112 responses so far ↓

• Caroline Petroski // Jul 15, 2003 at 8:24 am

  As a patient, I’d like to join a class-action suit against Parke-Davis/Warner-Lambert Co. for off-label uses of Nuerontin. I live in PA, but know others across the country, who also were given nuerontin for off-label uses to no avail. Anyone know where I can join such a suit, or anyone want to represent consumers for such a suit? (No “legal plan” scams or “spend money for possible help” scams need contact me.)

• Brenda Annichiarico // Jul 19, 2003 at 9:54 am

  i am looking for the ENTIRE DATELINE ARTICLE ABOUT THE WOMAN WHO TOOK NEURONTIN AND HAD TERRIBLE PRLOBLEMS WITH IT…It was the July 11-12th Dateline edition….

  I cannot seem to find it on your website.

  Brenda Annichiarico (former Neurontin patient)

• B Brown (current user) // Jul 28, 2003 at 8:22 pm

  The story that Brenda was looking for is on the web at : http://www.msnbc.com/news/937302.asp

• Karen Tonkin // Sep 19, 2003 at 7:17 pm

  I was wrongly convicted and sentenced to Hard Labor for Life. Having spent several months on remand I was trialled by the then GMO & later Chief, Dr Douglas Wilson (deceased: with respect)on various and different medications in the search for a control and or cure for the diagnosis of Epilepsy. Many of the medicines made me violently ill and some induced seizures. Dr Douglas Wilson perservered and finally discovered a ‘combination drug’ comprised of Zarontin, Prominal & Valium. Whilst this may appear to be a rather old remedy as some doctors have stated in attempts to trial more innovative designer drugs on me, I can only say one thing- the combination worked! During two decades of imprisonment I was constantly threatened over the years, with “If you don’t take your medication you will NEVER BE RELEASED! You will NEVER GET OUT!” “The Pollies want to KNOW that if they release you you will take your medication!” One Psychiatrist threatened me and abused my wellbeing to the point of bringing about the process of my actual dying in relation to the administration of drugs. Many years later- and having been on parole for a further twelve years during which time I have completed a University Degree with a Double Major and am currently furthering Tertiary studies, I have have had an ongoing battle with GP’s who have either refused to prescribe the medication I have needed or who have attempted to change medication in order that they trial newer formulations as opposed to securing my well-being. Earlier this year after more than a decade of fighting to get basic medication, I found that one followed by two lots of medication were not available. Most people of course would simply lay down and die. I called PFIZER Australia only to find that, Zarontin was no longer available in Australia ‘Because we donot have anyone to MAKE it!’ Shortly after this revelation I was to find that Prominal was taken off the market. I was unable to take one drug with out the other because of the interactive success of the combinatorial nature of the anti-convulsant. I contacted a solicitor, doctors and Pharmacist the latter of whom dealt equitably in attempts to rectify the apparent problem. PFIZER however, evades responsibility for the overnight deterioration of my health that has undermined the very quality of my life. That I allegedly committed a crime as a result of not taking such medication (although this is not true) and that the Queensland Criminal Justice saw fit, all be it wrongly, to use medical treatment in a court of law to convict me followed by endless threats based on medication, only to find that I am forced through no action of my own, to NOT TAKE the required medication as a result of PFIZER AUSTRALIA’S unsound ETHICS and MAL-PRACTICE, is a further grave injustice to me that trespasses HUMAN RIGHTS.

  I can be contacted by email ayanadasi@hotmail.com

  Or in writing:

  Karen Tonkin

  PO Box 9138

  Slade Point

  Mackay Qld 4740

  Supporting Criminal and Social Justice & Opposing the Violation of Human Rights and Well-Being.

  Cheeers

  KAREN

• vada morton // Oct 6, 2003 at 7:20 pm

  I saw a notice on channel 26 chicago channel and did not get the full story abour neurontin.

  a doc prescribed this med because I have muscle cramps mostly in my legs

  and maybe damaged nerves. Of course there has not been a definite diagnosis. I read the insert, looked it up on internet. I did not understand why give me precription for epilepsy. I did not have the prescription filled because my instinct guided me not to.

  I would like to know what is with this drug? I research every thing that concerns me.

• RONALD MILLER // Oct 7, 2003 at 5:32 am

  My Doctor prescribed this on two ocasions. How can I join this lawsuit.

• Janet Tillandre // Oct 8, 2003 at 12:12 pm

  I am presently on Nuerontin and am experiancing a suicidal feelings and have been so down.

• john ramsey for shelia ramsey // Oct 13, 2003 at 10:00 am

  I was put no neurontin about 5 years ago I have been in and out of the hospital so many times I’ve been on life support 4 times and doctor’s can not find out why. I really need to tell you my story.Im taking 800mg 5 times a day.I need help. please reply to my story.

  THANK YOU

• Kimberly Gifford // Oct 13, 2003 at 10:40 am

  I was prescibed nuerontin 900mg doses for bi-polar disorder, which by the way I do not have. I was in and out of the psyc ward the entire time, feeling extremely agitated. I also heard about the class action on television but did not get the whole story if anyone has information please contact me. Thank you

• SISSY // Oct 22, 2003 at 7:16 am

  im totaly in the dark here!its 10/22/03 and im just finding out all the info on neurotin.ive been taking it for 2 1/2 years now 2400mg daily.it has changed my life completly.i have severe short term memory and i cant function without it,ive never had sucide thoughts but have had some depression.i dont understand what the term “off-label” means can you please explain to me what is going on?im very concerned about these side affects.i live in a very small community and my doctor proably doesnt even know about the drug and the effects.i also would like to talk to some other long term user’s about their lives while taking this drug.please respond asap im very anxious to here from someone about this matter.feel free to email me at any time.sissy from,virginia.thanks

• LaDonna Miller // Oct 22, 2003 at 3:22 pm

  I have been on neurontin for only 1 year now. Prescribed to help with neuralgia pain and tremors, as some of my symptoms of fibromyalgia. In just this years time, I have gone from 200 mgs-3 times a day, to 800 mgs-3 times a day. No help with the pain. It doesn’t come close to touching my pain! But my dosage just keeps going up every time I have an appointment with my neurologist. I can hardly motivate on this high dosage. But that is what he prescribes. No pain medication, because he doesn’t want me to get dependent on them!! Well, imagine that! Now I am stuck on the neurontin, which doesn’t help, and I just can’t quit taking it because of the danger of having seizures! YES. We need a suit against this product! And YES, I want to be a part of it!

  Thanks,

  LaDonna Miller

  1288 S. Hardin Rd.

  Harrod, OH 45850

• samsmom29 // Oct 29, 2003 at 6:53 pm

  I just found out that neurontin could causes suicide. Last week, my son attempted suicide by overdosing on his Neurontin, prescribed for migraines. Please help me find any information that could help us. Could it really be the Neurontin that made him suicidal? Please contact us soon.

• Mike Guyer // Nov 3, 2003 at 5:22 pm

  Writing on behalf of my 19 year old daughter who is in jail for assault and battery. While taking Neurontin for bi-polar, she became very aggressive and eventually found herself in trouble with the law…completely out of character with zero previous violent episodes until put on this med. Is there any info on neurontin and aggression?

• Jeanne // Nov 4, 2003 at 1:54 pm

  I have been taking Nuerontin for over a year for tarsal-tunnerl & carpal tunnel pain, dosing up to the 800 mg daily took several months and several hundreds of dollars. I was very optimistic that eventually, I would notice some benefit. During this time, I never reached the dose level did any good for my “problem”. The only benefit I recieved from the drug was a good nights sleep. Unfortunatley, I couldn’t shake the sleep off in the day. Finally I could take it no more, and simply ceased taking the drug. I suffered an agonizing 3 days of migrane headaches and the shakes. But now, I and my wallet, are feeling much better.

• Debra Parks // Nov 10, 2003 at 8:37 am

  I was prescribed NEURONTIN for “Anger Control” in January 2001….3,600mg per day.

  Now, three years into it my ENTIRE LIFE IS IN COMPLETE DISSARAY.

  I am PHYSICALLY ADDICTIED to NEURONTIN.

  I have IBS due to Neurontin

  I have a WELT TYPE RASH that appears spontaineously on different parts of my body due to Neurontin.

  My simple “Anger” turned into UNCONTROLLABLE ANGER, RAGE & HOSTILITY……….WITH NO REMORSE.

  My (new) Doctor had to put me on PERMANENT DISABILITY due to Neurontin.

  I have “weened” myself down to 800mg per day……….I wait until the “Witdrawal Symptoms” set in…….about 6-8 hours……..low and behold the “Withdrawal Symptoms” subside in 30 to 40 minutes.

  For me, there wasn’t a “high” or “feel good” with Neurontin, so I would often “forget” to take it……..UNTIL THE WITHDRAWAL SYMPTOMS would set in. This is when I KNEW that I was Physically Addicted to Neurontin.

  Each & every Doctor, Nurse & Healthcare Provider, dismissed my “complaints” and my “attributing” them to Neurontin………..until NOW.

  I was even FORCED by my new Doctor to take weekly “drug tests” for illegal “street drugs”………all of which were NEGATIVE.

  NOW, my Doctor BELIEVES ME……….AND so does the rest of the Psychiatric Community I belong to.

  NEURONTIN SUCKS……….IF PFIZER, thinks I will just “Go Away” they are WRONG………..I WILL DOG THEM ‘TILL THE DAY I DIE.

  They took my LIFE from me.

  I will NEVER be the “same”.

  I will FOREVER be an “Addict”.

  THOSE SCUM DRUG GIANTS.

• Debra Parks // Nov 10, 2003 at 8:49 am

  I have the MSNBC Dateline Transcripts. They are included in the “Paper” I have written.

