176 responses so far ↓

• Nina // Jul 15, 2003 at 11:20 am

  I have been on Neurontin for the past 8yrs. At which time I was started on 3100mg and now down to 2100mg daily.

  Last Friday while watching Dateline, I seen that this drug was only FDA approved for Epilepsy. Then after that looking on the internet I found out that California has already file suit against Parke-Davis for the misuse of this drug.

  Yet all the Doctors I’ve seen over these years, not one has even told me or ask me to have a blood test to check for possible problems stemming from the prolong use of this drug. I was placed on it only for a chemical imbalance was what I was told, no other problems that would determine me to be on this unapproved drug for my symptoms.

  The FDA only approved this drug for epileptic seizures and only if taken in conjunction with another drug, but doctors have gone along with Parke-Davis’s other use that have not been approved and when is this going to stop after deaths have occurred?

  My questions are why is the government not doing more in stopping Parke-Davis and any other company’s fraud by now?

  Parke-Davis, a division of Warner-Lambert has made billons of dollars off the people that have been prescribe Neurontin. When is our government going to stop setting back while the big corporate companies ruin lives?

  Where can I go for a good lawyer to fight back because our government will not fight for its citizens?

• Marilyn N. Richardson // Jul 29, 2003 at 7:54 am

  My dad takes Neurontin for Manic-Depressive behavior. It supposedly controls his mania. Does anyone have information on the long-term effects of this drug?

  Thank you for your help!

• Debra // Aug 6, 2003 at 4:11 pm

  I have been taking Neurontin ever since beginning to recover from Guillain Barre Symdrome ( a reaction from my flu shot in 2000)I had neuropthy from the waist down after my getting out of the hospital. The effects fo this drug have been amazing to my life. I can feel my legs getting more sensations all the time. And the neurontin helps get me through the day, every day. I have had two occasions where I wasn’t able to take the Neurontin, one when I lost my prescription bottle out of my purse, another when I forgot to bring it along with me for a weekend vacation. I can certainly tell you that I know that it works for me.

• Deborah Kee // Aug 18, 2003 at 7:10 am

  I am from Alabama, and my little brother has taken Neurontin for several years for ADHD, my mother is intrested in getting in on a Class Action Suite aganist this company. If anyone has any information as to how to find out who may be fighting this case, please e-mail with the information. I would greatly appreciate it. Thanks in advanced!

• Dawn // Aug 21, 2003 at 9:26 pm

  I have been on many medications for my Bipolar Two Disorder. Neurontin is the FIRST Medication that is helping me! I have been on it for over 4 months, and I love it! I am calmer and more alert, and I feel more relaxed since I don’t have the Mania! I just don’t understand the law suit! My doctor has many patients, like me, that can’t handle anti depressants, mood stabilizers, and then they go on Neurontin, they are doing better! My Doc works with the State and they are only allowed to perscribe certain medications for Bipolar! I couldn’t take a beta blocker, so Neurontin is used for a lot of things, finally it worked!

  I have friends who have MS and Nerve pain. We all take Neurontin, and WE all LOVE IT!

  I don’t understand this law suit and situation. What is up and who is ACTUALLY AT FAULT????????

• Nancy // Sep 29, 2003 at 5:04 pm

  I saw the segment on dateline back in July at which time I was taking neurontin for arthritis pain. When I called my Dr. on ot only being approved for seizuers she told me many studies have been done and you can’t believe everything you hear on t.v. Needless to say I stopped taking it that day since it was not helping me. Was my Dr. on the take?

• Kim // Oct 2, 2003 at 1:44 pm

  I am wondering where I can get involved in the class action lawsuit for the neurontin. I was prescribed it for off label uses and it really hurt me. I need some information as to how I can find a lawyer who is involved with this class action lawsuit.

  I was prescribed this medication for so called nerve pain, which I still have, plus eyesight problems which I didn’t have before taking the neurontin, memory problems, chemical sensitivities, etc… What a nightmare Neurontin has causes for my marriage as well. I would appreciate all of the help I can get. Thank you very much!!!

  Kim

• Robyn // Oct 6, 2003 at 1:26 pm

  I’ve been on neurotin for 3 yrs. Its helped me feel normal. Its also helped my aggressive behavior. I don’t get provoked my little things so easy.

  Of course I’m interested in long time effects.I started at 1800 mg. and have brought myself down to 600mg to 900mg with no side effects. That I’m aware of.

• shelly // Oct 9, 2003 at 10:19 am

  I began taking Neurontin 2yrs. ago after a lower leg amputation. I was in so much pain until they gave me this drug! I just saw a commercial about suicide and Neurontin. I didn’t catch the phone number though. I am still taking the drug and now I am a little worried that maybe it could be the reason I feel so suicidal.I stay so depressed too. Wish I never had to leave the house. The fatigue is almost overwhelming! I don’t even want to lift an arm! I have also had to buy reading glasses since beginning the drug and never had a problem with my eyesight before! My memory is just GONE! Could all this be the result of taking Neurontin? I hope not because it really does seem to help the phantom pain from the amputation.

• Debra // Oct 9, 2003 at 10:24 am

  I was on Neurontin for over 1 year for nerve pain associated with MS. Not only did it NOT help the pain and abnormal sensations, it caused a world of problems. I was so severely depressed while taking it that I considered suicide almost daily. It also caused severe problems with my family as I was unable to do alot of normal daily functions. I have a four year old and I finally stopped taking it as it wasnt helping anyway. I would like to learn more about this class action lawsiut.

• Mary Ann Thompson // Oct 9, 2003 at 5:46 pm

  Where can I get information on a class action suit?

• Loretta Snow // Oct 9, 2003 at 6:29 pm

  I have been taking Neurontin for several months now for nerve pain caused by an auto accident. I had been trying to find out why I’ve been so depressed, tired and feeling like I would rather die than feel this way. I asked doctors about the side effects of Neurontin and was informed that this medication would not be the cause. Please be careful. I have been on a very low dose, at higher doses I sleep constantly. It has helped with my nerve pain, but the cost is much to high. What about long term effects?

• Holly // Oct 12, 2003 at 11:00 am

  I was perscribed neurontin during a months long manic episode. It really helped calm and focus me almost immediatley. I was so relieved not to be a mess, it took me ahile to notice the negative changes. I feel an addiction to this drug however, maybe it is mental? I can’t help but notice and feel drastic moods, anxiety, and dissastisfaction under the masking the drug provides. It is a struggle I keep to my self mostly because I feel my companion is too reliant on the outwardly “calming” effects it has on my personality. After over a year, I don’t know which way is up, and am starting to wonder about my doctor. He doesn’t see any real need to evaluate me, and in fact had known me for only 10 minutes before he put me on it. I feel seperate from my life, which of coarse helps a person with bi-polar, but it verges on something neglectful. I have gained almost 50 lbs in a year and barely have energy to accomplish much more than my job, and that feels like it is going to do me in. On other days, I feel grateful that my behavior is not out of control, and I don’t seem to interact in the same crazy way with my environment. But at what cost? Does anyone have any information on going of this drug? When I have missed it for a day or so, I felt really screwed up.

• Kelly from Baltimore, MD // Oct 13, 2003 at 11:43 am

  I was prescribed Neurontin for Bi-polar disorder in 1999 and paired with Ambien, during that time period I became severely depressed and tried to commit suicide, I don’t even remember doing it, I had overdosed on all of my Ambien. I had lived at college and as a result of my suicide attempt was barred from living on campus. I immediately stopped all the medication I had been taking and slowly I got back to my normal self. Come to find out my new doctor says I am not Bipolar, but suffered from Major depression, just a swing of life that was normal for my age group. Neurontin messed me up and so did the doctor that prescribed it.

• mary ellen yates // Oct 13, 2003 at 5:54 pm

  how can i get more info on the class action lawsuit aganist neurotin

• Tina // Oct 13, 2003 at 6:32 pm

  I have been on Neurontin for about 9 months to a year for Depression and panic attacks. It has helped me but I have one terrible side effect from this medication that has made me decide to stop this medication. MY MEMORY is gone, I can’t remember anything and I’m getting ready to go back to college and I am just so tired of forgetting and not being able to remember nothing. PLEASE email me and let me know if anyone has the same side effects.

• gwen // Oct 14, 2003 at 5:28 pm

  I HAVE BEEN ON NEURONTIN FOR A WHILE. I WAS PRESCRIBE THIS MEDICATION,FOR A NERVE PROBLEM. I BEGAN TO FEEL DEPRESS AND VERY SUICIDAL.I TRYED GOING BACK TO SCHOOL, BUT MY MEMORY IS NOT WHAT IT USE TO BE.MY RELATONSHIP WITH MY FAMILY HAS SUFFER A GREAT LOSS, BECAUSE I AM NOT THE PERSON THAT I USE TO BE. WHERE CAN I FIND OUT ABOUT THE CLASS ACTION SUIT. PLEASE LET ME KNOW,THANK YOU IN ADVANCE.

• Larry W. // Oct 15, 2003 at 6:40 pm

  I have been taking Neurontin for about 8 months now, to help with anxiety. I take 800 mg. a day, & have found that this shit really works!! Whats the big stink about??

