48 responses so far ↓

• Nancy DeBoard // Jan 29, 2004 at 12:19 pm

  My doctor just prescribed Neurontin for back and leg pain. My son told me he heard on tv that it can cause cancer, is this true? I take 300mg 3 times a day.

• Vicki Condon // Mar 11, 2004 at 3:26 pm

  I started taking neurotin a few years back.I started to take it for neck pain and burning in the back of my neck.Ever since I started taking it ,it worked pretty good,but then I put on lots of weight and headaches ,hives and severe depression.My husband and I where building a new home and I could not understand why I was so depressed and no energy .I did not think I would be here on earth long enough to live there and I AM 52YRS. old.I SHOULD OF FELT EXCITMENT,HAPPINESS AND A FEELING OF A NEW LIFE,but I felt like I would not be here alot ,I was so depressed,and very,very LOW energy stopped commuticating with friends that I HAVE HAD SINCE HIGH SCHOOL,CLOSE FRIENDS THEY DIDNT UNDERSTAND AND NOR DID I????Then the hives kept coming back and the unexplained pain, the depression got real bad.I had to stop the neurotin and it had to be right away the hives were bad and the other symtons were too.It was the hardest thing I have ever done in my life,it was horrible to many things happened during this time period of getting off the drug or [poison].THAT IS HOW I FEEL NOW. My life is changing little by little but I know I will make it NOW. I have been married for 33 yrs.and very happy till I started this poison[neurotin],now it is getting better and we are happy again,no more crying allday for no reason,the after effects are getting a little better and I am happier now ,but how long will my body pay for what I have done to it,by taking the neurotin?Will I ever be like I WAS BEFORE TAKING IT? It is really hard !!!!!I am glad for stopping it when I did.I may of not been here now to enjoy my husband and my kids and grandkids and my new home. I HOPE THE COMPANY OF THIS DRUG PAYS DEARLY OR LET THEM TAKE IT[NEUROTIN] FOR AWHILE AND SEE AND FEEL THE EFFECTS OF WHAT THEY HAVE DONE, TO SO MANY OF US OUT THERE. GOD BLESS ALL OF U THAT ARE IN THE SAME BOAT, my thoughts and prayers ARE WITH U ALL, a survivor Vicki C.

• GEORGE CHRISTMAN // Mar 21, 2004 at 1:27 pm

  i took Neurontin for diabetic neuropathy. It did not seem to do any good for me. i wonder if i should join a class action suit against Pfizer on this?

• Marilyn Whitlow // Mar 24, 2004 at 7:19 am

  i was on neurontin for 3 years, 700 mg 3 times a day for bi polar disorder. at first all it did was make me sick but i was 15 and i figured “hey, if i feel like crap it must be working” i was tired all the time, while i was on it i took 25 of them in attempts to kill myself after a fight with my mother about her taking my cigarrettes. i was messed up before i started taking neurontin but it wasn’t till after i started it that i tried to take my life, but i’m sure that’s only a coincidence…right? it seems that the neurontin only made a bad thing worse. after i saw a report on the news about the misuse of neutontin i started taking trileptol and a week later i stopped having to take three neps a day, it was a miracle.

• Anna Price // Apr 2, 2004 at 11:19 am

  What are the other side effects of Neurontin besides depression?

• susan sheldon // Apr 30, 2004 at 5:24 pm

  my son age 17 was diagnosed bipolar 2 years ago. the dr put him on neurontin and this suicidal teen who was cutting his arms with blades, doing every drug you could imagine and flunking out of school did a total turn around. he stopped the drugs, did every extra thing he could then was up for validectorian this year.

  in jan he was feeling so good he stopped the neurontin totatlly and all

  at once. He rode a manic wave for about a month, then started doing bad in school. all of a sudden seizures started

  once a week, totally knocking him into unconciouness for 2-3 hours. 4 seizures a week apart in march, and 17 in the month of april. we did MRI, 2 EEGs and 4 CAT scans and they all came out normal. they now say the seizures are NOT seizures but nonepeleptic episodes and they have him back on the nuerontin. He did wonderful on the drug.. but did it cause all these other things? and now he is in trouble with the law and was doing drugs again. I liked the success that nuerontin did… but i am worried if putting him back on will make him worse! help! email me if you have any answers!