  If you want a Copy please email me at mail4debbie@sbcglobal.net

• Debra Parks // Nov 10, 2003 at 9:01 am

  Your 19 year old daughter is INNOCENT.

  I know, because it happened to me.

  Neurontin CAUSES Uncontrollable ANGER, RAGE & HOSTILITY………ACCOMPANIED BY NO REMORSE.

  Although I was not “Arrested”, I did cause SERIOUS BODILY HARM to another human being.

  I am a 48 year old Mom, who has worked all her life.

  I am now on PERMANENT DISABILITY due to Neurontin.

  All “other” medications have been ruled out by my Doctor, BECAUSE I DON’T TAKE ANY.

  My Doctor was even “forced” to make me “Drug Test” for “Illegal Street Drugs”………..ALL NEGATIVE……..I DON’T USE STREET DRUGS, but I did “understand” her need for eliminating ALL OTHER POSSIBLE FACTORS.

  NEURONTIN HAS RUINED MY LIFE.

  I WILL FOREVER BE AN ADDICT.

  I WILL NEVER BE “THE SAME”.

  Please email me………I am “concerned” about your Daughter.

  My son is 24……..he too was placed on Neurontin……..but he is soooooo intelligent, that he “knew” something was WRONG………..he stopped taking Neurontin about 8 months ago………he is STILL feeling ill with the “side effects” of withdrawal.

  PFIZER………I’M COMING TO GET YOU.

• j radford // Nov 11, 2003 at 11:18 am

  I am currently taking 2000mgs. of neurontin daily.And like many others I have read about,I too have noticed these terrible side affects.Although like some,I wasn’t sure of the cause.I desperatley need some answers. Please contact me and give me more info. as well as someone I might contact. ASAP

• Rachel // Nov 13, 2003 at 1:54 pm

  I am currently taking 1200mg of neurontin a day for bipolardisorder. I was at one time up to 3200mg a day, until i was hospitalized for a psychotic episode when i ran out of medication and started to withdrawl, in which my boyfriend had to call the police and I tried to grab an officers gun in order to get them to kill me so i didn’t have to do it myself, upon arrival at the ER the dr’s refused to administer the dose of neurontin i was on stating it was just too high… I am now suffering from blinding headaches, muscle and joint pain, blurry vision, severe depression, and I also have seizures which i have never had prior to the withdrawls. I have lost my 2 children, my husband, my job of 5 years, and i feel my health and sanity.. yet I can’tstop taking the drug because I fear hte withdrawl once again.. By the way pfizer pays for my neurontin as part as a “medication assistance program” through my mental health center. Basically I have been used as a guinea pig in a medicine trial. None of this added up until now. please someone e-mail me with an attorney or firm handling this case.

  Zaraglittergirl@sbcglobal.net

• Dhana Belding // Nov 14, 2003 at 8:24 am

  I had been on Nuerontin for a period of 3 years. I recently stopped taking it but still hav ad man y problems. In that period of time I have had multiple violent and uncontrollable rages. I attempted and succeeded to harm myself by beating walls and objects. I was in two physical altercations that took many people to control me. I became emotionally and intellectually unstable. I was removed from a career advancement course because of instability, emotional outburst, anger and finally a blackout to where I couldn’t rememeber where I was and didn’t show for school. I have since had two to three more blackouts. I am unable to remember simple things or read and comprehend instructions I have short term memory problem and I have begun to stutter. I have been hospitalized for anxiety attacks and now have to go to psychiatric care. I have lost my marriage because of the anger and outbursts and now have a very short temper and prone to voilent outbreaks. My children have become afraid that I may snap. Now my military career is in jeapordy as I may lose my rank from the problem I had in school. The prescription was given for pain mgmt. I now find myself cursing and screaming, I throw things and have destroyed many doors an walls and broken many objects. I cannot cncentrate and find my mind drifting and my thoughts turn to dying. I have been afraid to tellan yone about teh suicidal tendencies because I am military and may lose my career. Can you imagine giving me a loaded weapon on a range. I have another friend who is in teh same situation and is now being medically boarded and losing hi career. I am not being offered any compensation because no one believed there was any problem. I may lose 17 years because of actions I have done while on this medications. Anyone who has a legitimate referral to assist me in finding reprsentation please contact me ASAP. Time for em is running out.

• Elizabeth J. Howard // Nov 14, 2003 at 9:34 am

  I was put on Neurontin (300mg 3x a day) for the past 6 mos. I was on it for Migraine pain. I was healthy before, but since then I’ve had extreme feelings of suspicion, paranoia, low-self worth and even thoughts of suicide. I drove my partner crazy with accusation of infidelity and other extreme behavior. I went off Neurontin very recently and my emotional outbursts, feelings of anger and paranoia are gone. I am left with thoughts of how this drug could be put out on the market without any studies or side effects. My life is left in shambles with only myself to pick up the pieces. I will never rest until the makers of this drug pay and pay dearly for the pain they have caused not only myself, but of my loved ones. I will see to it that a lawsuit will follow this posting of my comments.

• Dianna // Nov 18, 2003 at 7:57 am

  After reading these comments that are on here of the side affects and everything, it makes me realize what happened to my husband. He too was on Neurotin and he became abusive and psychotic. This explains why since he became someone else and not the man I met. He died 12-26-2000. Of an accidental drug overdose of Neurotin and left me with 3 children and alot of debt considering the man was only 35 at the time. I really loved him and will never love anyone else like that again. He loved his children who now are psychotic due to thier fathers death. I hope they do something about this for all the other wives and children and even husbands out there if anyone knows what I can do please e-mail me. diannagalligar@aol.com

• Dianna // Nov 18, 2003 at 7:57 am

  After reading these comments that are on here of the side affects and everything, it makes me realize what happened to my husband. He too was on Neurotin and he became abusive and psychotic. This explains why since he became someone else and not the man I met. He died 12-26-2000. Of an accidental drug overdose of Neurotin and left me with 3 children and alot of debt considering the man was only 35 at the time. I really loved him and will never love anyone else like that again. He loved his children who now are psychotic due to thier fathers death. I hope they do something about this for all the other wives and children and even husbands out there if anyone knows what I can do please e-mail me. diannagalligar@aol.com

• rose cirelli // Nov 21, 2003 at 9:56 pm

  i have taken neurontin for 18 months after stopping the medications i have developed sever headaches , memory loss, studdering , and blackouts this was never told to me that this could happen. i was given the drug to relieve pain fron a foot injury. i wish i knew then what i know now about this drug . there are times that im a raving lunatic yelling and screaming at my kids and then crying episodes wishing i was dead this is no way to live is there hope after neurontins

• Leza Ulrich // Nov 25, 2003 at 4:13 pm

  Like Caroline Petroski, I would like to join a class-action suit against Parke-Davis Warner-Lambert Co. for off-label uses of Neurontin. I live in Illinois. Does anyone know where I can join such a suit? No scams, please.

• Debra Parks // Nov 27, 2003 at 6:39 am

  In response to , First, I would like to “Thank You” for dedicating your life to Serving & Protecting The United States of America.

  For “That” alone, you are to be Commended………..But, after ALL YOU HAVE DONE FOR YOUR COUNTRY, you’re going to tell me that “Your Country” is going to “Turn Its Back On YOU”????????

  OVER MY DEAD BODY!!!!!!!!!

  This Neurontin “Situation” is NOT YOUR FAULT………WE WERE ALL LIED TO BY PFIZER, a.k.a. Warner-Lambert/Parke-Davis.

  YOU ARE INNOCENT…….I have “Mountains” of EVIDENCE PROVING that Neurontin CAUSES UNCONTROLLABLE ANGER, RAGE & HOSTILITY…….WITH NO REMORSE.

  I am on PERMANENT DISABILITY due to the use of Neurontin. I have worked ALL MY LIFE. NOW my life is in RUINS.

  My Friend, this is a WAR ON NEURONTIN……and I’m “fighting” it right here on our own soil.

  I GUARANTEE YOU WILL NOT “LOSE” YOUR MILITARY BENEFITS…………this is NOT YOUR FAULT…….I HAVE PROOF.

  I will go before ANY GOVERNMENT ENTITY who will ALLOW ME TO TELL THE TRUTH ABOUT NEURONTIN.

  It is my “Mission”……It is my “Purpose”………..I will NOT grow weary in my Pursuit of Justice.

  I have never, in my entire life, seen one Drug wreak such havoc on so many.

  Stop worrying about “time limits” for filing a Lawsuit……..and the Government should, and better, appoint you a Lawyer……..after all, isn’t it the “Government Doctor(s)” who PRESCRIBED YOU NEURONTIN??????

  I urge you to go to the FDA’s (Food & Drug Administration) website and file an “Adverse Reaction” report……I did……It’s the ONLY way the FDA can protect us and regulate the Drug Manufacturer’s.

  Attorney’s “Monitor” the FDA Adverse Reaction site ALL THE TIME……searching for HUGE MEDICAL ADVERSE ANOMOLIES.

  But, be smart, and remember, it is AGAINST THE LAW for an ATTORNEY to Solicite Business……so if someone, claming to be an Attorney, contacts you, just “beware”.

  There is also a website called FindLaw.Com. I used to use it when I was a Legal Secretary.

  You can find out just about anything on an Attorney………and there’s MOUNTAINS of information at that site also.

  WE WILL STAND BY YOU……WE WILL STAND UP FOR YOU…….YOU ARE NOT ALONE.

  You deserve better from our Government. You should NOT have to “Fear” our Government………if you do, then “that” needs to change.

  I understand the Military is a “separate entity”…….in other words, you are not a civilian and must live by a “different” set of rules.

  But, that STILL DOESN’T GIVE THEM THE RIGHT TO TURN THEIR BACKS ON YOU.