• Tim Contreras // Oct 20, 2003 at 8:32 pm

  I was perscribed neurontin for head aches 3,000 mg a day I’ve had 3 suicide attemts and was caught all three time. I was a successfull musician and have broke and threw out over $500,000 worth of recording equipment and My girls ring and artwork. I’ve never yell at her or my child and now for the past year are affraid to say good morning. It’s not fair to them and or us. Excuse my spelling I lost that and speach including short term memorie. I hope if there is more like you out there. I think we can over come this, one way or another. All the best TC

• Brett // Oct 21, 2003 at 10:09 am

  While I have a solid diagnosis for MDD, my doctor has not ruled out Bipolar II. I have been on neurontin, 1200 to 1600 mg/day, for about 18 months. Getting off of paxil is its own nightmare (and class-action), but my ability to focus and short term memory loss is decidedly from the neurontin. The memory loss is fairly typical from the people with whom I have communicated. I have “kind of” gotten used to it and my brain seems to have adapted to rerouting thoughts so that my pauses in speech are mostly noticeable to me alone. It is the “why am I blanking on this common word I want to use” syndrome. I guess I will just keep on researching. Where can I find info on the neurontin/suicide nexus?

• Lisa // Oct 22, 2003 at 6:46 am

  I have been taking neurontin for almost 2 years. I have had a problem with being very fatigue & my memory is not good at times, also feel very depressed. I ask my Dr. If any of my meds. would cause these problems he said no. But he took me off neurontin a month ago & I feel better without taking it. I saw on T.V. about dangers of neurontin, please inform me about this & law suit againt the company. Thank you.

• Nancy // Oct 22, 2003 at 5:25 pm

  I have been on neurotin for about 2 years for diabetic neuropothy. It has worked for the pain in my feet and legs, I swore by neurotin, but it is effecting my memory, moods and I am getting more depressed. I satarted out on 300 mg 3 times a day now I am up to 600 mg 3 times a day. My daughter noticed first that I have been getting more depressed all of the time, I go to work and go right home, on the weekends I dont leave my house. THIS IS NOT ME.I dont know what to do because it deffinetly helps the pain.

• Emily // Oct 23, 2003 at 12:29 pm

  I was placed on neurontin around 2 years ago for bipolar ii disorder. During the first few months of taking the drug, I noticed a change in my mood that affected me positively. However, before I was placed on neurontin, I handled any type of crisis with a great deal of emotion but had restraint and self control. A few months after I had been taking neurontin, I now realize that it severely effected my reaction to all emotional situations. I became preoccupied with suicidal thoughts and in a period of 10 months attempted suicide 4 times. I lost the ability to retain information in my classes and had previously been a scholar in college and in high school. I lost control of my ability to handle money situations. In addition to all of these things, I managed to alienate and anger my friends and family. I was arrested by the police for invasion and dui because I attempting to get them to shoot me and was drinking in order to crash the car. This drug has helped me to have a police record, lose friends, injure family and friends mentally, lowered my grades, and created a horrible financial crisis. I would greatly appreciate help and support to fight the drug companies and the doctors who allowed this drug to be prescribed to me. If anyone has any additional information on the class action lawsuit, I would love to hear more about it.

• Doreen // Oct 23, 2003 at 12:39 pm

  I have been on neurontin 300 mgs 4x/day due to a injury with my neck in 1997 by a neurologist that I cannot locate now. I have experienced memory loss and thought it was just stress. I have considered and fought the desire to “end it all” and commit suicide several times, and only because I sought help instead of following through with my plans that I haven’t actually done it. I have suffered from mild to severe boughts of depression and mood swings yet I have been told it was me and not any medications. Because of that diagnosis, I have been in counseling and under psychotherapy as a short term remedy but the same problems eventually flare back up…fatigue, memory loss, depression, thoughts of suicide and severe mood swings. I have been on neurontin since 1997 and I saw a commercial on tv associated with neurontin and suicide, which was a relief that maybe a medicine was perpetuating that and not myself personally. How do I find out more about this situation because my prescription was during the time that this medicine was being promoted…it helps some with the pain I experience but I still have prolonged motor skills problems with my right arm, hand, shoulder and neck, and because I type for a living, the pain gradually comes back-thus I have to take it or I cannot stand the pain at the end of the work day. Please help me get more info.

• Doreen // Oct 23, 2003 at 12:46 pm

  as u can tell, it has affected my memory because i repeat myself in my text and i have gotten in trouble at work for doing that…

• Kitt Samuel // Oct 24, 2003 at 10:48 am

  I too can echo some or most of what others have said here. I am in need of information on who iI may contact for legal help in getting in on a Class Action Suite aganist this company. If anyone has any information as to how to find out who may be fighting this case, please e-mail with the information. I would greatly appreciate it.

  Kitt dr_khs@yahoo.com

• LaDonna Miller // Oct 24, 2003 at 12:40 pm

  I have been on neurontin for only 1 year now. Prescribed to help with neuralgia pain and tremors, as some of my symptoms of fibromyalgia. In just this years time, I have gone from 200 mgs-3 times a day, to 800 mgs-3 times a day. No help with the pain. It doesn’t come close to touching my pain! But my dosage just keeps going up every time I have an appointment with my neurologist. I can hardly motivate on this high dosage. But that is what he prescribes. No pain medication, because he doesn’t want me to get dependent on them!! Well, imagine that! Now I am stuck on the neurontin, which doesn’t help, and I just can’t quit taking it because of the danger of having seizures! YES. We need a suit against this product! And YES, I want to be a part of it!

  Thanks,

  LaDonna Miller

  1288 S. Hardin Rd.

  Harrod, OH 45850

• Joyce Penney // Oct 24, 2003 at 4:52 pm

  because of neurontin i developed trigimenal neuralgia how do i know? i took it for just short of two months on 8-18-03 i woke up at 3 AM with i thought was a tooth ache. It passed in about 30 min. the nxt day i went to work about 10 am it hit again it was unlike any pain i had ever experienced this was a strange tooth ache. i called my dentist it was a sat. he called i said i was having a really bad tooth ache but really strange. he called a pain med and antibiotic into my pharmacy. i got the prescription filled the next morning after being up about 10 min. it hit again the pills did not help. i called my dr. and discribed the pain he said we’ll have to do some tests but it sounds like tn. every morning i would get up and the pain would hit like a bolt of lightning hitting me in the face over and over for as long as 6 hrs periods of time. i was tested for ms and cleared. so i had tn what was it? how did i get it? why did i get? what had i done different i was prescribed neurontin for herniated disc’s in my neck, could that have caused this i went on the enternet looked neurontin, i saw that it was being used for the treatment of tn if i did’nt have tn then took neurontin and developed tn could it have been the neurontin? i sat and cried for hours at a time the pain was so excuriating i could not touch my face to wipe my face it hurt to bad so i would sit in pain and cry, tears and my nose running down my face. i went to two different neuraligists the first one said he also prescribed neurontin for his tn patients and that i should just bite the bullet at which i told him to bite my @## and never went back. the next one said that he too prescribed neurontin for his tn patients,he put me on a medication that after a week i was gettinf peralisis in my rt. side i was dropping everything when i told him he said most of my female pat. love this med. it makes them lose weight nice trade off i’ll be skinny but parilized on my rt side needless to say i dropped him. i went to my general practioner he put me on tegratol it worked but was eating my white blood cells. i was on a support group website for people with tn i kept seeing that several had, had surgery. i looked up surgeons that specialized in this type of surgery i called one in md i live in fl to make an app. i was told by that off. that the best dr in the world was in gainesville fl i made an app. on 6/16/03 i had brain surgery because of neurontin. how do i know for sure i called the pharmisitcal co park davis pyser and spoke to a pharmisist on staff yes i have her name the date and time i spoke to her i asked could neurontin have caused my tn at first she said there was nothing in the clinical trials that associated tn with neurontin. i was cring i was so angry about the whole thing. she said wait a minute put me on hold for a few seconds then came back she said there are new clinical trials that have not been released and in them facial pain is one of the side effects of neurontin. i asked if she could send them to me she said she would. when i got them they were the old clinical trials. i called again and asked for her i was given to someone else yes i got her name to date and time i was told that those clinical trials could not be released. approx four days later i received a letter from thier attorny saying that i was only to contact her from then on and that parke davis pyser would pay for any medical and dr bills for “what ever may have caused my pain” i’ve been on a one women crusade ever since. i have been in touch with a reporter for ny times she is researching my claim. someone has got to stop this craziness get it off the market. were you aware that they are experimenting with babies as young as 3 months. how as a free country can we allow this to happen. i have talked to people who were prescribed neurontin fir migraines and developed tn, people who had back aches took it now have tn. well thats my story jp

• Diana Whinery // Oct 24, 2003 at 8:26 pm

  OMG! I have been taking neurontin since about 1995 for a condition in my neck from a car accident. I was had a successful career working for the State of Kansas in Vocational Rehabilitation Services for 11 years. I have not been able to work for about three years. It will be four years in February. All because I am so depressed I cannot hardly get out of bed. I have been suicidal more than once. I have no joy left in my life. My doctors have tried all kinds of depression medications to try and help me but none works for long. If what I read here is true neurontin is responsible for ruining my life! I want to know why the medical community has not come forward with this information. Surely someone knew of this side effect! I say we sue the bastards that made this pill a cure all which it is not!