• cherryl skillett // May 2, 2004 at 11:09 am

  they are giving to my husband to help with pain so i looked it up but still don’t know much about it. He is getting off oxcotin and is having a hard time with that so I do not want him to face another addiction on top of the one he has. thank uou cherryl

• Rachael Vaughan // May 17, 2004 at 10:43 am

  I was taking neurontin since Dec 04 when my doctor prescribed it. I was having migranes and neck pain and was at my wits end. I had an MRI which showed narrowing of my spinal cord which was causing the migranes. I diligently took my pills and headed off to physical therapy. After 10 visits to therapy my neck pain was 10 times worse and the migranes indescribable. My doc increased the neurontin but nothing was getting better. I was feeling worse and worse and what once was a very active mommy, wife, friend and worker, I became tired all the time, unmotivated and distant to everyone. I thought it was just a lack of good sleep-maybe the muscal relaxer or the neurontin, my body just needed time to adjust-it would pass. I would wake up in the morning, click on the news and have to just listen to it because the whole room was wobbling. After 20min of lying there trying to focus, closing my eyes concentrating, opening them again the earthquake of my vision would pass and I could stumble out of bed to get my kids off to school. I had enough, and quit taking everything except for pain medication when that got too much to handle. My problem now is I am so dissy every time I turn my head, adjust my position or anything that all I do is make it about 20 feet before I have to sit and catch my breath and wait for things to stop spinning. The pain meds are unnecessary because I have been immobilized. As I sit here my eyes flutter, my hands shake and I bite back tears of fear that I will never be the same fun loving person I once was. What is to become of us?

• Sefedin Spahillari // May 24, 2004 at 9:16 pm

  Last year on April,my wife Mirela,complained for back pain.We went to hospital ER,many times but nothing came.She did cat scans,MIR,x-rays etc.She was a happy person before.She was happy because we reunited again after two years away,she found a job at MEEI ,but the situation become worse since she started taking different drugs ,especially when she started taking neurontin.Her personality changed,she started to talk about graves and funerals,she was angry’wanted to stay lonely and in darkness,and tried manny times to kill herself,to drown in the river or to jump under the big truck on the street.This suidical behavior freaked me out.I didn’t know what to do,so i left my job(she left her job too),because I was afraid to leave her alone,especially because she and my son Semi ,they had only a couple of months in US.Sometimes the dose of neurontin she used to take was killing;three tablets of 300 mg three times a day,altogether 2700mg.She was out of her mind and her life became a hell.By the end of August,5 months after beeing day and nights at different hospitals and privat psychoiatrists,she got diagnosed with leukemia.This was the end for us.Our life turned upside down.I,a very healthy person,for the first time found out i have high blood pressure (this because I started heavig severe headache on the back of my head)and deep depression.But here we are not talking about me and my son,who is not the same anymore,we are talking about my wife.After a great job in MASS GENERAL Ellisson 14,Bigelow 12, she had a great improvement about leukemia(people working in these pavions are the braveist we have ever seen and they have all our love)but talking about my wife,she is still living her nightmare in deep depression caused from all those painkillers and it’s not a coincidence,all this story started when she started taking NEURONTIN.

• Cara Giles // Jun 5, 2004 at 6:59 am

  I was first treated for BP disorder in 1991 with Depakote, but after about 6 months was switched to Neurontin. I was on it for years. It was a constant struggle to keep my head above water. I was constantly thinking of ways to kill myself, constantly in a state of tears and the pdoc’s only solution was to increase the Neurontin - trying to improve my depression. The physician’s only know what they’ve read, studied, and been advised. I want SOMEONE to tell me how this shit keeps happening. Who in the hell is in charge of monitoring these big companies like Pfizer, because if it were you or me, we would have been fired, hung and shot at sunrise a long time ago. To make them pay, what comes out to be a small amount of money to them, is NOTHING. It is not a punishment. What about the victims…and who is going to PROMISE us that this will not happen AGAIN? I INSIST on a reply, not a monetary stipend, or a form letter stamped with some BS signature.

• Grace Grainger // Jun 7, 2004 at 5:26 pm

  My doctor prescribed Neurontin for the terrible burning in my legs. He said that they were finding it helped people with fibromyalgia and I should try it. I have only been able to take 900mg. a day - otherwise I am so dizzy and clumsy. The burning in the legs was better for several months but now, after several years, it is continuing getting worse. Any one else have this problem?

• Rebecca Lemmert // Jun 17, 2004 at 10:34 am

  I was perscribed Neurontin for bipolar disorder, and because of the side effects of the drug I almost comitted suicide. I am seeking civil restitution.

• Dwayne E. Love // Jun 28, 2004 at 12:27 pm

  At the age of 24 I suffered a Stroke and eventually I began to have seizures and was put on neurontin to combat the seizure. After a few years of taken the medicine my wife and family began to notice that I was not responding sometimes when people were speaking to me and my speech patterns was noticable decreasing with slurring in my speech. We spoke with my neurologist about my hearing. I was tested and a very noticeable decline was present. He recommended that I had to go to a hearing specialist and get tested. I was tested and fitted for aids. Along with the hearing loss came titinus. I have been off the neurotin for a couple of years. I will probable (according to the hearing specialist)have to wear aids for the rest of my life to combat the sometimes deafening titinus and decline in hearing. My doctor did not know if the neurontin(at that time)was causing my depression or was it due to having a stroke at such an early age.