  Trust me, they wouldn’t get “Away” with that type of treatment towards one of our Dedicated Soldiers………the “Public”, when they hear the TRUTH, would not “tolorate” that type of injustice towards one of our “Troops”. Especially NOW, when Society is Proud to Back our “Individual Soldiers”……..no matter what anyone’s “view point” on the War may be, we still want our Troops to be properly taken care of, and properly compensated for, PROTECTING AMERICA.

  YOU ROCK!!!!!!!

• Keith Altman // Nov 28, 2003 at 12:54 pm

  To add to what Debra said about the adverse event reporting to the FDA, it is important that you also send a copy of the report to Pfizer. Unfortunately, not all of the reports that go to the FDA get back to the manufacturer. It is also important to indicate on the form that it is being sent to both the FDA and the manufacturer. This will keep the reports from being duplicated. I am currently in the process of analyzing the FDA data. The more data, the better. To give some of you statistics from the data here are some counts of reactions:

  Depressions About 200

  Suicidal Ideation About 85

  Suicide Attempts About 85

  Suicides About 45

  This data is through the end of 2002. It is estimated that between 1 in 10 and 1 in 100 adverse events actually get reported. Therefore these numbers may be much higher. That is why it is so important for you to send in MedWatch Reports. Here is the link to fill out the report online for the FDA: https://www.accessdata.fda.gov/scripts/medwatch/

  In the interim, I am continuing to analyze the data. Anyone that would like more details can contact me at altmanm@optonline.net

• rose cirelli // Dec 4, 2003 at 8:21 am

  how do we get better does anyone have any suggestions i have been off them for a couple of years but the syptoms are getting worst more headaches and the studdering is getting really terrible please help

• Tammy Herman // Dec 5, 2003 at 10:33 am

  I’m extremely interested in this lawsuit because I was given this drug at 300mg, 3 times a day and have had a well known serious bi-polar disorder and was never informed that it would negatively effect me. Not knowing what was wrong at the time, I held a loaded gun in my mouth hoping to end the awful suffering I had, but I prayed and held on not even knowing why I wanted to end my life so desperatly. I feel very strongly the Neurontin was that reason, and I think the makers or distributers should be held 100% accountable for the years of misery I and my family went through. It truly was agony every day and it should be stopped. Please contact me if there is any possible way to enter this lawsuit against them, my life was almost ended over this drug, and someone should be held accountable. Thank You for listening. Tammy L. Herman

• Wendy Bird // Dec 8, 2003 at 5:21 am

  Rose, Speech therapy can help with the stuttering, however, noisy situations, situations requiring alot of concentration, will make speech more difficult. (It also makes thinking more difficult) the specialist I have seen believe it is because the Central Auditory Processing part of the brain as been damaged, there fore the harder it is required to work the more it slows down and eventually stops. I also have a great deal of difficulty on the phone and with numbers, (we are working on this in speech) Try to visualize things you need to remember, carry a tape recorder for taping conversations, doctor’s appointments, etc. anything that you need to remember later.

  One of the best suggestions I can give you is to have a really good pair of ear plugs made (they can be fit for inside your ear, and are very descreet) - wear them in public (malls, etc, resturants, rooms full of people)

  they do not prevent you from hearing the person next to you but they do filter out some of the background noise - I have found this helps me to be able to speak better and concentrate a little longer. It’s not perfect but it does help.

  Situations with alot of visual stimulation have also have a similar effect.

  The headaches I can’t offer suggestions for, I have them too, sometimes sharp shooting pains in my head. and I have a pressure that builds in my head when I am trying to do too much, concentrate, etc. They only thing that helps is to take time to lay down and rest. I have also have migraines with double vision, light sensitivity and vomiting, I havent had much success at helping them only riding them out with advil and gravol. (As you proubly understand I am really scared to try any new drugs, for migraines, cronic pain or any thing else for that matter.) Neurontin has changed so much of my life - not for the better.

  If you are having memory problems, I have also worked out some”tricks’ to help myself. Let me know. I think we all need to help each other. The feelings of depressions, lack of self worth, etc. are fought on a daily basis.

  If you can get a good support system of loved ones, family etc. it will make the biggest difference. Some days I am so miserabe to be with it is like I’m trying to drive them all away ( but they are standing my me, so far)

  When I read your first letter I printed it off and showed it to my husband, you described how I feel. Knowing there are other people out there that are struggling, and talking back and forth helps. Don’t give , keep pushing yourself (I had to relearn to repeat words, sounds, talk, manage a house, cook meals, and am still working on basic daily living skills)

  I still have trouble reconizing when I am blowing things all out of proprotion, when I become confused I don’t always reconize that I am mixed up , I just know that I’m very agiated, can’t speek and can’t figure out what I’m suppose to do - so I react by crying or screaming at about whatever/whoever is there. Now that I realize this , I’m trying harder to walk away, even if it is just to go cry in my room by myself. It is no fun for any of us (myself,my husband, or my three children.) My doctor has convinced my to try one drug (1/2 a pill in the morning and 1/2 a pill at 3:00 to help me cope, I have only been doing this five days, but they have been the best five days in five months.

  Although since I have made everyone in this house miserable for weeks now, and it has been pointed out to me several times, I am trying harder to remove myself before I scream and start things.

  (even though I know in my head this is not my fault - my personality and whole life changed after taking neurontin , I now have to live with the guilt too, when I make everyone elses lives miserable, I get awfully tired of saying I’m sorry all the time)

  I’m sorry to take up so much space - hope this helps someone, and any thing any one else can suggest would be appreciated. Don’t forget to pray, be good to yourself and do good things for others, even when it is the most difficult for you it WILL HELP.

  God Bless, Wendy

• Erin // Dec 8, 2003 at 10:26 am

  I was prescribed nuerontin to help with obsessive compulsive disorder, but I recently learned that it’s an epilepsy drug. Does anyone know why on earth I was given this drug, and so much of it? I’m currently taking 900 miligrams per day. If I don’t take it, I can’t fall asleep at night due to anxiety. If anyone has any information, or knows of any websites that could help me, please contact me.

• DWilson // Dec 8, 2003 at 7:35 pm

  My daughter (now 17) was put on neurotin, 800 mg tabs x 5 per day. The only side effect (recently) is facial breakouts (stye in eye, and an open sore under her nose) which has left her skin pinkish red in color. She has been on it for about 4 years.

• Shirley Kniss // Dec 11, 2003 at 2:21 am

  I was first perscribed nuerontin in 1998 as a migraine prenative. they took away the only pill that stooped any of the pain. Telling me that pill was causing rebound headaches, I suffer from daily chronic headaches as well as severe migraines. As time went by the Drs. increased the nuerontin for daibetic nuorpathy and for my Bi-Polar disorder. My memory worsened, I could not read a book like I used too. My moods went wild and out of control. My husband told me ther was just no talking to me any more that I needed to be committed. That infuriateded me more. I had no clue what was going on. The side effect of a drug causeing all of this??? Then I started waking in the middle of the night and could not move my legs on their own and the drs could not explain it. Xrays, cat scans, MRI’s no reason for me not to move on my own. sleep study that showed and irregualr heart beat so off to the heart specialist i go. Then thay do a angogram on me and see my heart is fine but cant explain the irregular heartbeat. How can a 43 yr old woman be on total disability from Bi-polar, arthritis, diabetic, and now irregular heart beat, Now I have kidneystones every year at least once a year. I dont want to live, I have tried three times this year to kill myself, first time was in january with a plastic bag over my head, I passed out and woke up. Second time my husband fought me for all the knives I was trying to use on my wrists. then the last time I took 120 glucophage xl. I am only alive now because my freind called the ambulance and told them I had took those pills. Once I got out of the hospital I saw and ad on tv about nuerontin. Why was I not told about the side effects before? How could a company be allowed to push and lie about a drug this way. Is our lives this unimportant to them. Is the almighty dollar really all that matters. Do they realise the hell I have been through since 1998 since I started this drug. The nights I cant sleep, The days I am here wanting to die. Will I ever get my life back? Will I ever be normal again. Why were they allowed to do this to all of us??? I am in Texas and I want to know if there is a lawsuit and who to contact. I am a rape survivor, but to be raped by a durg company like this really is the worse thing I can imagine. They are supposed to be trying to help us get better and see if we can lead better lives, not this horrible hell that we have been leading. Anyone who can or is willing to help me Please drop me a line.

  Thank You So Much

  God Bless You all. Lets Make sure they STOP ABUSING US!!! We are not a bunch of lab rats for this company to play with.

• Jimmy // Dec 12, 2003 at 5:05 pm

  I’ve been taking 4800-6000 mg per day of Neutrotin for anxiety and feeling like ending it would be a reasonable consideration— feeling very laise faire about self destruction. Anyone care to comment or advise?

• Shannon C. Duckey // Dec 16, 2003 at 11:17 am

  I am a 27 year old female who has had a back problem for 4 years now. I have been prescribe Neurontin for about 3 years on and of. I have been Depressed, have had Insomnia, hearing things that aren’t there, More and more headache’s, I stay awake with my children. My husband says I am acting different every time I do take it. I would like to Know what to do about this medication? Please someone help me. Trust me if you do I will look you up to see if your good enough for the Job! No scams please I already have enough problems.

• jason lewis // Dec 24, 2003 at 3:19 pm

  i have been on 1200 mg of nuerontin for about 1 year. i have noticed that my legs get weak, and the right side of my mouth and teeth hurt. also i feel kinda addicted to them.

• Trish // Dec 28, 2003 at 9:42 am

  i have been on neurontin for about 2.5 years for bipolar disorder. never really felt it caused any of my other problems, severe headaches, etc. however i just attempted suicide and while in the hospital, the dr increased the dosage from 1600mg per day to 3600mg. my headaches have worsened to which the drs say i need to adjust to the new dosage. if i was on meds for so long, how could i possible feel bad enough to attempt suicide ?