• Mike Oberg // Oct 26, 2003 at 1:26 am

  I took Neurontin for 5 years for an unknown seizure disorder. I became so clinically depressed that I attempted suicide and was hospitalized for a month. Even then nobody ever made the distinction that Neurontin may have caused the problem. Against all doctor’s advice, I took myself off Neurontin and my problems went away. I still suffer from extreme memory loss, migraines, and small painful swelling on my forehead and eyes. Has anyone else experienced this?? The issue now is to prove that Neuronyin caused these problems. I thought for a whole year that I was literally going crazy. I felt like my life was being sucked away and seriously felt like I was losing my mind. I hope someone can give me more information in how I can somehow get something back from this travesty, and move on with my life. I’m sure we all share similar stories and can all identify with these feelings of anger and outrage.

• Thyme Leach // Oct 26, 2003 at 8:51 am

  I dont really no where to begin my daughter was first put on nurtion for a moood stablizer I found her on the bthroom floor trying to remove the spotts fron the tile

• liza // Oct 26, 2003 at 9:27 am

  TO ALL WHO HAVE WRITTEN RE A CLASS ACTION SUIT: I have gotten in contact with a litigation team in DC - I will post any information I get as soon as I get it.

  I was diagnosed with bipolar disorder three years ago and put on Neurontin - I was already on Paxil (80 mg a day- a sign that my doctor had NO idea what he was doing - but hey, what did I know?). Seven months later I was in a psychiatric facility for attempted suicide. For those of you new on the drug, it takes about 6 months to start screwing up your brain. I got a new shrink who also didn’t read medical journals, and stayed on the Neurontin. Another suicide attempt (BTW - overdosing on Paxil will only make you throw up). I finally have a GREAT doc. I would highly recommend a psychopharmacologist if you can find one in your area. No Paxil, no Neurontin. The meds I’m on still affect my coordination and thought, but it’s a small price to pay for being alive.

• Thyme Leach // Oct 26, 2003 at 10:07 am

  My daughter was prescribed neurontin 600mg.x4 a day. For bi-polar disorder in 1999. Emily was seventeen years of age.

  After one week on neurontin. I found Emily on the bathroom floor. Emily was trying to pick the specks off the tiled floor. When I asked her what she was doing? She said I didn’t know. But the specks have to come off!

  After one week she started to have mood swings, personality changes, headaches, aggression, violent, hallucinatinting, disoriented, and she wanted off the drug.

  Emily took herself off neurontin after weeks. She flushed them down the toilet. After a week without neurontin she started feeling more normal. It took her a month to the way she did before starting neurontin.

  My son was prescribed neurontin in 2001. By another doctor his shrink. It was prescribed for his ADHD and headaches. 600mg. 2x aday.

  After a week of taking neurontin. Trace started he started breaking windows at home, knocking holes in the walls, cutting his arms and wrist with glass, knives, or anything that would cut him, and his head hurt all the time.

  He told his doctor how he was feeling after a month. The doctor increased his dosage to 600mg. x3 a day.

  Trace mood swings, headaches, self- inflected wounds, aggression, and behavior patterns increased with the higher dosage of neurontin.

  His grades were failing at the age of sixteen. Lost focus, short memory loss, suicide attempts several times a day, with the feeling of no reason to live.

  He was addicted to neurontin and he couldn’t go without neurontin for his headaches became worse! Trace would say that his head was pounding intensively and have to take his dosage so his head wouldn’t hurt as bad. His headaches were more intense being on neurontin. His social life was terrible!

  Trace has been on neurontin from 2001 to October 2003. His doctor insisted that his had to take the drug. Trace refused and is now lowing his dose to be neurontin free. His behavior is still affected by neurontin.

  I wonder if I will ever have my son back to the way his was before neurontin destroyed and took him far away from himself, family , and friends?

  Now comes myself. I have RSD, nerve damage of my left arm. I went to a medical pain specialist in 2-10-2003. I had to sign a agreement to follow his instructions only.

  The specailist give me a dosage of 600mg. 12x a day for relief of pain. My behavior started changing after a week. I became aggrassive, suicidal, wanted to hurt people, I actually attacked my daughter with a knife and cut her throat and was going for her stomach, the knife was taking from my hand from her friends. I probably would have been up on murder charges if i wasn’t stopped!

  My whole life was turned upside down. I told the pain specialist and he increased my dosage to 600mg. 24 x a day.

  ~~Look Out ò¿ò ~~ Now I was a totally out of control ! I lost my friends and almost killed my family. I also tried to kill myself and was in the physic ward for seven days.

  The doctors at the hospital said the dosage was way to high. They lowered my dosage to 16 600mgs. a day.

  I realized I need to come off neurontin. It was so hard. I couldn’t handle the pain and withdrawls I suffered during this ordeal. Which took over a three months.

  Needless to say I changed doctors. I have now been neurontin free for two months. I never want to take or would advise anyone to take neurontin. It never did take away my pain and only created other medcial disorders.

  Please! If anyone has any imfomation on the CLASS ACTION LAWSUIT AGAINST NEURONTIN EMAIL ME!

• Emely // Oct 27, 2003 at 3:42 am

  I’m not sure how long I’ve been on Neurontin, 8-10 months now I think. My concern is my most recent experience. I didn’t have enough money for my co-pay to pick up my prescription - Neurontin and Topomax so I hadn’t taken my meds for well over two weeks. The first week was fine, I didn’t feel a thing. I slept well which was the biggest concern of mine since these drugs knock me out. The second week was completely different. Although I could sleep, the body aches were tremendous! I have never felt so much pain in my muscles. I have horrendous headaches, severe memory loss - but the one thing that just surfaced was the feeling that I was myself again. I’m not sure if that makes sense to folks, but I felt like the old me (along with excruciating pain). I’m back on it. It was prescribed for my bipolar II or episodic depression - the jury is still out on what I’m suffering with and I’m terrified of slipping into another depression so I’m back on it. I do notice that upon taking it after having been off it for some time, that I have “brain buzzes”, is that common? My heart goes out to all who have suffered from the ill-effects of this drug - I truly understand, and I worry about the long term effects of a drug that is so widely prescribed for such dramatically different illnesses. Where does one begin to work against the company that promotes this drug so haphazardly?

• Jennifer // Oct 27, 2003 at 4:24 pm

  I know how it feels to be on Neurontin. I am a 19 year old college student. But my senior year in high school was a living hell due to the drug. At the beginning of the year I was having muscle pains in my legs. I was recommended to a neurologist. He put me on Neurontin at 600 mg doses 3x a day, to control the pain. It didn’t help. It made it worse, gave me severe spike headaches, and I had mood swings. I would be violent against my brothers and depressed most of the time. Which isn’t like me at all. I am usually a very happy, non-violent person. Later I was diagnosed with Fibromyalgia. Again the neurologist kept me on the Neurontin. The symptoms only got worse. I missed nearly 100 days out of the school year because of the drug. I only passed because I was home schooled and got what minimum work I needed done. But I barely did that. My parents helped me. I was too out of it, too depressed to even care. There were times that I wondered why was I even alive. I had no use. The pain was so bad, perhaps if I killed myself, the world would be a better place. That is not at all like me. I enjoy life to the fullest always have. I am glad a lawsuit may go against them. No one needs to have their lives screwed over. And No one needs their last year of high school messed up either. That’s something I will never get back all because of Neurontin.

• annie // Oct 27, 2003 at 10:20 pm

  I have been on neurotins for over 5 yrs for pain,, since my accident,, I have been suicidal,, most depressed,, an very disfunctional,, costing me my family,, marriage,, an my life,,WHY would drs, not check into meds more carefully ,, not caring about patients whose lifes they are entrusted with??? annie

• Harri // Oct 28, 2003 at 6:19 am

  I have seen commercials on TV for a class action suit against Neurontin. Has anyone received any information from the law firm ? They never contacted me.

• shad // Oct 29, 2003 at 7:00 am

  Please someone email me with the number of the class-action law suit about neurontin and suicide.

  shad

  shadbris@comcast.net

• J.P. // Nov 1, 2003 at 5:04 pm

  those of you who took neurontin and had no side effects are so lucky you don’t know how lucky. this medication is lethal and the way it is used has got ot be stoped. i do not have epelipsy never had it but that is what neurontin was developed for and i guess it works for that. but think about epilepsy its a nerve condition severe at that. if you don’t have a severe nerve condition and are prescribed neurontin what does it do to the nerves of a person without epilepsy or ms? if you take it, come off slowly don’t just stop thats what i did. i sujest to anyone taking it for anything other than epilepsy or ms talk to your dr. but don’t be sirprised when they say there is no connection because they probable prescribe it for off market uses too. after all they make big money from parke davis physer experimenting on us. if they say they don’t, ask them about conferemces in aspen where they took thier family and skied staying in a very exclusive lodge being waited on hand and foot. those are called incentives to push a drug that no one knows for sure what it will do to us. and the dr’s do what they are paid to do push the drug whatever it might be this month. am i bitter damn right i had brain surgery because i took neurontin it effected my nervious system and allmost took my life the pain was so bad i almost killed myself rather than wake up one more morning with “THE PAIN” larry w. and dawn good luck i hope you never know what this medication is capable of its a monster just waiting to kill someone and i’m not being dramatic as i said i had brain surgery directly associated to neurontin parke davis physer told me this was fact. but would not send me conformation because those “clinical trial’s could not be released” someone please protect us from the large pharmicutical company’s it’s time to let them know that between thier dr’s and lawyer’s we still have a voice.