• marion e tyler // Jun 28, 2004 at 8:27 pm

  i was prescribed neurontin due to extremly bad back pain instead of a narcotic pain killer i took several hunderd of neurontin to give it a chance to work i was told by my doctor that this medication was working on nerve endings and it would help it didnt

  also have had many side effects to nurmerous to mention thouhgt i would die or kill myself from side effects now taking oxcotin with great results as far as back pain but still upset about neurontin will never take again

  would like feed back from doctors lawyers thank you god bless you all

  marion e tyler jr.

• James Buchanan // Jul 13, 2004 at 10:58 am

  I have been taking neurontin for almost 3 yrs. I am having some serious depression. I was put on for my back pain and nerve pain in my leg. It really didn’t work so well,after several trips to the doctor i was on over 2000 mg. a day mostly at night. I am having serious depression and mood swings. I am now bed ridden on count of my back. So the med. didn’t help with my depression. So i have been having thoughts of death and went as far as looking for urns. Then started scanning songs to be played at my on funeral. I am now on effoxer xr and wellbutrin. I am taking 375mg. of effoxer the max you can go. My life is hell now. The drug Neurontin has just made things worst. I would like to know some lawyers that would be able to come to my house and an update on the case. Thank you for reading and listening to my life.

• sandra // Jul 26, 2004 at 9:49 am

  my daughter was put on neurotin and took it for about 4 or 5 years , my daughter was always a happy go lucky girl and full of energy she had seizures and thats why she was put on it and it was terrible i told her dr that the med neurotin wasnt working that it was going against her and he more or less said that it was in her head that she was depressed and i said u dont know my daughter like i do she has always been happy now she was happy one min and ready to tear things up she was so mad and eventually she started taking headaches and she also was very tired she always fell asleep in class so she didnt finish school and she would stay in fights and she never did none of this till she started the neurotin i went thru pure hell with my daughter on neurotin and she even took 27 tylenols within 15 min for a headache and she knew better but she said she couldnt think and she had to be hospitalized and go the antidote of the tylenol i hope someone can get something done and not only that the dr should listen when we tell them how we know that person and try something different

• Peter C // Aug 3, 2004 at 7:29 am

  I started taking Nuerontin for chronic Back pain, about a month ago. For the past 2 weeks I have been very suicidal. To The point of not beening able to work Because I would Cry 12-14 hours a day. Now I am in trouble with my job, I am still depressed as all hell, But Finding this site has given me a possible cause for my distorted behavior. I may not be crazy after all.

  These have been some of the worst weeks of my life. I am very upset. Where do I go to sue ?

  Thank you everone who has shared their story.

  Good luck all

• Peter C // Aug 3, 2004 at 7:29 am

  I started taking Nuerontin for chronic Back pain, about a month ago. For the past 2 weeks I have been very suicidal. To The point of not beening able to work Because I would Cry 12-14 hours a day. Now I am in trouble with my job, I am still depressed as all hell, But Finding this site has given me a possible cause for my distorted behavior. I may not be crazy after all.

  These have been some of the worst weeks of my life. I am very upset. Where do I go to sue ?

  Thank you everone who has shared their story.

  Good luck all

• Michael Schmidt // Aug 15, 2004 at 3:05 pm

  Hello,

  Your help will be highly appreciated with this URGENT matter.

  Some three years ago while I was on Neurontin and following a bone marrow biopsy I was diagnosed with

  Chronic Lymphacitic Leukemia (CLL) Question; Are there any studies and or claims of a possible link taking Neurontin and CLL.

  Thank you.

  PLS reply ; msch267412@aol.com

  Michael Schmidt

• Patricia Reynon // Aug 23, 2004 at 1:55 am

  Four years ago I was presribed nuerontin for bipolar disorder.Since then, my health has greatly deteriorated.Two and a half years ago, I had my gall bladder removed, although there were no stones found on the ultrasound.When the Dr. got in to my abdomen, he found adhesions that had grown from my liver to my diaphram, which explained the extreme pain I was in.Now, two and a half years later, I am having the same, but worse symptons as I had before.Now the ultasound shows an enlarged liver.It literally sticks out my side,showing a large lump in my side near the ribs.I now need to have a liver biopsy and all the adhesions removed again, more surgery.I also have been diagnosed with chronic fatigue and fibromyalgia.I do not belive I have either of these.I believe the neurontin has caused me to have a sick liver and some kidney problems.I will know more after my biopsy.Four years of my life have been taken away, and for what?I am now on SSI and have no life.The only time I feel good is when I am manic.Neurontin was never approved by the FDA for bipolar.Infact, the studies that were done showed that placebos worked just as well if not BETTER than neurontin.This was an artical that USA today brought out.How do I get legal advise?Whom sould I contact first?

