Comments on: Pfizer Settles Neurontin Off-Label Marketing Lawsuit for $427M

By: William Hawthorne

William Hawthorne — Fri, 18 Nov 2005 02:50:44 +0000

From reading most of the previous comments I can’t help wonder if only those with poor experiences post on this site (with one exception).

My experiences were good. My diagnosis is a wastebasket: “unspecified encephalopathy,” another way of saying, “We don’t know what the heck it is.” My problems are too numerous to list here, but I have severe reactions to anything that affects the central nervous system – except Lamictal. Neurontin helps me a lot, and Lamictal removes the Neurontin side-effects

Without the two meds my problems are so severe that I feel painful squeezing sensations and hear roaring sounds. My blood pressure shoots up from 120/80 to 190/135 every day late in the day. I lose balance, can’t sleep.

Thanks to Neurontin, I’m able to work for a living. Other side-effects include weight-gain (maybe I’m just looking to offset the blame) and sluggishness. The side effects are the price I have to pay to be able to function. Neurontin saved my life.

By: Mory

Mory — Wed, 26 Oct 2005 04:44:00 +0000

I take Gabapenton for severe depression. Gabapenton has saved my life. I’m so grateful to the Dr. who invented this miracle medication. I’ve been taking this medication for the past six months with absolutly no side effects. I feel great and hope you all feel better.

By: KAYE STULTS

KAYE STULTS — Thu, 20 Oct 2005 14:53:23 +0000

I started taking neurontin in 2004 for peripheral neuropathy. At first it seemed to help but then my pain started to increase so the doctor increased my med. from 900 mg a day to 1800 mg . Now my pain has intenesified. My feet feel like I am walking on fire, my knees hurt so bad I don’t know if the will hold me up, the joints in my fingers hurt I can hardly close them, the numbiness in all my joints is extreme, my neck and elbows hurt all the time and my vision has gone hayware. Now my doc. wants to increase my meds, but after reading all this I think it best I get off them completly. Yes I have had sudicial thoughts, nightmares, forgetfullness, and tremors. I am going to talk with my pharmitist about this drug because he knows alot more about it than the doctors.By the way, I have no health insurance and I am paying for my neurontin on a weekly basis($60.00). HOW CAN A HUMAN BEING BE SO GREEDY AS TO JEOPERIDISE ANOTHER HUMAN BEING SIMPLY FOR FIANANICAL GROWTH. I HOPE THEY GET WHAT THEY DESERVE. I INTEND TO LET YOU KNOW HOW I AM DOING AFTER I STOP TALKING NEURONTIN. SINCERLY KAYE

By: frank leone

frank leone — Fri, 30 Sep 2005 02:19:43 +0000

I have just been on neurontin for about 2-3 weeks. I have been experiencing nightmares/dreams of death dying and etc. Anyone elso?

By: Melanie Gibson

Melanie Gibson — Thu, 01 Sep 2005 02:38:39 +0000

I’m bipolar, and Neurontin has changed my life for the better–much better. It disturbs me when people blame the drug, when it’s obvious by these posts that their doses are far too high. It’s the dosage, not the drug, causing the problems. I get good results and I only take 1100 mg per day in total–thus I get the benefits without the side effects. I mean, if any patient is dumb enough to take more than 7000 mg of ANYTHING a day, they deserve what they get. Take that much aspirin in a day, and you’ll be in ER before bedtime!

When are people going to realize, the medicine that harms one person will help another, and vice-versa? If it doesn’t work for you, DON’T TAKE IT, it’s that simple. Stop depriving those of us who need it of a drug that has given us a second chance at life!

By: Adrian

Adrian — Mon, 22 Aug 2005 23:21:31 +0000

I have been reading some of the other comments to see if anyone was having the same problems that I have. I was shot in the back 14months ago which left me paralized waist down and praying everyday to get back up on my feet to walk again. My injury level is L2 complete and i’m on gabapintin. I take 3 300mg 4x’s daily for the pain in my legs and lower back. A couple months ago I started having pains on my right side on my stomach just above hip and reading some of the other comments I’m thinking of just taking myself off this med because for me to have this pain this long,I might as well stop taking it because it’s not working. I don’t know any of yall, but yall are in my prayers to get well again and I hope i’m in yours for them same.

A,from phila.pa

By: linda shellenberger

linda shellenberger — Wed, 17 Aug 2005 18:35:38 +0000

im linda and i do take this same medicine ifeel tire all the time, futigue, chronic fitugue, and filiamogia, and i stay sick all the time and all i want to do is rest all day long myself, if you have some ideal you can e-mail me ok bye for now

By: Sheridan Peterson

Sheridan Peterson — Thu, 07 Jul 2005 05:29:38 +0000

I have been taking Gabapintin for four years for restless leg syndrome and a ruptured disc.I switched to Pramipexole the other day. The neurologist at the VA hospital was rushed and didn’t tell me how to make the switch. Realizing the the change might be dangerous I phoned her but she had no time to speak with me. Final an intern gave me rather sketchy and most inaccurate instructions. The consequences were startling.I thought I had pneumonia – I coughed up thick solid congestion.Had very high fever followed by chills, sore throat, bloody nose, sore eyes, extreme fatigue, dizziness, drowiness, dry mouth and throat, excessive perspiration, wobbliness, loss of appetite.My condition has eased somewhat, however this morning I awoke with a palpitating heart and chest pain. I don’t know how much of this was due to Galapentin or to Pramipexole. I am also dubious about Pramipexole.

By: Georgia Waterbury

Georgia Waterbury — Sat, 04 Jun 2005 05:44:23 +0000

I started taking Neurontin for mood stabilization and it worked well for several years. I am also someone who suffers from severe migraines and chronic pain. My general practitioner finally sent me to a pain clinic where my neurontin was increased from 3600mg a day to 4800mg a day. I was also put into a stress reducing clinic. I have found that there has been a reduction in migraines and that the cronic pain has been more manageable. It was difficult to convince my regular doctor to raise the dose so high. When she agreed, I looked on line to see if there were any side effects I should be wary of, and the most frightening thing I found was that I should keep track of the creatinine level in my blood. I am not concerned too much with what I have read because I have experienced a lot of side effects over the years with many drugs. If I have a question about something I am taking, I research it and make someone listen or I find out the safest way to discontinue taking the suspected drug. I educate myself before going into the doctor’s office. I suggest you do the same. The information is out there if you look hard enough. If you don’t feel your doctor is looking out for you, look out for yourself.

By: Bitsy

Bitsy — Wed, 27 Apr 2005 17:18:23 +0000

Please don’t take my Neurontin away. It has been a lifesaver for me. I have temporal lobe epilepsy (partial complex seizures) and was taking Tegretol for years with bad side effects. Talk about nightmares – take Tegretol. Neurontin keeps the mood swings level. I don’t have the nightmares, dry mouth, constant hunger and sleepiness like I did with Tegretol. I love Neurontin. My behavior has improved greatly. For once, I don’t dread having to take a maintenance medicine. I agree it is overpriced but don’t the companies do that on all drugs. I will argue fiercely if anyone tries to take Neurontin off the market. I need it and I deserve to be able to use something that works for me.