• Debbie Deaton // Nov 2, 2003 at 8:16 am

  I was put on neurontin back in 2000 for anxiety and bipolar i have since been suffering with dizzy spells and put in the hospital to find out what was causing them I do have ms but the mri showed that that wasnt what was causing the dizzy spells and the pain in my neck after i came out of the hospital with no answer as to what is causing my dizzy spells my pshychiatris would not see me anymore because i went to another doctor which was a neuroligist that i was going to before him for my ms and he was trying to find out what was causing the dizzy off balnced feeling i cant drive most of the time i feel like i am going to pass out and nobody knows what is wrong? If anyone knows how to go about this class action lawsuit please e-mail me back with the information i would very much appreciate it. Thank You and Good Luck

• J.P. // Nov 2, 2003 at 5:01 pm

  I read this site every nite hopping to get some info. on a class action suit. I have signed up on several sites but have not heard anything from them. There seem to be so many of us we need to stick together and do something. I’m encluding my e-mail add. Please feel free to contact me with any information that you may come accross. I know that there are a lot more of us out there they just have’nt put it together yet. Parke Davis Physer is really tring to cover all of this up. My best advice is to read, read, read everything you can about neurontin, its side effects etc.

• J.P. // Nov 2, 2003 at 5:23 pm

  try pal@prescriptionaccesslitigation.org

• Wendy Bird // Nov 3, 2003 at 4:22 am

  To all of you who are describing memory problems, I have documented testing that proves I now have problems with the memory/cognitive functions I described. It appears that the neurontin damaged the Central Auditory Processing part of my brain.

  (I was only on neurontin a short time, but was started at a very high dosage, and was on morphine at the same time, and was abrutply taken off the drug)

  There was nothing wrong with my mind before the drug.

  I have had every test(I felt like a lab rat) that my Doctors could think of (including a liver biopsy) to try to blame my problems on something else. Every test was negative. I was even sent to a psychiatrist (Ican’t spell either) Luckily, I got a really good psychiatrist, and he confirmed these problems were not phychological, but had a physical cause. He got me into speech therapy, an audiologist who specilized in auditory processing testing, and a good psychologist who has done extensive nueropsychological testing, that show which part of my brain no longer works. He also got me some GOOD councelling to help me deal with the drastic changes in my life and to keep me grounded. I am very fortunate, I have a very loving and supportive family, even when I am difficult. and some days are very bad.

  One of the things to be aware of is that I can no longer concentrate or absorb information when there is background noise, or alot of conversations at once, this results in mix ups, confusion and frustration for all of us. I am trying to be aware of these things and leave the room, use ear plugs in public, and count to ten and try to think before I react to situations I find confusing and frustrating, particularly when dealing with my children and husband.

  I also find it difficult to accept help to do things that I used to take for granted. But accepting my situation has gone a long way towards understanding what has happened to me and helping me to deal with it on a daily basis. It is exhausting, lots of days I am in bed for the night by 7, and I have to have frequent naps, but I still can think and reason, and try to creat situations in which I can find enjoyment in new ways. I hope this may help someone out there. If you have any other “coping” ideas lets share them.

• J.P. // Nov 4, 2003 at 5:03 pm

  Of course it is possible for certain people to take neurontin and not be effected in the same way it seems to attach the nervous system, people have different reactions to the same drugs all the time thats why they have clinical trials to find out how it effects people differently. The thing with neurontin was that they did not do all the clinical trial they should have. They started touting it as a cure all for everything, not knowing nor caring how it would effect you and I. The truth is corp. didn’t care they just saw a chance to become even richer as of now over 3 billion on neurontin and a lot of people very badly hurt.

• Brenda // Nov 4, 2003 at 9:51 pm

  I have been on Neurontin for 4 years for arachnoiditis of the lumbar spine. I started at 300 mgs 3x day and am now up to 1200 mgs 3x day. It has been a god send since this disease has no known cure and caused among other things debiliting pain. But I have also gained 120 lbs., have NO short term memory and have had a ringing and numbness in my right ear. Now I know why. Any help with a Class Action Suite in New Jersey would help

• Amanda // Nov 5, 2003 at 1:26 pm

  I saw the commerical on TV, but did not get the phone number to call. Can anyone give it to me?

  I was taking neurontin and sufferd from depression, mood swings, memory loss and many thoughts of suicide. I am off the drug now and doing much better!

• Keith Altman // Nov 8, 2003 at 11:09 am

  I have the FDA adverse event data in my posession and have been analyzing it for Neurontin adverse events. If anyone is interested in discussing my results, send me an e-mail to altmanm@optonline.net

• Wendy Bird // Nov 9, 2003 at 12:40 pm

  Keith, about the FDA averse reaction data, I tried to e-mail you but my email was returned to me. Can you post on this site where we can get this info ? Thank you Wendy

• P.C. // Nov 10, 2003 at 6:54 am

  I have been on Neurontin since the early part of 2003. It was prescribed to me for nerve pain as I have a RSD condition. I started with 300 MG and my neurologist put me up to 1600 MG. I really struggled with this drug and increasing the dosage. It does help with my pain and my sleep at night. The downside is the depression that I am now suffering, extreme mood swings, memory loss both short and long term, NOT WANTING TO LIVE and my vision has really deterioted since I started taking this drug.I want off the drug and it is now making sense to me why I am so depressed, feeling worthless and not wanting to live. I can only hope by getting off this drug, that I won’t have permanent damage to my brain. People…really think about this drug before you begin taking and do a thorough research. When prescribed to me, I was told that it was for epilespy/seizures etc. however both the Dr. and the Pharmacist say they have good results for people with nerve pain. I beg to differ when considering the other problems associated with this drug.

• Willow // Nov 10, 2003 at 7:26 am

  Thank you J.P. for the phone number and web site for litigation on Neurontin. I’ve been taking it for almost 5 yrs. now. Diagnosed w/ Bipolar II, I was started out w/small dosages as most folks are, but my dosage went as high as 4800 mg/day! I was begging the doctor to let me try an anti-depressant because I still felt depressed, but the doctor just kept on increasing the Neurontin. I had never had a manic episode, only depression, yet the doctor thought an anti-depressant “might bring on a manic episode”….huh?. I’ve since changed doctors, and am now down to 2400 mg/day, and taking Wellbutrin and Lexapro for depression. What a difference! I’m not walking around in a fog anymore. My new doctor has encouraged me to slowly drop the dosage of Neurontin a bit more to see what happens, but I’m finding it difficult. I had a sneaking suspicion that this stuff is addictive. I am interested in the long term effects of usage, and am a little frightened by what I’ve read here today. I’ll keep checking for new information. Thanks, Lisa

• J.P. (Joyce Penney) // Nov 10, 2003 at 12:46 pm

  my email add is pen587@aol.com i would really like to know how many people that were given neurontin for pain, ect. developed nerve damage? is there anyone out there who experienced nerve problems. the depression is established in all your comments. but what about perminate nerve damage? the atnny. whos number i submitted in an earlier comment is only interested in clients who have tried to commit suicide after taking neurontin. i really afraid that there are people who developed nerve damage that have not put it together with neurontin yet. i was given neurontin and morphine for herniated disc’s that i find i can tolerate that pain after having brain surgery for the nerve damage that i developed after neurontin. i’m repeating myself i have aready commented on all of this. i guess i will not be happy till someone blows up parke davis physer pharmicutical co. i have never felt so helpless,bitter,angry,confused in my life,to know that what i have gone through was not nessesary that it was because of big business and thier lack of concern for the every day joe. the fact that they pushed this med. knowing that the did not have all the facts,that they had not done enough research to prescribe it in the manner that they are. the fact that thier are new clinical trials that you and i cannot get that associate facial pain and a lot of other things. just good luck to all of us

• Keith Altman // Nov 10, 2003 at 7:08 pm

  Wendy,

  Try fibonacci6@aol.com

• Michele // Nov 11, 2003 at 6:35 am

  Good morning. I was delighted to see some interaction on this important topic. I, too, was harmed as a result of this fraudulently marketed medication.

  I’ve started an MSN group for those of us who may wish to collectively (or individually) bring suit against Parke-Davis/Pfizer. It can be found at: http://groups.msn.com/NeurontinLitigants.

  I am going to be gathering information on suitable firms to handle this. I spoke with a representative from Hagens-Berman late yesterday afternoon. Unfortunately, at least according to the attorney with whom I spoke, it sounds like personal injury-related claims are typically handled individually, rather than as a class action type of matter. He (the attorney) did offer to ‘take my information’. It sounded to me, though, that they are more interested in non personal injury-related actions against the company. In fact, he noted that they are not alleging that there was anything damaging about the drug, per se, rather that it was fraudlently marketed.