• Tores m. Baker // Aug 24, 2004 at 7:05 pm

  April 1997 my Doctor put me on Rezulin for my type2 diabetes Iwas working 12 hour shift. Had not miss one day for 8 years.June 16,1998 I had one or three heart actact.I now have enlarge heart with congestive heartfailure.I taken Rezulin from April 1997 to March 23,2000.I went from $30,000 to SSI.

• Trudy Stewart // Sep 4, 2004 at 3:10 pm

  I was put on Neurontin in January of 2004 for neuropathy in my feet, legs, hands, arms, they say is from my Diabetes, event though it began before I was diagnosed with it. The Neurontin has helped about 20% maybe with the pain but I began to cry a lot and become mentally confused. About a month ago I had a “zone out” in the parking lot of the grocery store I go to. I lost about 10 minutes of time but one of the workers collecting shopping carts said I was seemingly awake and sitting up. I had evidently sensed I was in trouble and had dumped my purse out on the seat to try to get to my cell phone. My doctor had an EEG done but this came out normal. I am extremely fatigued,have crying spells for the first time in my life and am “in a fog” a lot now. While it is supposed to take years for any kidney damage from diabetes, I have begun to show signs of this happening and feel it must be the Neurontin that has caused these sudden unexplained symptoms and signs of kidney damage. I saw an ad on TV for Neurontin claims and called these attorneys but they only take cases where seizures are involved. My doctor insists I keep taking it as so far it is the only thing that has helped my pain.

• Terry Evans // Sep 23, 2004 at 9:04 am

  I have been on neurontin for about three years now for burning leg pain. since I have become depressed have had blurred vision and severe headaches. I have also attempted suicide. I feel that these fraudulat drugg pusher should be held accoutable for the problems that we all have suffered at the hands of these drug pusher of Neurontin. I fee; that we are intitled to monetary damages for the undue stress and pain that they have put us through!!

• Jane Christie // Sep 29, 2004 at 3:54 am

  I have taken the drug Neurontin for yrs. on or about 1993, & gradually quit taking it on my own,& my Dr.told me @the time it was for Seizures& I thought then why am i gonna take it? But I was having Severe Leg pain & Athritus( left Leg)I took it for years. But during the time I was taking it, I was having, Severe depression & Chronic Fatigue, Bad headaches, & even to the point of suicidal thoughts.I was taking 200mg. 3times a day. & since then I have had a total Knee replacement, Herniated Disk Surgery, & Still have Severe pain in Leg & neck pain. I have not felt good since i started on the drug, & still have depression.

• carla ann webb // Oct 3, 2004 at 8:45 am

  ive been taking nuerontin for about 5 years for nuropthy in my legs. i have blackouts where i dont know who people are or where i am or dont reconize normal things or surroundings. how do i become part of this lawsuit?

• amanda payne // Oct 3, 2004 at 9:19 am

  i am currently taking wellbutrin. more info please

• Regina Bright // Oct 11, 2004 at 9:10 am

  Has anyone had pupil dialation in one eye only as a result of taking neurontin? Also I am having a decline in vision in the same eye that is dialating. My doc says my optic nerve looks like a person who has glaucoma, but I don’t have glaucoma? any comments?

• KELLY GREEN // Nov 3, 2004 at 11:28 pm

  I have been on neurontin since 2999 anywhere from 1200mg a day up to 4800mg a day. Right now I am having trouble with abnormal eye dialation and alot of double vision. Could this I mean the excessive dose of neurontin have cause my double vison and just again eye dialation at the wrong time (509)633-1922 Kelly

• Dennis Grubaugh // Nov 22, 2004 at 10:40 am

  I have been taking Neurontin now for 26 plus months. All I do is keep getting worse. I am on it for neuropathies in my whole body, plus they have me on bextra, actigall for my PBC of the liver. I been seen by Drs. in MN and OH for the combination of things that I have going on. they telling me that there isnt any thing that will cure me of everything. I have all the systoms of the Neruontin stuff. I would think that our doctors would call us or something on the matter. Has anyone went to a Attoney yet and if so what did he or she tell you? Please email if anyone has answers or commits to give. Thank you-DG

• Robert Rosso // Dec 3, 2004 at 7:18 pm

  Robert is my son. He is in federal prison. couple mts ago he was told he had bladder cancer he is 35yrs old= he had been on neurontin for several years for back pain. He would like someone that is having or had same problems to please write him=Robert J.Rosso 00546-010 usp Lewisburg P.O.BOX 1000 Lewisburg,Pa. 17837 Thank you, Mrs Rosso

• Kevin Boehm // Dec 15, 2004 at 12:26 pm

  I was diagnosed with chronic lower intestinal pain and was referred to a pain clinic. at that time they prescribed neurontin. Since then i have experienced extreme fatigue, depression and suicidal tendencies, mood swings and severe headaches and short term memory loss (will repeat myself in conversations). I rarely leave the house due to anxiety and fear. I sleep 12 to 14 hours a day.I have lost my job and quality of life and don’t know if i will ever get it back. I am currently weaning off neurontin with my doctors assistance. I have never experienced these feelings before taking this medication.