• Angela Smith // Jan 3, 2004 at 9:48 pm

  I caution you all to make sure what you are saying and doing is accurate and not exagerated. I realize that this was marketed wrong and that many people have suffered as a result. But, do you realize how many people actually benifited from this? I have been a chronic pain sufferer for 2 years now and was ready to end my life when I was placed on this 4 months ago. My life still isn’t normal and have accepted that it never will be again. I was treated with this for neuropathic pain and it has reduced my pain by 1/2. I can do small tasks such as driving, washing my hair and changing my clothes without unbearable pain again. If this drug is pulled from the market a great number of people will commit suicide that wouldn’t have otherwise because effective pain maanagement isn’t available for millions of people. I am one of them. Are their other drugs that would help relieve my pain? The only class I haven’t tried are in the oxycotin range and no doctor I have seen will perscribe these because of the FDA. I know the pfiezer marketed this unfairly and have seen statements from the drug company. Including the one that stated Pain management now that’s money we don’t want a portion of their budget but all of it. Was this a fair statement no, but some people are benifiting greatly from it. Others have been harmed and should be allowed restituition. But please keep it factual so that millions more aren’t harmed. If this was taken from me I don’t know how I would cope going back to the way things were.

• Hugh Patrick // Jan 6, 2004 at 5:21 pm

  I was put on Neurontin about three years ago when I had relasped from 26 months of sobriety. The Dr. Diagnosed with P.T.S.D. and major depression. They said i have been self medicating all my life because of my being abused in orphanges and forster homes during my whole childhood. They also told me that a Neurontin and wellbutrin combination would also help my cravings along with the depression. since then i have not been able to put together more than three months of sobriety. When i do i often feel sucicidal (sometimes homicidal). I’ve been hospitalzed about five diffrent times (Once for six months). The worst part is these feelings are even more stronger when i stop the nerontin. My job as a technical consultant for a national company, fired me (after three years) because i used up all my my Family/med. leave - Now i don’t even have insurance. Nobody has ever warned me of the side effects decribed in these comments. I just learned about all the “Side effects” and problems because i went on line looking for an altenative. I just wish that one of the many many Drs. I’ve seen in the last three years would of mentioned some of these adverse effects cause i would of demanded diffrent Meds. Now I’m stuck - A lot of days I just don’t want to get up and out of bed or face anyone- and others days i’m scared i may hurt myself or some one else.But like i said the feelings get worse when i stop the meds. The only thing that put my thoughts away is when i drink or take other drugs which turns into a whole other problem. I don’t know where to turn or what to do?????

  I live in the fort laudedale area either homeless or in a halfway house or a hospital. (which will only keep me one or two day cause i have no insurence anymore.)

  If some one knows where i can find real help pls contact me at

  Huease@myway.com

  \

  Thank you and God Bless.

• abby // Jan 7, 2004 at 5:41 am

  WOW,, IN 1998, this was the drug that was for every cure,,,and 2 suicides, 1 electro shock treatment, and ETC. ETC, there are law suits against this BS drug when used in propertly,,, CHARTER HOUSE is one of them,,, if u think that one flew over the kook,kooks nest was a trip of a movie,, that aint nothing compare to the N. drug… too tired to explain tonight,,, but i will return and explain more

• Teresa Lantz // Jan 7, 2004 at 11:22 am

  I have been on Neurontin now for about 1 yr. This drug has been a life saver for me. As I have been diagnosed with fibromyalgia and severe back pain due to deteriating discs. The only problem I have had with this is some shaking in my hands. No depression, no mood swings, no suicide, period. It would be of great injustice to us who have been helped by this drug for the FDA to take this from us. I am so sorry for those who have been hurt by it, but for most of you who have, it seems have had way too high of doses prescribed to you which I believe goes back to medical community. Dr’s. get away with way too much these days are all too eager to hand out drugs as an alternative for every ailment.

• Lee // Jan 26, 2004 at 12:42 am

  I have gotten so weak, I do stutter ( I did not, I do now). I feel so desperate and miserable, it is not just pyschological side effects, I am physically tapped out @ 39. I spend days just lying in bed, I have a natural aptitude for writing, I am in the upper 1% of the entire nation for vocabularry and now that I am flat out all I can do is wonder how in the Hell my life came to this. I am erratic, I do cry, I feel lost and helpless (my doc, I do not trust him @ all, I want a private doctor , I want my life back ) I also feel bad for all the pain that has been inflicted on so many. We must summon up strength from our weakened selves to cry out for help and for justice. This is abuse and I am appalled that this was set loose on people and condolences to those who died. I honestly do not know if I will make it through this to the other side, hanging on by a thread I push myself forward, it is a mission of mercy, not just for myself but for all who have been wronged in such a cruel manner. May this law suit prevail, may we blow the lid ride off of this thing, it may be hard to see but IF you refuse to succumb there is light, Uncle Sam wants his money. Persevere and BE BRAVE…

• SYLVIA E ERISMAN // Feb 2, 2004 at 10:49 am

  Now I am afraid to take Neurotin for Charcot Marie Tooth Disease what do I do.

  Sylvia Erisman

• k dynes // Feb 8, 2004 at 10:33 pm

  I am just begining mu search fo find out all obout Neurontin. We have been trying to find out the reason our daughter tried to commit suicide three times and on the fourth try she passed away . we began to notice a change in her after she had been on Nuerontin for about a year. She hd just finished nursing school and had received her RN degree and started working at the hospital and she began to have problems of numbing around her mouth and then later on her personality began to change. Brooke was a very kind and sweet girl but began to be abusive and talk terrible and get mad at everything. After Brook’s first try at killing herself she was put in a mental ward for a while and was told she had a personality dissorder . We could all see this but no one could tell us why they just continued to giver more and more medication she finally reached a stage a few months later where she had adema, became partialy parilized on wthe right side of her face and arm and was having double vision but they could find nothing wrong even after the cat scans and MRI they could not find a thing causing her problems,well after reading all of the side effects of Neurontin I know what was wrong and her family will not rest until this company pays for all the pain and suffering to her and her family and we will be seeking compinsation for her son who is 14 this month because of this drug we are left without a daughter,Mother and sister. Brook passed away May 29th 2002 and I will never forgive this company.

• ginny meyer // Feb 9, 2004 at 9:34 am

  my neurologist gave me 300mg of neuronitin 3x aday i hear so many bad things its for migraines ihavent taken it i dont think i will im on tons of meds & just lost 30 pds i heard it also puts weight on you thanks please help ginny meyer

• Dale Washington // Feb 10, 2004 at 4:23 pm

  I just stumbled across all this info on neurontin and I’m so thankful I did. I’ve been on neurontin for close to 5 months for body aches, pain & depression. Recently my muscles in my legs became very weak, almost rendering them useless. I have complained about the problem to my doctor on 2 ocassions and he assured me that it had nothing to do with the neurontin I was taking. Yesterday I went back to the doctor because I was alarmed with the muscle weakness getting worse. He took me completely off the medicine. My bloodwork results were in from the prior weeks visit and he informed me that my muscle enzymes were elevated, but he still doesn’t think it’s due to the neurontin because muscle weakness isn’t a symptom. I just wasn’t satisfied with his opinion so my wife decided to get on the internet to see what we could find out about neurontin. Lo and behold not only do I find that a side effect is muscle weakness, but I find a wealth of information. I knew I didn’t have the problem before I started taking the drug, nor did it help the depression I’d been battling. I just want to thank whomever is out there looking out for us little guys. Unsuspecting patients caught up in a web of deception by the big drug companies and doctors out to make a little extra by promoting drugs that are ineffective and harmful in some situations. I realize there may be some people out there who have benefited from neurontin, and I’m happy for you, but the doctors & pharmaceutical companies need to stop prescribing this medicine as a “cure all”. My wife has been living in pure hell ever since I’ve been on that medicine. I would have bouts of rage and anger that was uncontrollable. I’m just thankful that I didn’t harm my family or myself physically. Strength comes in numbers, so if we all stick together, and press on, maybe something good can come of this. Once again, thanks to all of you for sharing & caring!

  Dale Washington, Lexington, KY

• Stephanie George // Feb 14, 2004 at 11:27 am

  My daughter was put on neurontin for RSD and shortly after that she totally lost contorl of her legs they were spastic only when standing or walking. After months of therapy she was almost back to normal. She was taken off the neurontin immediately and now 8 months later the spacticity and tremors are back. Any one with any of these problems.

• Brad Turpin // Feb 18, 2004 at 6:59 am

  Hello, I was just prescribed neurontin a few days ago…300mg 3x daily for lower back pain….It works for that…but after reading all these posts

  I am reluctant to take it anymore…should I ask my doctor to prescribe a different Medicine or should I discontinue his advise?

  worried?