  As I mentioned before, I am going to be making some inquiries this week. If you like, feel free to come to the MSN group to tell your story, post links, add information, and interact with one another as we embark on this journey.

  I, for one, do not plan to just ‘let this go’. This medication very nearly cost me my life. In my opinion, someone needs to answer for that. Huge pharmaceutical companies (e.g., Pfizer) ‘hear’ only through $$. So that’s exactly how I plan to make my story heard.

  Who’s with me?

  ~Michele~

• Michele // Nov 11, 2003 at 7:21 am

  Here is an interesting article related to the litigation against Parke-Davis/Pfizer’s Neurontin. Although it speaks generally to the FDA’s (purportedly limimted) free speech rights, it seems relevent to the issue at hand. The article can be found at: http://www.businessweek.com/technology/content/nov2002/tc20021114_1107.htm.

• chris daniels // Nov 11, 2003 at 8:39 am

  i don’t know what to do anymore.they prescribed neurontin after my back surgery.I now have little to know feeling in my legs anymore.i hate to even go outside anymore and get all shaky.i just don’t know what to do.any help would be great

• J.P. // Nov 11, 2003 at 3:48 pm

  michael tried the website can’t get on yes anything to do something.

• Michele // Nov 11, 2003 at 4:40 pm

  JP, try http://groups.msn.com/NeurontinLitigants . Hope you can get it rolling!

• michele // Nov 11, 2003 at 4:42 pm

  I’m just getting started with the MSN group. I’m hoping that it might end up serving as a centralized location for us to use. What do you think?

• J.P. // Nov 11, 2003 at 5:25 pm

  pen587@aol.com michael i’m for anything that will make thes b*&^%$#s pay for what they have done to me. i will never be the same. come on all of us need to ban together there is power in numbers and we all know that just the people we have on this little website can you imagine all of the people out there who don’t know where to go people like us that have been injured and don’t know where to go. michael this had better not be anything shady on your part, you had better be on the up and up with this. your dealing with a lot of very emotional people here after we have been through enough due to a little pill called neurontin, i could have died and if i had not had the brain surgery i would have killed myself rather than experience the pain that i had. i was told that i could die during surgery, i didn’t care i knew that i had to be able to live a fairly normal life, not what i was living at the time. a pain that would hit me like lighting in my face hitting over and over 8 times a minute. now michael tell me your not going to F888 with me or any of these other nice people.

• michele // Nov 11, 2003 at 5:33 pm

  Not sure if the Michael you are referring to is actually me (Michele). I am not an attorney. I am a fellow former consumer of neurontin who has suffered as a result of having taken the drug. The MSN group is a place for us to gather to discuss the possibilities. I messaged you using AIM, btw, but did not get any response. I hope we can really get something rolling. I’m waiting on the paperwork to arrive from the 1800lawfirm people. Did anyone else get this paperwork yet?

• J.P. // Nov 11, 2003 at 5:53 pm

  I’m sorry mechele i have become very bitter since this all started 8-18-02 to present. please don’t mistake my comments i appreciate anything you can do to help. i have unfortunatly become very bitter distrustful, angry, after all who can you trust if you can’t trust your dr. to do the best for you and not themselves. again i’m sorry thst i came over being a b#@*%h i am very bitter. lets work together maybe we can make a difference good luck to us all.

• michele // Nov 12, 2003 at 4:26 am

  No worries, JP. Anger, fear, dissapointment, and grief seem to be a piece of the neurontin experience for many people. It’s certainly done a great deal of harm (along with the benefits that some experienced) to a great many people.

  We did have a very interesting comment on the MSN group from one of the persons working with the 1-800-XXXXXXX folks (the organization that has advertised on television in this matter). His comments were helpful, insightful, and valuable, in my opinion. Perhaps others will join the group soon, as well. ~Blessings~ Michele

• Tina Johanson // Nov 12, 2003 at 11:40 am

  I saw a advertizement on a class action law suit on the drug nerontin and have taking this drug for nerve damage due to a back surgery and suffered sever depreshion and tried to kill my self i got so dpressed while on this pill i stoped taking them after about a two year spand also this drug started to make my teeth crumble i would like to know where i can get this number they advertized on cnbc please contact me as soon as possable thank much tina

• Drew // Nov 12, 2003 at 10:10 pm

  My brother tried walking into a train on neurontin, Any help?

• Dianna Galligar // Nov 13, 2003 at 6:45 am

  My name is Dianna my husband was taking Neurotin for a couple of years after his surgery. He became psycho and abusive I always said it was because of the medicine. He died on 12-26-2000. The doctors said it was an accidental drug overdose. You guessed it he overdosed on Neurotin. He was 35 with 3 children. Now what do I do. Can I do something?

• michele // Nov 13, 2003 at 11:10 am

  I heard back from the Finkelstein firm today. The woman I spoke to on the phone said they had had literally THousAnDS of people call in re: the neurontin case. Sounds like the majority of that (and what they are focusing on, to my knowledge) is suicide-based cases. If literally THOUSANDS of folks are already on board, and if personal injury stuff is handled individually rather than collectively (e.g., class action litigation), then I’m not sure if I should consider this good news or bad news. I suppose it’s ‘good’ (depending on how you look at it) for my case, in that it’s definitely not unique, but could also be ‘bad’, in that Pfizer surely won’t shell out settlements to thousands of people. What do you all think??

• Dianna // Nov 13, 2003 at 12:12 pm

  Dear Michele,

  I believe in Class Action Suits they take the most severe one’s and they get a larger amount than the rest. But most cases some people get money even though it is not alot because of the amount of people.

• Rachel // Nov 13, 2003 at 1:57 pm

  I am currently taking 1200mg of neurontin a day for bipolardisorder. I was at one time up to 3200mg a day, until i was hospitalized for a psychotic episode when i ran out of medication and started to withdrawl, in which my boyfriend had to call the police and I tried to grab an officers gun in order to get them to kill me so i didn’t have to do it myself, upon arrival at the ER the dr’s refused to administer the dose of neurontin i was on stating it was just too high… I am now suffering from blinding headaches, muscle and joint pain, blurry vision, severe depression, and I also have seizures which i have never had prior to the withdrawls. I have lost my 2 children, my husband, my job of 5 years, and i feel my health and sanity.. yet I can’tstop taking the drug because I fear hte withdrawl once again.. By the way pfizer pays for my neurontin as part as a “medication assistance program” through my mental health center. Basically I have been used as a guinea pig in a medicine trial. None of this added up until now. please someone e-mail me with an attorney or firm handling this case.

  Zaraglittergirl@sbcglobal.net

• J.P. // Nov 13, 2003 at 5:24 pm

  pen587@aol.com how are all of you tonight? a couple of new things,Hagens berman/225 franklin street/boston,ma 02110 617-482-3700 also MedWatch on the web. as far as money i could care less i just want this co. to pay for what they have done. because of them i have a metal plate in my head, brain surgery,and just p###ed. i know we would all like to get a lot of money out of this but if thats not going to happen, would’nt you like to see this med. off the market. and even though we as indevidials get just a few dollars. think of the people we would be saving from the things we have been through. They are using this s%$t on babies as young as three months old what is it doing to them. i would like to blow up pfizer and all of the people in it that made these decisions to push this the way that they are. we need to stop them for ourselves and those who are just about to experience the hell that is neurontin.

• Amanda Guidry // Nov 21, 2003 at 10:16 am

  I AM IN SHOCK!!! I am normally working but I had the day off so I decided to watch some mindless t.v. I was relaxed on the couch watching a talk show when I saw the commercial about Neurontin and suicide. My mouth dropped open and I started to cry… I am a 29 year old female diagnosed bipolar type 2 in March. I was put in the hospital for a week for depression and they changed the diagnosis to bipolar. The psychiatrist started me on 800mg and then worked up to 2400mgs of Neurontin to control mania. I was only out of the hospital for a couple of months and one day I took a pocket knife and began carving on my legs and arms and eventually slitting my wrists. Luckily my boyfriend came home and called 911. This was on May 20 of this year. I was in the hospital for another week and they started me on Lithium. I relocated after that and my new psychiatrist started to decrease the dosage gradually because I was complaining of being so tired during the day. I was just getting off Neurontin in October and one night after a stressful day I overdosed on over 100 pills of various sorts. At the moment I am not sure what to do about all of this. I need to find out as much info. as I can about this. I will try to call the attorneys as soon as I can. In the meantime…anyone that has a comment or suggestion please email me @ amandablythe1973@yahoo.com

  Thanks and I look forward to hearing from all of you!