• sue smith // Jan 30, 2005 at 10:16 am

  dear people can u help

  i was on neurontin for like 1 1/2 years

  for scaitic nerve pain never had seizure in my life, i became where i had such lost of memory, that i couldnt remember anything, and left pan on stove and burnt down my house,

  lost my pets, i also ran thru a glass door,on entertainment system, couldnt rememeber opening door, doctor finally told him something wrong cant remember checked me and fianlly did eeg and mri

  the mri came out ok, but the eeg didnt

  showed now i am having partial seizures. what ever this means.

  thinks its the cause of lost of memeory

  isnt there any attorneys or help for us out there. do they just handle sucide. if i was in house asleep wouldnt been here today to tellthis story. lost 3 dogs, in this and my life.almost. all belongings was this pill really worth it. i have had fusion on ss1 45ssl joints up so didnt help there. now on keppra and has same back falls of neurontin alittle scared here

  any one know much about his one. tired all the time and anger not getting better either.

  help any advise.

• sue smith // Jan 30, 2005 at 10:16 am

  dear people can u help

  i was on neurontin for like 1 1/2 years

  for scaitic nerve pain never had seizure in my life, i became where i had such lost of memory, that i couldnt remember anything, and left pan on stove and burnt down my house,

  lost my pets, i also ran thru a glass door,on entertainment system, couldnt rememeber opening door, doctor finally told him something wrong cant remember checked me and fianlly did eeg and mri

  the mri came out ok, but the eeg didnt

  showed now i am having partial seizures. what ever this means.

  thinks its the cause of lost of memeory

  isnt there any attorneys or help for us out there. do they just handle sucide. if i was in house asleep wouldnt been here today to tellthis story. lost 3 dogs, in this and my life.almost. all belongings was this pill really worth it. i have had fusion on ss1 45ssl joints up so didnt help there. now on keppra and has same back falls of neurontin alittle scared here

  any one know much about his one. tired all the time and anger not getting better either.

  help any advise.

• sue smith // Jan 30, 2005 at 10:28 am

  dear people can u help

  i was on neurontin for like 1 1/2 years

  for scaitic nerve pain never had seizure in my life, i became where i had such lost of memory, that i couldnt remember anything, and left pan on stove and burnt down my house,

  lost my pets, i also ran thru a glass door,on entertainment system, couldnt rememeber opening door, doctor finally told him something wrong cant remember checked me and fianlly did eeg and mri

  the mri came out ok, but the eeg didnt

  showed now i am having partial seizures. what ever this means.

  thinks its the cause of lost of memeory

  isnt there any attorneys or help for us out there. do they just handle sucide. if i was in house asleep wouldnt been here today to tellthis story. lost 3 dogs, in this and my life.almost. all belongings was this pill really worth it. i have had fusion on ss1 45ssl joints up so didnt help there. now on keppra and has same back falls of neurontin alittle scared here

  any one know much about his one. tired all the time and anger not getting better either.

  help any advise.also had hair loss and other systoms from this, numbness in arms and pain in chest and after 3 months on it had to be put on blood pressure medication. all the attorneys tell me not enough information and not handle this case. what are they wanting sucides, which is major here. still like to know about some civil rights to us and the harm it done to us. doctors just told me go home and get well for 4 months in aug. this was what was told to me by dr. well i told him after 3 hr delay thanks for nothing. what wrong know with doctors.

  they dont want to know or find the cause of this. if it hadnt been for my regular doctor i would be death. at least he cared to tell me stop this pill. thanks to him. neuro didnt only put me on more?

• Deidre Rodriguez // Feb 26, 2005 at 12:50 am

  I insisted my father go to the doctor. His knee hurt from an old injury he got while serving in the Marines. The Dr. prescribed Neurontin. A few weeks into taking it he was having trouble walking and began using crutches. After about a month of crutches he became unable to walk at all. Everyday I saw the pain and confusion in his eyes as his pride was taken away. I noticed he had been sleeping alot more than usual but he was’nt one to talk about things that were bothering him. At about 1:00am on October 14, 2004 I heard a gunshot. I went downstairs to see, and could’nt find my dad. I looked around the house and finally found him outside in the cold in his new wheelchair. He used that wheelchair one time. To roll himself outside and shoot himself in the head. When I got to him the blood was still pouring out and hitting the ground. a sound that I will never get out of my head. The sun in my familys universe was gone. Since then I have had to hospitalize my 13 year old daughter 2 times for “cutting”. My 14 year old straight “A” happy girl, is a lost, angry, failing mess! Our lives have been destroyed! Those pompous, corporate @$#&*@@ at Pfizer are nothing but murderers! Would somebody please tell me how in hell Neurontin is still on the market?????!!!!