  Brad

• DARREN // Feb 27, 2004 at 5:22 pm

  MY BROTHER PASSED AWAY UNEXPECTEDLY AT THE AGE OF 26 THIS PAST NOVEMBER.IT HAS RUINED MY PARENTS AS WELL AS MY LIFE.THE CAUSE OF HIS DEATH WAS ACUTE OPIATE INTOXICATION.HE WAS SEEING A PHYSYCHIATRIST FOR ANXIETY AND WAS PRESCRIBED NEURONTIN.HE WAS ALSO PRESCRIBED OTHER ANTI ANXIETY MEDICATION AS WELL.WE ARE NOT SURE YET WHY HE WAS PRESCRIBED THE NEURONTIN BUT IT MUST HAVE BEEN FOR AN OFF LABEL USE BECAUSE HE DID NOT HAVE ANY OF THE ILLNESSES THAT IT WAS SUPPOSED TO BE PRESCRIBED FOR.THERE WAS NEVER ANY INDICATION OF HIM TAKING ILLEGAL DRUGS AS THAT THEY SAY WAS THE CAUSE OF HIS DEATH.THE PYSCHIATRIST SAYS HE WAS NOT ON ANYTHING ILLEGAL AND SHE BELIVED HIM.CAN ANYONE TELL ME IF THERE ARE CASES OF SOMEONE TAKING ILLEGAL DRUGS OR DOING SOMETHING THAT STUPID BECAUSE OF NEURONTIN.THERE WAS NO WAY HE WAS SUICIDAL AS HIS LIFE WAS VERY GOOD AND WAS LOVED BY EVERYONE.THANK YOU.PLEASE ADVISE.

• Christine // Mar 3, 2004 at 12:09 am

  Does anyone know about a class action lawsuit for this drug. I never had so many problems till I got on it.

• Kelly // Mar 4, 2004 at 11:03 pm

  I was on Neurontin for 4 and a half 5 years, 1200mg a day. I have Bi-polor. I was also on other meds for depression and panic. Thank god I was on the other ones along with this or I don’t think I would be here to write this. While I was on the Neurontin I had ‘break-thru’ manic episodes numerous times and my Neurontin was always increased. I did try to kill myself 2 times while on it and was put in the hospital.

  While on the Neurontin I would get terrible pains in my muscles that I ended up going off the Neurontin for and was put on Lithium. I had side effects with the Lithium and desided that I could deal with the pains vs the side effects of the lithium and went back on the neurontin.

  I then watched the program on the neurontin whistle blower and paniced and went off it all together. Sience I have gone off of it I have had nothing but trouble. I am sick all the time, I have kidney and liver problems, and I have had what feels like shcoks in my head, and constant headachs, plus I am tired all the time.

  I am sick and tired of living this way and would like to know if there is any relief out there.

  I am looking for an attorney to take my case. If anyone knows of anyone could you please e-mail me.

  brhcomp@yahoo.com

  Thank you so very much for listening.

  Kelly

• Jennifer Simon // Mar 9, 2004 at 3:18 pm

  I have been on the max dose of neurotin for approx. 3 years, for chronic back pain. It was prescribed by my psychiatrist,md. She is no longer living in my state. Now the pain management dr, refuses to write the script. I am on several other meds. I don’t know what to think about all this.

• P. Chadwick // Mar 9, 2004 at 5:48 pm

  Where does one start, when they themselves can’t explain the terrible blackhole that is felt from the time they put their feet on the floor in the mornings. I am 54 years old, with a wonderful husband of 34 years and to wonderful adult children. We are not rich, but live comfortably. I was a mortgage banker for 12 years, moved north, and owned my own child care for about 18 years. 21/2 years ago, my child care does had come to an end, because of the depression and anxiety it had caused. After pleading for help from my M.D. he adviced me to consult a psychiotrist. I have been going to this man for about 3 years now. He has had me on paxil, effexor, and last but not least NEURONTIN. I was changed from paxil, to 150 mg. of effexor and for quite a while 3600 mg. of NEURONTIN a day. I have withdrawn myself from the effexor which was hell. I then starting bringing myself down off the NEURONTIN. These feelings are unexplainable. Yes, I believe the Neurontin has only caused me to dive deeper into darkness. It is uncontrollable. Thank God, I have a family who is so caring. My husband is at his wits with trying to run our business and yet afraid to leave me alone. It is fits of rage, depression, anxiety, almost convulsive. I am truly a happy,person. I have so many friends, and no problem getting along with people. I am so fortunate to have so many caring people around me. But, I am truly so scared of when the next episode will hit. The only thing I get any relief from is Zanex. I only take the smallest mil. of that. which is 0.25 mg. I try to split them alot. I have tried to totally stop the Neurontin too and that is worse yet. Course at this point I don’t know whether the blackness is any worse with it or without it. I am going to try splitting the 600 mg. of Neurontin in half and see if this will work. I have gone on and on. I really don’t know if any one will understand what I am trying to get across. I am so scared. It seems like there is no where to turn at this point. I truly hope someone can give me some advise. I have so much I want to live for, but not this way. I hope someone out there can

• jwickes // Mar 11, 2004 at 5:02 am

  On one patient comment site I read a number of comments citing memory loss.Now I can’t find the site.

• Marcia Miller // Mar 11, 2004 at 6:11 am

  I STARTED TAKING NEUROTIC 6 YEARS AGO FOR PAIN AT AN OLD SURGICAL AREA THAT RESULTED IN MULTI ABCESSES. IT HAS RESULTED IN THE FOLLOWING

  1. FATTY LIVER THAT ALMOST TOOK MY ENTIRE ABDOMEN, CIRROSIS OF THE LIVER

  LOTS OF PAIN. UNABLE TO STAND OVER

  5 MINUTES. I WAS UNABLE AND STILL UNABLE TO DO MY GROCERY SHOPPING. I

  CANNOT STAND LONG ENOUGH TO SING A HYMN

  AT THE CHURCH.

  2. ANGER SO SEVERE THAT NO DOCTOR WANT TO SEE ME.

  3. I WOULD BE PRISON NOW IF I HAD A GUN

  AND PHYSICALLY BEATING UP A MAN THAT WAS VISITING ME.

  4. I AM UNABLE TO TOLERATE ALMOST NO STRESS. I HAVE STOPPED WATCHING TELEVISION. I EVEN GOT UPSET WITH THE TV SHOW I LOVE LUCY. I STARTED CRYING BECAUSE RICKY WAS GOING TO FIND OUT ABOUT LUCY’ BEHAVIOR. PRETTY SAD HUH

  5, MY DIABETIC IS SO OUT OF CONTROL, IT TAKES OVER 700.00 DOLLARS A MONTH JUST TO CONTROL MY DIABETIC.

  THIS MEDICATION IS TERRRIBLE. I HAVE NEVER TAKEN ANY MOOD ALTERING DRUG. I AM USALLY A MILD MANNERED PERSON, AND IT WOULD TAKE A LOT TO GET ME TO GET UPSET.

• P. Chadwick // Mar 13, 2004 at 6:29 am

  Well, here I am again. I still am asking for more info on this hellish medication. I have read over and over everyone’s comments and still am trying to do more research.

  I went to my counselor, took all of this info with me, trying to get some answers from her. She had no answers, not knowing enough about this drug. She said I SHOULD NOT TAKE THIS INFO TO MY SHRINK, BECAUSE, QUOTE: THE MEDICAL CIRCLE BELIEVES ALL OF US ARE A BUNCH OF CRACKPOTS. Cool, Huh? We are all pleading for help, and we get to be called CRACKPOTS. I have an appointment with the Psychiotrist on Monday. I really don’t know where to start with him, knowing I am going to be called a crackpot. I can see that some us are not denieing we are bi-polor or just depressed, anxiety people, but this drug has only made it worse. Is there anyone that has come off this drug successfully? God, I want off. Can someone out there give me a answer. Again, I am so scared. What do I say to this DR. How do I get away from him? Are there any Dr’s who will really help us, without thinking we are crackpots. We can’t all be out of our minds. I want you all to know, just being able to find this site has helped me so much, knowing I am not the only one who is experiencing this hell. Thank you all for your help. Any feedback I can get will be so helpful.

• Steve M. // Apr 7, 2004 at 12:09 am

  I was put on nuerontin 8 months ago for chronic pain. I am also on Avinza (morphine). I have been cutting myself for the last few months and going thru uncontrollable mood swings. I found this site and stopped the nuerontin on my own…and I am so much better. This drug almost cost me my life on at least 3 occasions. I know I have some problems..but the nuerontin made it much worse..to the point of suicide. It has cost me my family, job and almost my marriage. I know live with the scars from cutting myself with a razor blade. I am sure it helps more people than it hurts..but if you get like I did..stop taking nuerontin. My doctor took me off the medication that really worked for me because of a famous radio show host who was abusing it (oxycontin). So now I am on morphine…but never again on nuerontin. Everyone please be carefull with this drug…it can kill.

• Chris Anderson // Apr 8, 2004 at 3:12 pm

  I am a doctor and I missed the story about nerontin on dateline. Does anyone have a copy of the show so I can discuss this with my patients? My goal is to educate my patients to the hazards of pharmeceuticals

• mindy // Apr 28, 2004 at 4:40 am

  i have been on neurontin for almost a year,it has helped with my back spasms. i have experienced speech, hearing and alot of what is mentioned here. leg numbness returned approx. 1mo. after my back surgery felt defeated. i do stutter now. and if i decrease my neurontin i have trouble functioning. but i am also on 2 20mg of oxycontin, vicodin 5.5 for pain, 100 zoloft, flexeril at night, and premarin (just had full hysterectomy due to fibroid tumors) i have been put on disability because i have degenerative joint disease. these medicines help me. and i do believe as a whole they do help me. even though the side effects have made me feel less then what i was. i am greatful to be home with my children. let alone be here with them. i sympathize with those who are struggling with this drug. but i am still trusting my doctors advice, with my treatment and god with my acceptance of life the way it is now, in hopes i will get somewhat better. as i know djd is not ever going away but will continue to worsen. i am hopeful to keep on going my children deserve me to do this and i will. bless all who are hangin in there. and good luck in being well.