  Peace,Love,&Happiness,

  Amanda Guidry

• DEBRA MAYO // Nov 21, 2003 at 8:00 pm

  i am currently taken nurontin for chronic severe pain i take 300mgs x 3

  i am curious has anyone been diagnose with a brain tumor. i have been diagnose with a benign menigioma in june of 2003. i have had mri before and there was never no signs of a tumor in 1995. see i woke up on the morning of 7/18/02 with severe pain raking my entire body and was rush to the er where they ran test for a heart attack which i inform them i was not having because i had no colesterol problems they check my sed rate and found it elevated they gave me daypro and loritab. nothing seem to help i was still in severe pain. i seen a arithis dr who started prescribing rx’s such as ultram which didn’t work you could not even touch my body it hurt so bad so they check all my bone structures they said i had bone spurs on the hips but this was not the cause of my pain so inlate august they put me on nurontin 300mg x3 a day but my pain still stayed with me i had to switch arithis dr because the other did not want to prescribe a stronger pain med than the darvocet that i had been on for years for pain she did not care and everyday i was getting worse. so finally the new dr said i had mild fibromyalgia, myalgia, and some really bad dics in my back and could not understand why i was not suffering from them. so he added celebrix and loritabs along with the nurontion. this was in feb. i began to feel better i only took the pain meds at night when the pain was severe i am not one for pain meds unless i have to have it . well i did well for about two month when i started to have numbness on my left side slurred speech and stumbling alot when i walk. in may i found myself back in the er because i was completely numb on the left side and in pain they did a cat scan on my head and found what they call calcified palque on the left frontal lobe of the brain but get this they did not tell me.i had to find out the hard way. i was taken to the er 2 more times for the same thing but also had a crawling sensation all on my left side. finally i was seen by a nuerologist who did and mri of the brain and neck. i also brought the recent cat scan and a previous mri from 95. that when i found out i had a brain tumor. i have been getting worse they are going to take it out in jan since the last mri they did on me showed it was growing so now i am wondering if the nurontin could have cause this tumor if anyone out there has had a tumor to come from taking nurontin i sure would like to know.

  also if you have the sensatation of things crawlings on you. i am for a law suit against the company because they were very misleading on pushing this as a cure all for everything now i have to have surgery to remove this tumor. that there was never an evidence of before. not only do i have to suffer through that i have to suffer through doses of methotirate which is a form of chemo because i have psoraias of the scalp and body that has to be cleared before surgery. i also suffer from short term memory lost as well. i am sorry this is so long but i just needed to get it off my chest because if it is provern that the nurontin cause my tumor then how many more people out there has been plaque with a tumor from takening this drug. i also have develope nuralgia of the face and my entire body burn and hurt severely from it. i will take part in a class action suit against them to thank for listen sincerely debra j mayo

  email address mayo2965@charter.net

• L.M. // Nov 22, 2003 at 4:56 am

  I just heard an advertisement on TV for anyone that had taken Neurontin and tried or had committed suicide, to call 1-800-XXXXXXX. I was shocked to hear this because I never put together the connection with this drug and my attempted suicide. I too was prescribed this drug back in 2001 for perphial neuropathy and had taken the medication for about two months and told the doctor I really did not want to take it because it made me so tired and I could not work. He told me I needed to take it and it would take awhile before it would start to work. In the meantime, I do have to first say that I had a very successful career and I am an extreme happy person and have a great family with grandchildren that I love more then life itself and had everything to live for. One day I noticed I was very depressed and could not figure out why. I woke up one morning and just decided I did not want to live anymore. I called off of work and told them I had the flu. I was on prozac and had been on that drug for about 5 years for compulsive behavior,i.e. eating a bag of cookies and not one, going out of town with a moment notice, just compulsive and the doctor said this drug might help me with not eating the way I do and would not harm me. So anyways, I would take one pill a day and it just came normal for me to continue to take this drug. So back to when I woke up that one morning back in Oct. 2001, I had a brand new perscription of prozac, 60 pills, and 22 Klonipin and 7 vicodin in my house. I took all these pills at once. I was just hoping to go too sleep and never wake up. I went too bed and could not fall asleep. I could not understand why this was when I could take one klonipin and sleep all night. I then looked in my cubboards for any liquor (which I really never drank) but sometimes people brought something over and I had a pint of whiskey in the cubboard and a 5th of strawberry daquir. I drank them both at one time. I then went to go lay back down and nothing would happen. I then got the sharpest knife I could find which was a butcher knife and cut both of my wrist. This all took place within two days. To make a long story short, a friend of mine found me and I was rushed to the hospital. I had to get stitches in my wrist and was hospitalized for over two weeks. I could not explain why I did what I did. The doctors said it was a miracle that I was alive because of all I did. I thank god too this day that I am alive and I never thought about the neurontin since I had quit taken that drug about a month before. Now that I heard that advertisement on TV I am really conern and wonder if this was the cause. If anyone has anymore information with this class action law suit please email me with your information. I am wondering why they are talking about people that have tried or committed suicide? I would of never thought this drug had anything too do with what I did too myself. I look forward hearing from you and thank ou in advance. L.M.

• L.M. // Nov 22, 2003 at 5:08 am

  This is L.M., I just thought about it and did not leave my email address so here it is if anyone wants to email me and let me know what they think of this medication and if they also had attempted suicide. Thank you, email me at lgrahek@yahoo.com

• Teri-Anne Jordan // Nov 23, 2003 at 6:46 am

  I accidentally found this page. I was surprised by the number of people who have been suffering from using this drug. I was prescribed neurontin in 2002 after my back surgery. It seemed to help the pain down my leg and the neuropathy in my foot; however, I noticed that my short-term memory was getting worse. I’m in my mid fifties, so I chalked it up to my age. Then I began having noises in my right ear–like crickets or ticking, along with a pulsing “beep-beep” sound like a UPS truck backing up. In addition, the hearing in my right ear is muffled. I’ve been checked by several doctors, and none of them can find the cause of the problem. I’m now wondering if it’s the neurontin? Is anyone else having any hearing problems?

• Lori // Nov 24, 2003 at 5:57 am

  I also attempted suicide after one 600 mg dose. I was baker acted for 4 days, and I am mad as he## at my doctor for prescribing it to me. He gave it to me for chronic pain in my back. If anyone has the 800 number please email it to me, as I haven’t seen the commercial.

  After having the dose adjusted I am still on it, although the only thing it has affected is my sleep, not my pain. I think I need to get off of it, after hearing that it is not approved for use in chronic pain patients. Someone please let me know the phone # so I can get on the bandwagon. Oh, and I live in Gainesville Fl., home of the doctor at the Univ. of Florida who made all the money lecturing about this stuff. Wonder if my doctor heard him speak? I bet he did. Thanks.

  Lori

• Andrew // Nov 25, 2003 at 3:11 am

  Lori -

  The phone number is 800 ####### they send you a questionairre to help determine if you have a case

• Karen Platt // Nov 28, 2003 at 5:51 pm

  5 days after starting neurontin and when I got to only 500 mgs- I had a suicidal/homicidal episode and got rushed to the hospital- immediatley after stopping neurontin I was fine again. This drug should be taken off the market.

• j.p. // Nov 30, 2003 at 4:51 pm

  give this web site to your atnys. have them read some of what has been said here

• CG // Dec 2, 2003 at 4:39 pm

  I was put on neurontin for a psedo brain tumor about two years ago. Everything has been going wrong with my body everysince. Has anyone had any problems with tooth decaying and excessive weight gain. I often fall into a deep depression for 2-3 days at a time. I have had thoughts of suicide but never took any actions towards it.

• Laurie // Dec 3, 2003 at 10:13 pm

  Will someone please email me the 1-800 number? Every single number here has been xxxx out? I am not going to post all my problems since being on neurontin since everything you all wright pretty much sums up my life. Thanks for the help with the number.

• Debbie // Dec 7, 2003 at 5:27 am

  I would really like to know who in california is handling this class action suit. I was put on this by my pain manager and so was all the other patients that seen same pain manager. I took it for aprox 2 yrs and went off and was recently put back on it for nerve damage, my memory is bad, I felt very depressed and felt like id be better off not here in this life, I did quit taking it and felt like myself again however i still have memory loss, also numbness through out my upper limbs, Im not one to ever think of being better off out of this life, Im still raising 4 children and they keep me very head strong at that time, when I was told about this neurontin contraversy it really hit home, now I know why I felt like I did and I thought it was just a fluke thing. Now I have put it all together by speaking to my cousin who told me about the NEWS channel and this is the first I have read on this awful drug. I would really appreciate a law firm # sent to my email addy please. I can’t believe all these people here and what they have to say this is terrible and something needs to be done about it. Good Luck to everyone thanks for your insights DEB

• Jennifer // Dec 7, 2003 at 1:10 pm

  My father was prescribed Neurontin for his arthritis last year. He was taking 200 mg. 3x a day. His moods changed and he became very depressed. After reading these comments I now understand why dad was even having memory loss. We could not figure out what was really going on with him, he even went to counseling to see what was wrong. On June 6, 2003 my father committed suicide. Last week a friend had seen a commercial on tv about Neurontin and how people were trying to commit suicide or had. I cannot believe that because of this drug I no longer have my best friend (my dad) here with me to enjoy watching his 4 yr. old grandson and my 3 yr. old niece grow up. He was only 57 yrs. old he had a lot of living to do yet, but because a company thinks about money and not about the life it will hurt I no longer have my dad. They probably get to enjoy the holidays with their loved one’s, but I only get to go to the cemetary if I want to spend it with my dad. I am outraged at the fact this company decided to be so deceiving about this drug that so many lives have been hurt. It’s not only the person who is taking the pill but the family members and friends of those special people who are hurt by this company. I do not want to see anyone hurt like my sister and I have these last 6 months. The last words that I have from my dad are on paper because he took his life and left us a note. No money could ever measure up to what we have lost, it will not bring him back, but I do not want to see another person suffer like we have. Something has to be done so they do not get away with this, and that they take the pill off of the market. To many lives have already been hurt, how many more will be before something is done. My thoughts and prayers are with all of you. Let us stand together so that they don’t hurt anyone else. If anyone has any information they can give me, I would truely appreciate it. I am gonna do whatever I can to make sure no one else suffers like I have.