• linda bowers // Mar 11, 2005 at 6:51 pm

  I and my son have taken nerotin. I took it for dieabetic neropthay, as well as I was on Rezulin I am wondering what the long term effects of these meds are. I have problem with balance, leg weekness as well as confusion. I understand this could be related to my sugar, but feel most of these systems started after I was on the medication. My son took it for seizure disorder. He was on it for several years, he was around 3 years old and he complianed of sudden onset headaches and blurred vision, when I questioned his DR’s about this they all stated once his medication leveled off he would be fine. I found him to become very confused, he would just sit in front of the refigerator and cry for a drink eventhought he knew how to get one.( I could not figure out why)I had his hearing tested nothing wrong. He was so mean at times he bit the child next door to the bone. He complained about pain when walking and weakness in his legs . He complained about shoulder pain. (No medical resons could be found.) After several year the seizures became worse he would have tremmor on a daily basics. FINALLY his DR took him off the med and put him on zerton ( not sure of spelling) he did not do well on that either so put him on depakote he had more negtive reaction to this med. The last medication he was put on was tegrol which seem to be working for him. My question is what is the long term effective of this medication on young children all the statement I have read deal with adults. My son still complain of leg pain and weakness and no one seem to know why. PS the blurred vision, shoulder pain, mean and confused behaviors subsided shortly after the dicontiuation of nerotin, however his leg still seem to be a problem as is mine. This bring the question of long term effects.

  PS: they recalled resulin however my drug store still gave it to me for six months after that and my insurance paid for it HOW DOES THAT HAPPEN?

• Donna Martin // Mar 31, 2005 at 10:39 am

  I am a 51-year-old woman who has been on Neuontin since 12/04 for neuropathic pain due to Reflex Sympathetic Dystrophy and Fybromyalgia. These diagnoses are tenuous at best. I hve since experienced dizziness, increased shortness of breath at times ( I have asthma predating the onset of RSD), constipation, memory loss, speech disfluency, and numbness in my hands which maybe due either to the Neurontin or to the RSD. I had no idea when I was put on this Rx that there was any controversy about it. I currently take 1300 mgs./day, plus Ultram and Amytriptiline (sp?) for the RSD/Fibro symptoms, on top of meds for GERD. I am currently not having the horrible nerve pain while on these meds, and am sleeping thru the night for the first time in years, but after seeing the other blogs here I am wondering at what cost?

• sue smith // Apr 6, 2005 at 7:26 am

  Hey everyone hope things going better in the world of neurotin. My case was stated earlier. I have recently been put on Keppra now which has allt he side effects of neurontin but seems to be helping not as bad memory loss as with neurontin. But have still some loss, chest pains, liver,kidney problems, still not sure about when i talked to doc said put me on it for pain management . But told me had partial seizures now but not concerned. Any one know Keppra Much long term side effects yet . Very new BUt interesting enough Pfizer came out with it was it to cover up for Neurontins mistake? ANY know. To make up for there Losses on the drug Neurontin

  But overcoming depression, from losses, been difficult, and family still strugglling with a person they dont understand at times or what going through, fatigueness, tireness, write and let me know any one hearing about anything on cases being TAKEN ON YET OR STILL SUCUIDE ONES ONLY. STILL RECOOPING AS U ALL ARE. WISH THEY GET THIS MEDICINE FIGURED OUT SEEMS LIKE EVERY TIME I GO THEY TRYING TO PUT ME ON ONE ON THE HOT LIST NOW CRESTOR, AND BEEN ON CELEBREX, NEURONTIN, MAYBE WORRIED ABOUT IT TO MUCH CRESTOR HELPING BUT AT WHAT EXPENSE. WOW WHERE WE GO FROM HERE

  SUE SMITH SSMITH511@HOTMAIL.COM

• sue smith // Apr 6, 2005 at 7:34 am

  Or forget also doctor wants me to check out ritulin not sure spelling something for fatigue to give me more energy? thought this is for ADHD or soemthing What is this one. BOy they got me so confused/sue smith Isnt Ritulin under a Hot SPot also for side effects.ANy advice sue smith

• George L // Apr 6, 2005 at 12:43 pm

  May be helpful, from another post:

  I have indeed found a lawyer, but he only handles cases that involve suicidal deaths from the medications or suicide attempts. He is in NJ and has over 200 clients, half of which are families of dead loved ones.