• Lisa N // Apr 28, 2004 at 8:42 am

  I really would just like to know if this is an addictive drug and what would happen if I stopped taking it. Ive been on it for approx.6yrs. Please please advise. Thank you

• Michelle H // Apr 28, 2004 at 2:55 pm

  I want to tell you NOW IM WORRIED my son went to the phyc hospital for 1 week and the DR put him on 10 mg of lexapro 1 time a day and 2400 mg of Neurontin a day, it has been 3 weeks he has been on this high dosage Can I cut down the doseage my self??? maybe 1 pill 3 times a day instead of the 2 pills 3 times a day?? I dont want me son having thoses side effects, oh and I told him at the begging of this if he had ANY side effects to tell me and he called me at work today and told me he was feeling suicidel since yesterday

  By the he’s 13 years old and Dr’s are saying he MAY have Bi Polar

• mindy // May 2, 2004 at 8:21 am

  has any of you also been prescribed zoloft or other medication for depression? myself i take 150 zoloft a day and feel better while on this.

• Steve Broshar // May 5, 2004 at 10:49 pm

  I suffered a spinal chord injury on july 3/2002,and as a result had severe muscle spasticity and clonis.I’ve been on hydrocodone for the entire time and alsp tizanidine.After 21 months i had a baclofen pump installed for muscle spasticity and spasms,but i still had chronic lower back pain and a burning sensation in my lower back and legs,my doctor prescribed neurontin for nerve pain at 100 mg 3x a day and i’ve never felt more relaxed and my pain level has been reduced to the point where i’ve gone from 50 mg of lortab to 10 mg a day,and expect to cut out the hydrocodone all together.I am now able to work out at the gym and expect to walk without a cane in the near future.From what i’ve seen in negative feedback on this drug is the massive doses people are on in conjunction with all the other medication they’re on.I find that 300 mg a day seems to be sufficient for my pain,thank god i have a doctor that starts with small doses to see if the drug will benefit me,I also shy away from doctors that prescribe multiple prescriptions for treating the same symptoms,sometimes drugs may have adverse reactions when combined with other drugs the manufacturers and fda never foresaw.To date i have had no ill side effects from neurontin.

• Gail // May 13, 2004 at 12:30 pm

  I was put on Neurontin for “pain syndrome” re DeQuervain’s (tendonitis/thumb). I knew I did not have pain syndrome, I had a severe case of deQuervain’s (subsequently corrected by surgery) but one has to do what the doctors say. I began at 100, slowly increasing to 500. At 200, things began changing–I was not “aware” I was behind the wheel of a car…I could not judge where the curb was when parking…I could not put a cohesive sentence together, etc. Well, I got OFF of the drug slowly under doctor’s supervision and the symptoms from same disappeared. I am one of the rare people, apparently, who have severe side effects from this type of drug/family of drugs. NOW my regular neurologist and my ortho surgeon both are aware that this drug ain’t all it’s cracked up to be, and does have side effects in many people.

• Tiffany // May 13, 2004 at 6:38 pm

  My daughter’s father died in his sleep 2 weeks ago. They say he died of natural causes and we are waiting for the toxology report to come back. His mother is a nurse and she went through his meds and found neurotin. In the Pill Book, sudden death is listed as a RARE side effect. As I read more, I see there is more to this drug then we thought. Did I mention he was only 32? If anyone can direct me to any concrete research I would be appriciative.

• Michelle // May 14, 2004 at 11:33 am

  I have to say I am very concerned and sympathetic with what everyone here is going through, but I do caution you to be sure that Neurontin is the true cause of your problems. Those of you who mentioned teenage children committing suicide, should realize suicide is NOT uncommon in teenagers and there are a lot of reasons for it. I have been taking Neurontin now for nearly 4 years. A very low dose of 300 mg per day. I suffer from Restless leg syndrome, which left me so tired that in one month I had 3 car accidents due to falling asleep at the wheel. The sleep tests revealed that my leg movement was extremely frequent and severe enough that it was not allowing me to reach my deep sleep. Thus I was always tired. It took me years before I could convince my doctor that my being tired was not due to depression. I would sleep from friday when I got home from work until monday morning. I constantly turned down opportunities to do things with friends. Finally seeing a neurologist, being diagnosed and using neurontin made me a new person. I could never live without it! Please be careful what you are blaming on a drug you probably know nothing about and think about all the other meds or circumstances your loved one or you were facing at the time.

• Tish Faust // May 16, 2004 at 10:17 am

  I just learned of the class action case against neurontin. I was prescribed neurontin for biplor and caused a manic episode.

  Can someone tell me if the case is settled that is reguarding the illegal marketing of Neurontin with respect to bipolar. If it has not been settled, who do I contact?

• Allison Gallant // May 20, 2004 at 7:48 am

  I was prescribed very high doses of Neurontin for A Typical Tri-geminal Neuralgia two years ago. During that time, I suffered greatly with anger,fatigue, depression, and memory loss. I took myself off the medication two months ago, as I was knew Neurontin was not helping my illness. Shortly after being off the medicine, my disposition changed greatly. I was deeply saddened and disgusted of the news that of the claim and the settlement against the makers of Neurontin. I had not been aware the drug was the subject of a Dateline program. I am sorry I did not know of the simialr problems others were having. As well, I am sad my Neuralgist, apparently was unaware of it either. Does anyone know if any other pending lawsuits against Parke-Davis/Warner-Lambert Co. ?

  I am sorry for those that are simiarly situated.

  Thank you,

  Allison Gallant

• Nohora Silva // May 22, 2004 at 1:24 pm

  I was prescribed neurontin for pain, 300mg 9 times a day in November of 97. As of last year, after struggling to survive, I reduced the amount to 3 times a day. But in November of 2003 I was dignosed with cancer. I have survived thanks to my dear God. I can only say that there is no cancer in my family, therefore, I blame “The Neurontin and their creators irresponsible desire to make money”.

• Dr. Rick // May 27, 2004 at 7:14 am

  Our biggest problem is that we are putting our faith in drugs rather than in the healing power that God placed within us. We tend to reach for a pill or potion rather than hit our knees and pray.

  Do you think the drug companies really care about your health? Just look at what happened with Neurontin. Phizer was warned by the FDA not to promote “off-label” prescribing because there was absolutely no evidence to suppport their claims. They ignored the FDA and decided to market the drug for “off label” prescribing. Why would they do that? Could it be that they would make more money?

  What happened? Phizer was fined $400 million dollars for disregarding the FDA’s warning. Would you be willing to lose $400 million if you were able to make over a billion? Absolutely! Why then did the FDA only fine them $400 million? If you are making a billion, $400 million is just a slap on the wrist with no hard consequences. So, why didn’t the FDA fine them more severely and teach them a lesson? Could it be due to the FDA having ties to the drug companies?

  The biblical principle still holds true. To judge something, look at the fruit it produces. An apple tree produces apples, an orange tree produces oranges. What does our current “health” care system produce? Health? Ha! In a recent study by the World Health Organization, they found the US spent more on health care than any other country, but ranked 37th! Health comes from within! B.J. Palmer, DC, PhC said “If health truly came in bottle, there would be a shortage of bottles.”

  “We have not lost faith, but have transferred it from God to the medical profession.” - George Bernard Shaw

• C. Pearce // May 30, 2004 at 9:33 pm

  It sounds like I am one of the few that didn’t have a problem with the adverse effects of Neurontin. Granted the first two weeks were extremely rough getting used to the medication because of drowsiness, mild hallucinations, upset stomach, and oversleeping daily. I was diagnosed for RSD in my knee due to a very traumatic injury to my right leg and I only stopped taking it after one year because it was no longer working to treat my RSD, which now I am taking 12mg of Gabitril daily. For reference I was taking 3000 mg of Neurontin daily. Once I got used to the temporary side effects I felt great. Neurontin can be treated for pain cases as well as psychological problems. I won’t file into a class action lawsuit for Neurontin!

• Debra Parks // Jun 3, 2004 at 6:58 am

  Some of you might know me……..I’ve been here before.

  Neurontin lawsuits are starting to proceed.

  I have a new email address. It is debraparksmail@sbcglobal.net

  Please read my posts………I think they are from November 2003.

  If anyone wants to join in on a legal battle against Pfizer & Neurontin, please contact me.

• Patricia A. Camp // Jun 7, 2004 at 12:14 pm

  I have been taking neurtonton since 1999 fir sever sensory neuropathy. During which time has help up until latley. Now that I am under the care of a Physc. he has up’d my dose to 300mg four times a day. It has seem to help with my neuropathy but increased my manic depression. I am truly upset that we have to find out all the finding of this med. on dateline instead of the manufacturer. What are we suppose to do for our problems.

• Joanne Potega // Jun 14, 2004 at 9:29 am

  My 14 year old was given neurontin for RSD after two months of trying to figure out what was wrong. She was given neurontin and within 4 days she stopped walking and loss the use of both her legs. They diagnosed her with guillain barre at the emergency room and gave her immugloglin treatments. After a week in the hospital she was transferred to a rehab center to go through intense physical and occupational therapy. She had many emotional outbursts and wanted to end it all. I thought it was all she was going through. She came home on April 30 2004 after over a month in a rehab to getting her walking again. She was barely walking and fell over alot because of weakness in her legs. With a week of coming home she stopped walking again. We were beside ourselves and called the pediatric neurologist again who informed me that he thought she never had guillain barre and now thought it was a psychological disorder called conversion. With that diagnosis in her file no doctor wanted to touch her. Now what do you do? Being her relentless advocate I finally found a doctor who would see her. She realized that my daughter had been having seizures but didn’t know the cause. I went home with my 14 year old daughter again wheelchair bound on Memorial Day weekend. I started to try to figure out why the mood swings, leg weakness, fatigue, acne, and especially the seizues. I called our Walgreens to talk to the pharmacist. She informed me that the list of side effects was so long that I would have to come in and get the list. Low and behold everything was on there. I immediately took her off the medicine myself and waited for the fallout. Within 4 days my daughter although shakey began walking and by the time she went to see the doctor on Wednesday of that next week she walked in on her own accord. She has (we believe) some lasting problems and don’t know is they are permanent. The bills for all this a over $100,000 dollars so far and still climbing. Pfizer should be responsible for all that they have knowingly caused and the pain and suffering that all these people have gone through. My daughter has gone from a vibrant dance and drama student to an old person who can’t even stand up for more than a half hour without having to lay down. She lost half her eighth grade year, numerous parties, and had to have a tutor to just get her by after being an honor sudent. She has gone through many extremely painful procedures (like a spinal tap with no anestetic in the emergency room) and others. I believe that should not give this to any child under 18 to begin with. Has this ever been tested on children. If not my child unknowingly and unwillingly became a guinea pig. She should be compensated.