• j.p. // Dec 8, 2003 at 1:20 am

  I hope you all know that this is a dead end e-mail sight. the only one monitering this is us. We may feel better talking about what we think,feel and have been through. But the buck stops here. After all I’ve been through I am not to sure if this is not a Parke Davis Physer web site to keep us from going to someone else. They are truley evel people with hundreds of millions at thier disposal don’t trust them or anyone. I was told that I was correct,in that neurontin in new cinical trials, facial pain was a side effect the pharmisist with parke davis pyser was not around the next time i called, nor will she ever be I’m sure she was let go.

• Stan (fake name due to millitary status) // Dec 8, 2003 at 2:42 pm

  I have been takn neurontin for the past 5 days. In the past two days I have had violent mood swings. I man at a 7-11 asked me for some money to help him out. I usually do. This time I chucked him against the wall and said some profane things that I wont repeat. Im usually a nice guy. Two years ago about when I got to my current duty station. I was in a small car accident. Few months later started getting severe headaches. I been on fiorcet, that stopped working while I was in Iraq so they sent me home since then the only thing that has helped has been hydrocodone and oxycodone. Even with them if I dont catch the pain early enough I end up in the ER. The docs say I have a pinched nerve in my neck and on in my jaw area by the head. My neurologist is a high ranking officer and its a lil hard to argue when you dont out rank somebody. If someone is prior service or anybody has any thoughs at all please email. Cuz Im more scared now then dif times when i was In Iraq.

• michele // Dec 9, 2003 at 7:45 pm

  Hello”

  I am horrified by all that i have read tonight. I only accidently heard the commercial on tv yesterday and have been trying to get information all day. When I asked the dr’s office about this i got no answer I also asked the pharmist and he could not tell me anything. I am a mother of four who is blind and lives a very good life in spite of being blind. I have been on 3200 mg of this med for almost 18 months. I went on it for pain in my left shoulder. I also have had places on body that hurt when they were touched and the dr thold me that i had some kind of nueralgic disorder. The med helped for a while and all was good. As i said i am blind but have never been depressed about that– I live a very good life–I have wonderful kids and good people in my life. For the past few months I have been experiencing bad mood swings, depression and pain in the bottom of my feet– this is bad because i like to walk alot. I have asked the dr on several occassion if the med was making me nervous and upset but he said that the med should do just the opposite. I seem to be taking alot more of this med then most of the people whose letters i have read. Anybody who can send me teh name and address of the lawyers and can give me information about other side affects, I ma really scared. HELP– send me any e mails anybody can.

• joe m. // Dec 10, 2003 at 12:23 pm

  I had extream headaches in 2000, it got so bad i was on about evry pain med avalible. Eventually i treid to commit suicide it didn’t work thank god but when i was in the hostpital i was prescribed neurontin 1800 mg a day and was told if headaches continue to go to 2400mg. Welll about a week or so after that i was having facial ticks and hearing what seamed to be homicidal voices and severe mood swings also felt like i had to hurt people i was getting into fights and confrintations for any reason. not sure what other side affects there are but now it is all making sence! if anyone knows a 1800number i can call i would appreciate it very much thanks. jm @ mills507@bellsouth.net

• Joyce manning // Dec 13, 2003 at 6:40 pm

  My dad was on neurotin for years ,he allwas talked about suicide. And on nov.10,2003 he shot my sister 4 times . could this have been the pill? she wated on him hand and foot ,we took turns driving 500 miles to care for him it just so happened it was her turn , or I would be in her place. could someone please help. her children have a lawsuit against our Estate , I want to know what went wrong, there is a lot of cover up in chatt. ten. please help . the money is not important to me .she was my best friend I miss her so .oh yes he died on Easter Sun . 2003 He told me on his dieing bed he did not do it HELP joymead51@yahoo.com

• Diane Henderson Gregory // Jan 2, 2004 at 1:06 pm

  Could you please send me information about the nuerontin lawsuite, so I can also place a lawsuite against the company, because Iv’e been taking the medicatin called neurontin for chronic pain,and I too wanted to commit suicide.

• Annie // Jan 9, 2004 at 2:42 pm

  I have been taking Neurontin since 1997. It was originally prescribed for me for a nerve injury. However, I find it helpful as a sleep aid and as a calming agent. It does not cause me to be depressed, however, my cognitive abilities have declined severely during this period. First it was short-term memory, then ability to write, followed by inability to concentrate. I did not realize until now that the Neurontin is almost 100% responsible for the cognitive losses. I am extremely fearful these impairments are permanent. Also, I do not know how long I have to stay off this drug before my intellectual abilities will stabilize. Has anyone had any experience with return of cognitive functioning after quitting Neurontin?

• Annie // Jan 9, 2004 at 2:45 pm

  As a follow-up to my previous message, anyone should feel free to contact me directly (akrinsky@socal.rr.com) regarding Neurontin and cognitive functioning. We all need to do some research here. It appears this is a dangerous medication.

• Wendy Bird // Jan 9, 2004 at 5:35 pm

  Annie, It has been almost two years since I took neurontin. For the first few months I could barely talk, couldn’t walk without staggering, and couldn’t hold a thought in my head. After eight months of very hard work I have relearnt alot of things and have developed compensority stragities to work around the things I cannot do. Since then there has been little/no improvement in my cognitive abilities. The specialist I have seen believe it (neurontin) has damaged the Central Auditory Processing part of my brain (likely permenantly). I have been tested annually with little change.

  Intensive work with a speech therapist has helped with fluency, and we are now working on trying to read simple sentences aloud, numbers, and simple memory tasks. Memory loss, both short term and interferance memory, speech problems (stuttering and dsythria), mixing up words, sounds, ect. when speaking and writing, oral reading. Inability to concentrate, especially in noisy or demanding situations, and even soome days trying to do simple things like following a recipie are impossible. Some days it is all I can do to look after myself. These are just a few specific areas of my life that have been affected.If you want to talk more specifically contact me at birdjw@nb.sympatico.ca, I understand how you feel. Soryy this is mixed up I hope it makes sense to you.

• Brenda // Jan 15, 2004 at 12:16 am

  I just wanted to let you know that I was taking Neurontin with pain meds. I keep telling my Dr that I was having sever headaches and he said nothing. I would call the office and ask them to note in my records about the headaches I don’t know if they did. When I went to the Dr for my check up and get my pain meds the nurse would always ask me my pain level from 0 being the least pain and 10 being the worst pain. Even after taking pain meds for my pain before my visit I was still in the 7 to 8 and 9 of pain level. I know it was from the nerve med I was taking. I quite taking it because I couldn’t take the pain any more. I didn’t tell the Dr about stopping the meds because I was moving to a new state and would be seeing a new pain doctor. They new that the Neurontin was the reason for my headaches when I told them I wasn’t taking the med for the nerve anymore they stated it would cause headaches but they didn’t say anything else it would cause. But they did give me a new nerve med to take and I’m not taking it either. I will not be a giney pig I will only take pain meds that I know people have been taking for over 20 years and they are fine today. I have Arachnoiditis and I know I will never be the same but I do know I will take an active role in my pain management of what I will take and what I won’t take. If you don’t know what arachnoiditis is it is the harding of the nerves in the spinal cord. This is due to test done on the spine and special xrays,nerve blocks and epidurals for even blocking the pain of birthing babys. Any way if you want to talk just email me and I can even call you. If we don’t stand up for our rights and get the government to help then we might as well crawl in a whole. Someone has to listen. The governor will hear what is going on with the people but only if we talk and comumicate with as many people as we can. The internet has so much information on any thing you need to know about this growing problem. Please lets help each other and ourselves before it is to little to late. Brenda Kapa 1/15/04

• Anne // Jan 18, 2004 at 10:55 am

  Just found this site via search engine. Tried to look up info on Neurontin and Topomax. I’m on both for Arachnoiditis of lower spine. I also have Fibromyalgia and Sleep Apnea, so I’ve been attributing my memory loss and depression to that, HOWEVER, in light of all these letters, I want more info on these meds and this lawsuit. Can someone fill me in? Is there a phone number to call regarding the lawsuit? Thanks for any info any of you send.