  You can reach them this way.

  Harris L. Pogust

  email: hpogust@sskrplaw.com

  Cuneo, Pogust & Mason

  200 Barr Harbor Drive

  Suite 400

  West Conshohocken, PA 19428

  (610)941-2938

  Your best bet is to call this phone number and talk to Mr. Pogust’s paralegal, Ellen Reardon or email her at ereardon@sskrplaw.com

• kenneth brennan // May 3, 2005 at 10:32 pm

  i was placed on neurontin about three years ago by a doctor i was referred to because she was an expert in straightening out patients who were on numerous medicines that were conflicting and causing adverse reactions. after about three months on neurontin one night i leeped out of bed and ran across the room in my sleep and inpalled myself on a coat tree with 9″ hooks on it.the hook tore my left cheekbone before it entered into my left eye. at this point i woke up with the hook inbedded deep in my eye and stuck there. after yelling for my wife iwas able to yank the coat tree from my eye but as i pulled it out i tore up the whole left side of my nose. being 0n coumadin i was bleeding profusely from my left cheek,nose and eye. when i ran to the bathroom to check out the damage i couldn’t see my eye in the mirror so i told my wife to try and find my eye on the floor. unable to find my eye she drove me to the hospital. after emergency surgery i was told my eye was still in my socket but that i seriously damaged it by deflatting the globe. i also damaged my sinuses by the hook entering through the eye ball all the way into my sinuses. i had to be treated by a plastic surgeon for my cheek and badly damaged nose. i have under gone six eye surgeries but unfortunetly i can’t see anything out of my left eye. who do i blame for this accident? WAS IT AN ACCIDENT? DID THE DOCTOR THAT PUT ME ON NEURONTIN KNOW THE TRUTH ABOUT THE DRUG OR WAS SHE SOLD BILL OF GOODS ON NEURONTIN? DID SHE GET EXTRA MONEY FROM THE DRUG CO. TO PUSH NEURONTIN? ALL I KNOW IS I’M THE INJURED PERSON. WHO DO I GO TO TO GET MY SIGHT BACK? WHO HAS TO PUT 14 DROPS IN MY EYE EVERY DAY SO AS TO MINIMIZE THE PAIN AND ALLOW ME TO NOT HAVE MY EYE SURGICALLY REMOVED? BEFORE I TOOK NEURONTIN I HAD SIGHT IN MY LEFT EYE, MY FACE WAS NOT SCARRED AND PEOPLE DID NOT STARE AT MY GROSSLY DISCOLORED LEFT EYE.BEFORE I TOOK NEURONTIN I DID NOT WALK IN MY SLEEP AND CERTAINLY DID NOT RUN IN MY SLEEP.SINCE I IMMEDIATELY STOPPED NEURONTIN AFTER MY ACCIDENT I HAVE NOT WALKED IN MY SLEEP NOR HAVE I RAN IN MY SLEEP. WHO CAN HELP ME GET TO THE RIGHT ATTORNEY? WHO KNOWS OF ANYBODY WITH THE SAME TYPE OF ACCIDENT WHILE ON NEURONTIN.? E-MAIL ME. THANK YOU

• Jason Conley // May 23, 2005 at 12:55 pm

  I have been on this damn stuff since Oct. of 2000. My doctor put me on it to help with my diabetic neuropathy and my health has done nothing but go down hill since then. I’m a police officer and it has really affected my job performance. I’m tired all the time, I have horrible memory loss, In Jan of 03 I had to have almost all of my teeth removed because they were just breaking off and I’ve never had teeth problems. I have gastric freeze which only allows me to eat one meal a day. (not good for a diabetic) I can only sleep about 5 hours a day and I’m back up again… Suicide thoughts every once in a while that just come out of nowhere. The list goes on and on….but the worse part of it all is that I’m only 31 years old!!!! I feel like I’m about 70 (no offense to any older people whom might read this) My best friend is a lawyer and she is going to handle my case. Screw that class action stuff, I’m going after them om my own!!! And good luck the everyone out there.

• Susan // Jun 10, 2005 at 4:09 pm

  I have been told I have Fibromyalgia. recently I changed Noroligist and the new one said she thinks it could be something else. Test show my one eye is not dialiating properly, The puple gets bigger when you shine light in it. I was on Neurotin for about 2 years. I have the leg burning and thrashing at night. I have the arm, neck, hand leg, feet pain. My vision keeps getting worse, I have graves. I have had the very bad go the the EM headaches. I have had a MRA, MRI, catscan, I am due to have A MRV. I have had EGG. Nothing to be found. Alot of my pain is weather realated. My neck and Jaw always hurts. I am 39 years old and trying to be a mom of 2 little boys. This is very hard on my marriage. I am lucky to have a good one. Could this of been the drug?

