of today I looked better before I had the botox shots. The shots I had were for cosmetic purposes.

By: Elizabeth

Elizabeth — Thu, 07 Jul 2005 23:36:35 +0000

I began using Botox for migraines 5 years ago, and Botox gave me my life back. My migraines had become so severe that I was vomitting every 3 days, could not tolerate any noise or light including the air conditioning, etc. After years of living with occasional migraines (b/c none of the medications worked), I decided to try Botox injections. I have only had one migraine since, and that was because I went 11 months between treatments. I have several friends (ranging in age from late 20’s to 60’s) who use Botox cosmetically and/or for migraines–none of them has ever had ANY negative side effects. We all go to VERY reputable doctors, not fly-by-night clinics. Botox is a miracle drug to me, and I strongly encourage anyone who has not had success with other migraine medications to try Botox. One great side effect for me is that I have no forehead lines until about month 8 after treatment.

By: Ellie Kligman

Ellie Kligman — Sun, 26 Jun 2005 23:23:14 +0000

I have had botox injections every three months for the past 1.5 years. I had my last injection three weeks ago and have begun to experience severe headaches. I called my doctor and was told that it would get better, so I am praying that it will dissipate. Should I survive this, I am finished with any kind of plastic surgery.

By: Marie from Canada

Marie from Canada — Wed, 18 May 2005 15:50:13 +0000

I’ve been having botox for 5 years for cosmetic purpose, and I had pain in the trapezius area since, but I always thought the cause was stress from my job. Since I’ve read this discussion group and seen all the side effects, I stopped having botox. It’s been 6 months now, and my shoulders are getting better, the pain is gradually going away. thanks for opening my eyes!

By: Pepper

Pepper — Tue, 01 Mar 2005 18:00:28 +0000

When will people start taking responsibility for their own decisions? I am a migraineur of 38 years and when I take a prescription from the doctor or a treatment such as Botox I realize it is my decision and my responsibility. I research drugs before I take them; I don’t blindly trust doctors. I get second opinions, I search the internet, I ask other patients. Doctors aren’t gods and neither are pharmecutical companies. Your treatments are your decisions, your risk. Grow up.

By: Rebecca

Rebecca — Wed, 05 Jan 2005 15:23:53 +0000

Hi, I have a question on Botox treatment for headaches. My doctors’ have tried many medications such as Imitrex, Maxalt, Depakote, Topamax, Celebrex. Also, over the counter meds. Nothing help or if it did it would work a few times an then nothing. I had headaches for 6 yrs. now. And he just told me about the botox but reading the posts now I’m not so sure. I had side effects from some of the medicine he prescribe me. Can someone give me more information on this. Thanks alot.

By: Rick

Rick — Wed, 22 Dec 2004 12:53:42 +0000

i have suffered from Cluster Headaches for 10 years now and nothing worked. After several neurologists and doctors I finally found one who tried Botx shots. i still get headaches from time to time but I have my life back. Thwe botox helps because if I go to long between shots the headaches come back. i have gone from not being able to work having 5 to 10 headaches a day to maybe two or three a week.