• Heather // Jan 28, 2004 at 3:48 pm

  I Have been taking nuerontin for 6 months for severe anxiety. I had tried all types of antianxiety and antidepressants yet had severe side effects from them so my doctor started me on nuerontin which helped me finally get some sleep at nightand did decrease the anxiety in the day abit. Oh and I tried all kinds of sleepers too and they caused me to have incresed anxiety with their hangover effect. Anyway, a month or so after starting the neurontin I started having short term memory loss. My Dr. said it was due to the anxiety so she increased it which didn’t seem to help and then I was getting very sad and tearful at times and she said it was from the anxiety and all the stress in my life. So I excepted that and 2 wks ago I went back to see her and told her that I was still having alot of memory problems and that my dreams were running into my wake state. I couldn’t figure out if it really happened or was it a dream? So she increased it again saying it was anxiety. A couple of days after the increase my depression got worse started thinking about suicide and was very anxious. When i called her she said uh oh decrease the medication. I have always been an anxious person but have never been depressed or suicidal!! I then looked up info on nuerontin and found this and can’t believe what I am reading. I looked it up 6 months ago but didn’t see anything like this. Could someone please tell me where I can get more updated info on this and has anyone got their short term memory back after stopping this. I am so afraid that this will cause permanent damage. HELP!!!!!!! Heather

• heather // Jan 28, 2004 at 4:00 pm

  I thought my E-mail would show but it didn’t so I will try again. shawnhunter@nethere.com thanks Heather

• Barbara LaPointe // Feb 6, 2004 at 10:20 am

  My brother was prescribed Neurontin in 1996 for epilepsy. At the time it wasn’t quite FDA approved. My brother was subject to violent mood swings. One mood swing in which he and I got into a fight and my head was slammed into an entertainment center. This lawsuit that is going on, is that soley for the “off market” prescriptions or is it for anyone that has been subject to any side effects of Neurontin including those who were prescribed it for an anti-seizure drug? Can someone please e-mail me and let me know. Thanks!

• MIMI j. // Feb 16, 2004 at 10:48 am

  My son has been on nurontin 200mg for a month now. Until reading with web page I couldn’t understand the change in him.Some depression etc. I thought just staying home all the time is hard enough thus causing his symptoms but the meds must surely multiply the symptoms. I’ll keep posted.

• Marie Brown // Feb 17, 2004 at 9:25 am

  A friend of mine showed me this post. My mom was on Neurontin for who knows how long, at least a year i would say. She had MS (multiple schlerosis) and was had tried many different medications for pain and sleeping problems. Nothing worked according to her and I’m not 100% sure why she was even taking the the Neurontin. This i need to look into. Recently in a conversation she had told me that she saw a study that Neurontin was causing people to commit suicide. I instantly wanted her to stop taking the drug. She had dropped the subject and said she couldn’t stop taking it. I insisted she at least see her doctor, but she had become very difficult over the past couple of years. Just a few days ago, i recieved a call alerting me that she had actually done it and killed herself. Before this drug, she would have down periods but nothing so severe. If this drug was even remotely responsible for her death, i would like to know.

  I’m even thinking about calling a lawyer. Who knows how many people this could have effected. I can’t believe that if it’s even been documented once or twice they would still be giving this med to patients. And especially if there was some type of payout to doctors to give it out un-needed. I don’t know, this all just happened, so i’m still pretty emotional still. But now would be the best time to find out and do something instead of waiting til later. Any info would help…thanks

• Michael Sr. // Feb 19, 2004 at 9:21 am

  It’s funny..looking for the same “poor” souls that had to suffer through what I did with Neurontin & I also see Oxycontin…Lortabs on the same site together. I was prescribed both, for pain in the back from multiple car accidents. I actually had the auduacty to refuse one of them as I told the Dr. I didn’t want 2 Rx’s for pain….Lortabs (oxycontin) and the other Neurontin (I didn’t have epilepsy) They then told me the Neurontin is not for epilepsy (the FDA approved indication) it’s for pain. I told them about the Lortabs…they said…”O.K. smart ass…we’ll d/c BOTH!!! “Enjoy the pain you WILL me in.” I din’t…I was!!! Nuff-said there!!!

• Timothy S. Ireland // Feb 22, 2004 at 10:35 am

  I’ve been in the same boat as everyone on this site. I was uterly horrified as I read all the different emails. I was put on 2700mg Neurontin, 2mg Klonopin, and 600mg Darvocet daily for Fibromyligia, Brachial Plexopathy and Neuropathy Chest Pain. Shortly after starting all these meds, I started hallucinating and hearing things and was told it was just a panic attack and my Neurontin was increased from 300mg to 2700mg and Klonopin from 1mg to 2mg daily with Darvocet 300mg to 400mg daily. Shortly afterward I noticed that I was severely depressed and didn’t care about no one and would get angry for no reason at all. I was always agitated and eventually started stabbing and cutting my arms. I went to my doctors and was told that I was just having a reaction to the Klonopin and they took me off and added 2mg of Xanax. After being on this combination, I then started to self mutilate myself again and eventually reached a point in my life that I tried to commit suicide by cutting my wrist and taking 13 Darvocet on February 15, 2004, but I then realized I didn’t want to die and had my wife take me to the hospital. I spent 5 days in the hospital and was then court ordered to involutary stay in a mental hospital for 45 days. I told everyone that it was the medications that I was on that made me do this. They said that there was no way that any medications would cause me to self mutilate myself and try to commit suicide and called me a lyer in court and the judge just court order an additional 45 day involuntary stay. I tried to tell everyone that since I’ve been taken off of all my medications for these past 6 days that I had my mind back and I’m no longer a threat to my self and that my pyschiatrist Dr. Downes told me I had a severe reaction to my meds and he ordered all my meds stopped. He then released me from the mental hospital February 20, 2004. I have been having extreme severe migraines that I just puke my brains out so far. I’m praying that I won’t have any seizures but I do a severe tremors now. I nearly lost my life and my wonderful family whom means everything to me. I go to my doctors for help for my diseases and all they do is nearly kill me. They should be held accountable for all of this. Everyone on this site are in my prayers and my sincere condolense for your lost loved ones due to this horrendous medication Neurontin. We all need to get together and fight for are rights and put a stop to this drug company continual maketing a drug that is killing people. My email is tquestor@sbcglobal.net please email me if any further information is available. I have already filed with this class action lawsuit.

• donna packard // Feb 23, 2004 at 8:02 pm

  i’v been takeing neurontin for 6 year’s and i’v taken a ride for my life . my memory is shot . i was working as a sale’s manager with my husband, now I can’t even manage my life. someone has got too help us people do somthing about this so-called medicen…………D.Packard.

• Jackie B. // Mar 2, 2004 at 2:51 pm

  I have been have my mother read most of the discussion to me, i have been living in my basement for almost 3 years now and i don’nt have any more friends and i did’nt evern want to be around my own family. I have pretty much of every thing that has been discussed about. I lost my job because of this drug i can’nt work-out I can’nt walk very well and it just goes on and on In the mornings when i wake up i just some time that i just would never wake! But i have 2 childen and a husband that neen me and i need them, but thay don’t understand what is wrong with me,i used to be always happy,outgoing,and I and i’m a artist, i havent been intrested in any thing now.I’m on depression med’s and still in so must pain. Please help ( i don’nt want to die!!!!)

• Belinda // Mar 8, 2004 at 12:03 pm

  My new Dr. just put me on Neurontin. 2 weeks ago, to be exact. I am feeling miserable today and decided to look up this medication online…MY GOD I had no idea what this drug has done and can do. Do I stop taking it now? Am I suppossed to trust my dr. now? I am afraid I will continue to feel this bad. I’d rather be extremely moody than to feel this way. Any advice?

• Lois Rizzardi // Mar 8, 2004 at 5:27 pm

  My son Michael was diagnosed as manic depressive/bi-polar. He was prescribed Neurontin in early 2002, he committed suicide April 10th, 2002. All I can say is be very careful about this drug, I believe it killed my son. If you want the number of one of the law offices that is handling a class-action suit against Parke-Davis/Pfizer, the name and number is, Finkelstein & Partners, 800-634-1212. God Bless you all.

• Rob // Mar 10, 2004 at 10:01 am

  Well i dont know where to start i been on 800Mg of Neurontin for about 5 yrs for panic Disorder and dont see where it help at all i loss # of jobs just cant get going in the morning i am so tired i am on5MgXANIX ANSD .5Mg. Kloipine and 15 Mg REMORON i just feel as thougt i am on to much meds and i always told im not but i dont feel any better ifthere anyone out there that whould like to talk email me aand im contacted the lawer and the said that you had to try and kill youself befor there anything they can do what i joke so your sorpose to try to kill yourself and get it noted and then there help these Dr. need to get on the ball and find a better drug from these that we can send a damn rocket to mars but cant find any help for thing here on earth i guss all the people getting rich off this drug just dont care so i hope there happy knowing there a drug out there doing this to people and can live happyly wile we all suffer i guss i said anof take care and contact me on any new news

• Mike V. // Mar 11, 2004 at 9:43 pm

  Please, I am not a good researcher on the internet and just happened to stumble across this. I take neurontin @ 1800mg a day for periphial neurapathy in my lower legs and feet due to aggressive chemotherapy since 2000. I still have the neurapathy and my doctors must think I am crazy when I tell them that I am no better than I was when I started. My memory has gone south, balance is a joke and trying to function everyday is almost out of the question. I believe that I may be suffering from ill side effects. Can any one PLEASE share some of the side effects that they may of had? Thank you so much!!!