• brenda Lovering // Jun 15, 2005 at 8:07 pm

  I recently been diagnos of recurrent of breast cancer-stage 4. My first occurance was l5years ago-had double masectomy and chemo therapy. due to the very aggressive chemo and radtion I develope severe neurophy in my hand,feet,and legs. It is very painful and progressively gets worse thru the end of day. I am very concern with all the medications that have prescribe due to extreme swelling of hands and feet to the point I am unable to wear most of my shoes.please help explain the side effects that nurantin possible has

• staci // Jul 26, 2005 at 11:48 pm

  my stepdad has went damn near crazy from this medication (neurontin)he has attempted suicide and has even made me have to call the law in fear he was going to kill my mother due to his dillusional thinking she was having an affair with his friend.as i started learning over everyone else’s stories i started to realize how serious his problem was and how 27,000 people have actually killed themselves from this crap. his side effects were so bad he was seeing and hearing things that werent there he couldn’t even remember where he would be going just walking thru the house. he had terrifying outbursts of anger fits of rage and feeling of such low self worth he didn’t wanna live anymore he suffered terrible backpain severe headaches shaking of his hands confusion 80% of the time he was not my stepdad but became a ticking timebomb waiting to explode every nite i wondered if my mom was gonna make it thru the night not only was she on the way to a nervous breakdown but she as well feared for her safety, waking up to having him cutting of locks of her hair or the scissors to her neck. ( their bedroom had become an auxilary of weapons (swords and guns) about 60 in all )after i relized my stepdad was suffering severly and his side effects were driving him insane i rushed all these papers of everyone else’s stories over to my mom’s and began to go over them with her she was so happy to relize my stepdad wasn’t crazy and if was taken off this crap she would have that sweet man she married back we began to explain to him all this pain he was having (he was almost crippled) he walked like he was 80 all due to neurontin and that he wasn’t losing his mind but just dealing with side effects due to the fact he was taking it for neuropathy and it was never even approved for it .that’s what i want to know how can they legally prescribe it to people? they were using my stepdad and many others as a guinea pig and the people i care most about almost had to die! i am so angry how do we find a lawyer in florida .?the good news is my stepdad took hiself off hiself two days ago i am worried now how his outcome will be even though i seen him as “almost hiself” today i am very proud of him and i pray for all the families suffering i want justice i just need a little support and suggestions thank you for listening please email me with any help i think the main thing is to go to whoever is suffering from this and reassure them of their sanity and help them by other stories that deep down inside they are still themselves and how hopeful their future will be and help them get off it however they can .it is working for us so far it made me so happy to say look at all these other people’s stories your not going insane (they really feel they are)your gonna be ok

• phyllis cook // Jul 28, 2005 at 7:45 pm

  Please be aware of all side effects after taking Neurontin. My 80 yr. father had taken neurontin for over two yr’s when he committed suicide on 4/18/2003. He took his service revolver and shot thru his head. He had deep depression, severe mood swings, would fall all over the house when on this medication. He had to have his kidney removed for cancer on 5/09/ 2002. I fully believe it was due to the neurontin also. It’s a horrible drug and I wish the makers of it had to go to the funeral of the families and see the hurt they have caused. No amount of money can bring back my best friend, and my wonderful father.

• gerrie austin // Aug 6, 2005 at 11:28 am

  i was on Neurontin since the 2002. I had a stroke and one of the drugs to help me with the pain was supposedly Neurontin. I noticed my hair was falling out, so much so you’d think I was on radiation. It really started to fall out in late 2003. I had my primary and my rehab doctor both tell me is was something like stress or Iron. I took some Iron supplements for 6 months. It didn’t do anything at all. My hair was still falling out. One by one I got rid of all the drugs that were in my system that I felt were not doing anything to me. That left me with the Neurontin. Through my own initiave I looked into the Neurontin side affects. There it was all along. I also noticed I had other side affects I felt were the result of the stroke like the feeling of off-balanced, light headedness, dizziness and anger.

  But it turns out this was all because of the Neurontin I was taking. I have since taken myself off of it

• ray // Oct 4, 2005 at 6:42 pm

  i was on neurotin a few years i took 7 one night was always depressed and didnt know why i started leaning towards alcihol i cant seem to remember any thing now from takeing that stuff also my liver started bothering me and i was tripping over my floor when i would take it i had foot serjury and my dr put me back on it again. my liver was being imflamed he said stop takeing it…. ever sence i started takeing it back in2000 ive had lots of problems copeing with things and i was hurting really bad in my side at my rib cage on the right.i had test done it said i had a fatty imflamed liver . so i stopped takeing the meds and im still hurting.

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