• Virginia // Jun 18, 2004 at 11:41 pm

  My mother got trigemenal shingles 8 years ago. It was the most horrible excruciating disease imaginable. After ‘testing’ over 40 different drugs the Dr. finally put her on Neurontin. She was 86 when she got shingles. She had post-herpatic neuralgia the rest of her life. She died at 93. Without neurontin she would not have lived that long. It did not cure the PHN but at least gave her some comfort. She started at 900 and went on up to 2600 (devided into 3 x a day) she found that any higher and it was no more effective. She did not have side effects other than some drowsiness. All meds are scarey. She had a book for older people “Best Pills/Worse Pill”. Almost every pill there was mentioned as not being good for you and most had the same side effects. I believe that when a person is in terrible pain they will be willing to try anything that will give them some sort of quality of life. Maybe children should not take Neurontin but then should they be taking all the ADD pills that are shoved down their necks. Research everything you can before using a medicine and don’t freak at all the negative points. Check out the pros also. Find a Dr. that listens to what you know about your body. Good luck.

• R J Wittenberger // Jun 20, 2004 at 1:55 pm

  I was prescribed Neurontin the fall of 2002 for RSD in both hands. A condition I was able to get NO help for more than 12 years. My pain level went up & up but no doctor I saw would even believe me when I described my symptoms. One doctor even said, “You realize that you are describing conflicting symptoms don’t you? You can’t have muscle, joint and tendon pain all at the same time. I think you just want drugs.” I was then asked to leave her office.

  The pain became unbearable in the fall of 2002 and I went to see a new doctor. He prescribed Neurontin. It worked like a miracle. Although I was tired upon waking in the morning for the first 2 weeks the side effect went away. After about a year and a half the benefit began to wear off so my dosage was increased. However, my doctor was not just going to keep upping my dosage, he wanted to make sure there wasn’t another underlying condition that needed to be addressed. I saw several specialists and all forms of chronic illness were ruled out. I will now be seeking help in the form of acupuncture because unlike some doctors my physician does NOT see this drug as the end all or cure all that others seem to think it is. He does not want me to have to take it for the rest of my life & knows that I feel the same way.

  I feel much sympathy for those who have experienced adverse effects from being given this drug for the wrong reasons. But at the same time I feel that you must take a certain amount of responsibility for your own health care or that of a loved one. If you are not made aware of side effects associated with a drug, and all drugs have side effects, you need to ask your doctor or pharmacist for printed information outlining these possible side effects. I have had no side effects except the tiredness I described earlier. AS to folks that have gone off the drug cold turkey, you need to realize that this drug is a narcotic. If you go cold turkey you WILL have withdrawal symptom. That is true of all narcotics even street drugs.

  I would also like to say that just because you or someone you know has been prescribed a medication, ANY medication, you (or they) DO NOT have to take it. You have the right to say no. You have the right to a second opinion. If you feel you are not well treated or respected by your doctor your can get another. I did. All the blame does not belong on the heads of doctors or pharmaceutical companies. You are responsible for your own health care choices or for those of a dependant.

  Without this drug I would no longer be able to work let alone function normally on a daily bases. Before I took Neurontin by the time I was ready for work in the morning I was in so much pain it was all I could do to force myself to go to work.

  I hope that everyone that has been wrongly prescribed this drug can get the help they need and of course any restitution due you but as I stated above please be proactive in your health care choices; ask questions, get second opinions if necessary, always be informed.

• janice Rawlins // Jun 25, 2004 at 7:05 am

  Neurotin, the misleading devil drug that cause anger, depression, and so much manic behavior. I need to express my self about this drug that has ruined people’s life. We should fight againist the illegal, misleading information about drugs that are supposed to help and not hurt us.

  contact me if you have more info about this dreadful drug (Neurotin)the confusion drug that leaves you with no memory of things you have done or might do.

• Cheryl Thornton // Jun 30, 2004 at 5:49 pm

  I live in Ohio and I saw a commercial on television about a law firm handling cases for people who were subcribed neurotin for medical reasons that had nothing to do with epilepsy. This commercial caught my attention because my husband is currently taking this medication for joint pain and has had many of the side effects that I have been reading about. I would like someone to contact me with more information about this drug and it’s side effects. I also would like the names and numbers of any attorneys, and, or law firms, handling such cases. Thank you for your time and attention to this matter….. Sincerely……Cheryl Thornton

• D Johnson // Jul 1, 2004 at 11:12 am

  I have been on neurontin for 7 1/2 years. I take it for muscle pain “fibroymalgia” and anxiety,depression. I have all the symptoms described and have lived with them for the whole duration. My doctor says it is just normal and would I want this or live in pain again. The answer is no. He never told me it was a narcotic, I asked if it was addicting and the answer was no. I have had three pairs of glasses and not matter if I read or drive or watch t.v. for a time my eyes go blurry and no focus and terribly strained. THey say the anxiety, tired,tremor,fatique,headaches,drowiness,clumsiness,cough,light headedness,constipation and the opposite of that,dificulty speaking and whistling,walk like a drunk and cannot remember-the day before - my typing is hard to my hands they seem do move when I am not asking them to - major weakness,unsteady walking and heart pain. When this pain hits I feel like I am having a heart attack. How can I keep going. This is normal for awhile then goes away, NOT! I think after this amount of time some of them should of subsided. I feel I am dying slowly and the doctor can only say, “want these side-effects or fybromyalgia back. I am the scissors between paper and a large terrifying rock. Please, someone help me. My second opinion was just as rude. You have depression- its in your head!

  sincerely, terrified!

• d johnson // Jul 1, 2004 at 11:20 am

  why does not one display emails? how can anyone get ahold of anyone if there are none. would like to get on the lawsuit- i have been on before, this is outrageous and I am dumb-founded at the whole ideas that we were guinea pigs to this whold process. My tears are so angry, my mind so clouded, my heart in pain. djohnson

• debbie bradley // Jul 11, 2004 at 1:51 pm

  i have been on neurontin for diabetic neuropathy since feb. 2004. so far, it has worked wonders for me. the only side effect i seem to be having is vertigo. has anyone elde out there taking it for diabetic neuropathy experienced really awful side effects?

• wayne sayers // Jul 16, 2004 at 7:02 pm

  i was on nuerontin for a back injury.i started with a 500 mg dose i was instructed by my doctor to increase the dosage to 1000 mg. when i increased this doseage as instructed i found my self being depressed and my girl friend ask my to do something and i snapped. i was told the i had her by the throat and put her head through a cabinate window and then put my fist through it after i let her go. this after all that happened i was sitting on the floor crying my eyes out. fearing i was gonna lose everything. and i almost did because of this drug.

• scott // Jul 19, 2004 at 1:07 pm

  Wayne, perhaps you should have an evaluation, sounds like the problem is not anything having to do with nerontin, But I would like to know how you got such a strong opinion that it is. Sound like it may be a plea for forgiveness, more than a statement against neurontin. The medicine is not known to create blackouts such as the language you used led me to believe you had. Alcohol in combination with neurontin may produce this condition at a lower rate usage than neurontin alone. I have taken up to 1800 mg per day with no evident side effects, I am in treatment for clinical depression, it certainly has done nothing to worsen my condition, in my recollection.

  Cheers,

  scott

• Lisa L. // Jul 24, 2004 at 9:07 am

  My mother-in-law commited suiced a week ago and we are all so devastated. She was taking Neurontin for the neurapathy in her feet following her back surgery. There were no signs that we noticed leading up to this. Her daughter just found her outside late in the day. She had shot herself. She was always so positive and grounded. It is just so uncharacteristic of her to do something like that. She loved her children and grandchildren SO MUCH. We just recently heard something on t.v. about Neurontin being linked to suiced. Maybe this is the answer we have been looking for because we just want to know WHY. We are awaiting toxocology report. Good luck to all of you out there. This drug is bad news from what I have read here…

• sandra shaffer // Jul 26, 2004 at 10:36 am

  i wrote a article earlier and like i said before my daughter was put on neurotin because she was well known to have seixures quiet often and the dr didnt believe my daughter and said she was depressed and all he prescribed for her was neurotin 900 mg and it didnt help my daughter at all she went on a field trip with the school and i had to drive that night for 3 ours to get to her cause i got a call that she was in the emergency room there and was in a coma tose stage and the dr at that emergency room put her on tregratol and told me to call her dr whn i got back home and i did and he said he would see her at her next scheduel appt which was still like a month away the neurotin didnt do anthing to her but make her have mood swings bad and put weight on and she couldnt think clearly and made her very tired could some one let me know who the layers r that is handling the neurotin claims so i can see if my daughter has a claim since she was prescribed neurotin by its self to control tonic clonic seizures and other seizures as well ty

• TS // Jul 26, 2004 at 5:12 pm

  I am widowed. My husband was prescribed Neurontin and when it didn’t make him better, they increased the dosage… when we couldn’t afford it, the doctor gave him the samples provided by Pfizer’s sales reps. My husband became very uncharacteristicly hostile and commited suicide. I wish that I had this information when he became so hostile, I would have flushed those pills down the toilet where they belong.

  I was prescribed neurontin also, when it didn’t help my pain, I quit taking it. Too bad my husband had faith in the drug company’s claims.

• David Phillips // Aug 8, 2004 at 8:48 pm

  Neurontin has been a lifesaver for me, literally. I had a serious facial injury in 2000, and ended up with a crushed infraorbital nerve because of botched surgery. The intense pain and burning sensation were to the point of being unbearable. Until my injury and the botched surgery happened, I could not believe that anyone could be in so much pain that he/she would consider suicide as a way out. Then, all of a sudden, I was one of the people contemplating suicide.

  Fortunately I found a pain management specialist that started me on Neurontin, 3000 mg. daily, and later added 300 mg. Topomax. The Neurontin and Topomax combined have given 100% relief from the intense burning, while other meds take care of the extreme pain. If I reduce either the Neurontin or the Topomax, the intense burning returns, so it is the right combination in the right dosage.

  I am a strong advocate of Neurontin for certain types of pain, even though it is off-label. However, I was told ahead of time that it was off-label and I was given a choice to either take it or not. Under the circumstances I chose to take it. There are other medications that are be prescribed off-label to which I am adamantly opposed.

• michelle // Aug 11, 2004 at 8:12 am

  I am totally over whelmed by what I have just read. I was prescribed nuerontin about a month ago due to neck injury following a car wreck. I had only been on the drug a couple of weeks when i saw an advertisement about it. I called 800# and needless to say I stopped taking the drug after finding that it caused depression and suicidal thoughts. In the short time I took the drug I had several symptoms described in the info. I have read. I can’t believe that me doctor was co irrispondsible. I have since switched doctors because I no longer trusted him after he gave me such a dangerous drug.

• Silver Sable // Aug 16, 2004 at 1:51 pm

  I will never understand anyone who takes any drugs, herbs, or supplements without first READING about them. For everyone here you have a world of resources at your fingertips. Even if a doctor prescribes it… READ ABOUT IT FIRST! BEFORE YOU FILL THE PRESCRIPTION! You will find more quality information from real people with real side effects and you can see common problems and at least be warned.

  Every drug has a purpose, but taking soemthing that you have no idea what it is for because “a doctor gave it to you and they must know what they are doing” is NEVER the right answer. Take care of your body and it will take care of you.

  And even this drug has its positive stories. Major drug companies and corrupted or lazy doctors are to blame for this problem… don’t blame the drug. I also feel it is every person’s responsibility to read before you consume.

• Jerry // Aug 24, 2004 at 11:05 pm

  Been taking Neurontin for three months with no problem, no depression, and no suicidal thoughts. I believe it’s a bunch of hype from over-emotional people misplacing blame.

• Pamela Lopez // Sep 2, 2004 at 1:47 pm

  I saw the advertisement on TV, this am early, and I take neurontin…or Gabapentin, as my bottle says. I didnt get the 800# to call….can some give me that #, I would like to call….Thank you, Pamela

• Linda Day // Sep 7, 2004 at 11:14 am

  I took the drug Neurontin and Zyprex for several months in 2001 and 2002. Please contact me on my rights to file a claim for these drugs. Iam a resident of Mississippi.

• douglas dearry // Sep 20, 2004 at 9:43 pm

  i have taken neurontin for 4 yrs at 3200 mlgs a day for bipolar and nerve pain along with 900 mlgs lithioum day and2000mlgs depakote and30mlg valium and 300mlg welbutrion and 150 mlg a lexapro day .on aprial 1 2003 i tied a rope around a beam in my garage and jumped .when i awoke i was met by police and doctors at the emergency room .i spent time in a mental hospital for a couple weeks .i had expressed my concern to my doctorbefore this suicide attemt happened many times stateing how things did not fill right and how suicidal i was .the bad thing about it is i am still takeing 3200mlg a day of neurontin .my only advice to anybody takeing neurontin is if you value youur life dont take itttttttttttttt………. my emotionts still tell me my family would be beytter off without me ,but my mind is fighting so hard not to do something such as end it all but all i can do is carry on from day to day and see what tommorow holds life or death .think twice about neurontin because i use to be a normal person and never had a bad thought thank you douglas….lost in reality.

• Kathy, Calif // Oct 5, 2004 at 1:25 pm

  I have been prescribed Neurontin for many years. I had a tumor in my sacreum and it was not removed for ten years. The Neurontin has been the only pain reliever that I can count on. All other perscrible medications like vicadin are habit forming and considered a narcardic. Neurontin by it self can be very effective without the side affects I am reading here in this discussion. I strongly urg you all to reavaluate the side effects your are experiencing as a result of the combination of drugs you are taking. Make an appointment with your doctor for a Consultation meeting, different from I have a cold, or flue syptoms appointment. Let the appointment setter know to note that you are going to be there to re avaluate the medications you are on. I urg you all to pull off the internet discriptions of your drugs.

  There is one thing I am sure of doctors do not have the time to keep up on all the drugs, combination of drugs side effects. WE have to be a PARTICIPANT in the management of our health!

• J. Powell // Oct 7, 2004 at 4:42 pm

  I have been taking Neurontin for over a 1-1/2 yr. and within the last six months have started having inexplicable swelling and pain in my ankles, lower legs, knees. This gets severe and then gets better then gets bad again. It was an off-label use for pain in my neck and upper extremities after an accident. Please contact me if you are a Texas or Houston, TX attorney handling this type of litigation. I understand there is a class action and want to know if it is too late to file a claim. Thank you.

• Carolyn McFarland // Oct 28, 2004 at 11:41 pm

  I have neuropathy and have been taking neurontin for almost 3 years now, I have a lot of pain in my feet and hands. The neurontin does seem to be the only thing that works with Topamax and Tramadol. I have not heard anything on this class action suit, only that it was affecting people with some kind of a cemical inbalance, is that true or am I way off? Can someone fill me in on this, I have seen nothing on TV just word of mouth. Thanks.

• Mike Webber // Nov 8, 2004 at 8:54 pm

  My daughter has been on neurontin for over three years for RSD. Is there a class action suit. What is our recourse?

• Sandy Jones // Nov 27, 2004 at 8:47 pm

  I was prescribed neutrotin for hot flashes and I’m also on Femara because of breast cancer. The last month or so I have been experiencing periods of depression. I can’t decide if it is because of the body & muscle aches from the Femara or Neurotin. I discussed this with my pharmacist. He doesn’t think the muscle aches are caused from either medicine. I’m taking effexor - anti-depressant… I need the neutrotin to control my hot flashes. I’ve been told there is nothing else on the market that does not contain estrogen for hot flashes. If the neutrotin is causing my depressive moods, what else can I do?

  I haven’t been told or seen any class action suits because of this medicine, but I’ve been told my cancer was caused from Premarin. THat’s why I can’t have anything that contains estrogen. My cancer was estrogen related. Should I try to sue the pharmacy company? How many other women have gotten cancer because of that drug?

• Teresa Mikeal // Dec 6, 2004 at 7:07 pm

  My name is Teresa. I have had trouble being sleepy (sleepy and can’t sleep) and tired and depressed after taking Neurotin. It made me nervous and ill to everyone. I’ve been off of it since

  August, but I still feel like I’m taking it or still have the side affects from it. I have insomnia, terribe. It started when I took Neurotin in Oct. 4, 2002. I wished I would have never taken this drug. Can someone tell me how long the effects of this drug will last.

• Kayla Potega // Dec 11, 2004 at 3:10 pm

  Do not take this drug! I am 15 and i think this drug caused peralisis to my legs and many other problems. DO NOT TAKE THIS DRUG IF YOU ARE 21 OR UNDER!!

  this is a warning!

• angel c. // Jan 19, 2005 at 10:04 pm

  After reading all of these comments on neurontin I am left wondering. First of all I have many conditions for which the drug could be prescribed; nerve damage neurapathy,seizure disorder,panic disorder,depression,recently diagnosed diabetes,osteo-arthritis and other medical condtions; asthma,PTSD etc. I have experienced some of the mood swings mentioned but they where present before I began taking neurontin.I am well informed about all the medications I consume.In some of these mentioned cases there could have been medical conditions, or mental health disorders not ever diagnosed.I think the only way to be certain is to have competent professional help;intensive councelling,extensive physical testing and, 2nd or 3rd opinions before taking anything into the body.The unfortunate reality is that each individual body reacts differently to each drug,each councel,and past enviornmental factors. There is always the unchangeable genetic affect.I am still in pain.I had back surgury 9/3/03.Bone was growing on the inside of my vertbrae squeezing my spinal cord off.It took them 7 years to finally go inside to see what was going on.Meanwhile neurapathy took over my whole lower body.I was nearly paralysed by then.I have 4 screws in place there.I’m only 48 years old and I have gotten every negative gene I could.I am very sorry for those who have lost loved ones but I’m not convinced that only neurontin was at work in those cases.I am desperately seeking any other strong relief for my pain. If anyone knows of anything that could help please contact my E-mail at aciunci@AOL.com

• Noemi // Feb 11, 2005 at 12:45 pm

  I am looking for legal assistance because I took a medication that was given to me by my doctor at the pain management center. This drug is Gabitril(neurontin) made by Cephalon. I recently found out that it is only for epilepsy. I have never had epilepsy. I ended up in the hopital emergency room after suffering several seizures. I was unconsious for several hours, and was severely disoriented and could not talk or remember my own name. Cephalon is responsible for attending pain management conferences and promoting Gabitril as a pain management medication. I just hope no one else has to go through what I did. I now have haeadaches and ongoing tremors in my hands and sometimes my head. Please send me more information.

  Posted by: Noemi on February 11, 2005

• Marguarite