Olympia, WA – The Washington state Attorney General’s Office is leading a national investigation into whether Pfizer illegally marketed Neurontin, an epilepsy medication, for “off-label” uses — meaning for uses that the FDA has not approved. Assistant Attorney General David Waterbury is leading the investigation on behalf of 47 states and the District of Columbia.
Doctors can legally prescribe drugs for off-label purposes, but it’s illegal for drug companies to market them that way. Washington Medicaid spending on the epilepsy drug increased more than tenfold from 1996 to 2000.
(via The Associated Press)
{ 112 comments }
As a patient, I’d like to join a class-action suit against Parke-Davis/Warner-Lambert Co. for off-label uses of Nuerontin. I live in PA, but know others across the country, who also were given nuerontin for off-label uses to no avail. Anyone know where I can join such a suit, or anyone want to represent consumers for such a suit? (No “legal plan” scams or “spend money for possible help” scams need contact me.)
i am looking for the ENTIRE DATELINE ARTICLE ABOUT THE WOMAN WHO TOOK NEURONTIN AND HAD TERRIBLE PRLOBLEMS WITH IT…It was the July 11-12th Dateline edition….
I cannot seem to find it on your website.
Brenda Annichiarico (former Neurontin patient)
The story that Brenda was looking for is on the web at : http://www.msnbc.com/news/937302.asp
I was wrongly convicted and sentenced to Hard Labor for Life. Having spent several months on remand I was trialled by the then GMO & later Chief, Dr Douglas Wilson (deceased: with respect)on various and different medications in the search for a control and or cure for the diagnosis of Epilepsy. Many of the medicines made me violently ill and some induced seizures. Dr Douglas Wilson perservered and finally discovered a ‘combination drug’ comprised of Zarontin, Prominal & Valium. Whilst this may appear to be a rather old remedy as some doctors have stated in attempts to trial more innovative designer drugs on me, I can only say one thing- the combination worked! During two decades of imprisonment I was constantly threatened over the years, with “If you don’t take your medication you will NEVER BE RELEASED! You will NEVER GET OUT!” “The Pollies want to KNOW that if they release you you will take your medication!” One Psychiatrist threatened me and abused my wellbeing to the point of bringing about the process of my actual dying in relation to the administration of drugs. Many years later- and having been on parole for a further twelve years during which time I have completed a University Degree with a Double Major and am currently furthering Tertiary studies, I have have had an ongoing battle with GP’s who have either refused to prescribe the medication I have needed or who have attempted to change medication in order that they trial newer formulations as opposed to securing my well-being. Earlier this year after more than a decade of fighting to get basic medication, I found that one followed by two lots of medication were not available. Most people of course would simply lay down and die. I called PFIZER Australia only to find that, Zarontin was no longer available in Australia ‘Because we donot have anyone to MAKE it!’ Shortly after this revelation I was to find that Prominal was taken off the market. I was unable to take one drug with out the other because of the interactive success of the combinatorial nature of the anti-convulsant. I contacted a solicitor, doctors and Pharmacist the latter of whom dealt equitably in attempts to rectify the apparent problem. PFIZER however, evades responsibility for the overnight deterioration of my health that has undermined the very quality of my life. That I allegedly committed a crime as a result of not taking such medication (although this is not true) and that the Queensland Criminal Justice saw fit, all be it wrongly, to use medical treatment in a court of law to convict me followed by endless threats based on medication, only to find that I am forced through no action of my own, to NOT TAKE the required medication as a result of PFIZER AUSTRALIA’S unsound ETHICS and MAL-PRACTICE, is a further grave injustice to me that trespasses HUMAN RIGHTS.
I can be contacted by email ayanadasi@hotmail.com
Or in writing:
Karen Tonkin
PO Box 9138
Slade Point
Mackay Qld 4740
Supporting Criminal and Social Justice & Opposing the Violation of Human Rights and Well-Being.
Cheeers
KAREN
I saw a notice on channel 26 chicago channel and did not get the full story abour neurontin.
a doc prescribed this med because I have muscle cramps mostly in my legs
and maybe damaged nerves. Of course there has not been a definite diagnosis. I read the insert, looked it up on internet. I did not understand why give me precription for epilepsy. I did not have the prescription filled because my instinct guided me not to.
I would like to know what is with this drug? I research every thing that concerns me.
My Doctor prescribed this on two ocasions. How can I join this lawsuit.
I am presently on Nuerontin and am experiancing a suicidal feelings and have been so down.
I was put no neurontin about 5 years ago I have been in and out of the hospital so many times I’ve been on life support 4 times and doctor’s can not find out why. I really need to tell you my story.Im taking 800mg 5 times a day.I need help. please reply to my story.
THANK YOU
I was prescibed nuerontin 900mg doses for bi-polar disorder, which by the way I do not have. I was in and out of the psyc ward the entire time, feeling extremely agitated. I also heard about the class action on television but did not get the whole story if anyone has information please contact me. Thank you
im totaly in the dark here!its 10/22/03 and im just finding out all the info on neurotin.ive been taking it for 2 1/2 years now 2400mg daily.it has changed my life completly.i have severe short term memory and i cant function without it,ive never had sucide thoughts but have had some depression.i dont understand what the term “off-label” means can you please explain to me what is going on?im very concerned about these side affects.i live in a very small community and my doctor proably doesnt even know about the drug and the effects.i also would like to talk to some other long term user’s about their lives while taking this drug.please respond asap im very anxious to here from someone about this matter.feel free to email me at any time.sissy from,virginia.thanks
I have been on neurontin for only 1 year now. Prescribed to help with neuralgia pain and tremors, as some of my symptoms of fibromyalgia. In just this years time, I have gone from 200 mgs-3 times a day, to 800 mgs-3 times a day. No help with the pain. It doesn’t come close to touching my pain! But my dosage just keeps going up every time I have an appointment with my neurologist. I can hardly motivate on this high dosage. But that is what he prescribes. No pain medication, because he doesn’t want me to get dependent on them!! Well, imagine that! Now I am stuck on the neurontin, which doesn’t help, and I just can’t quit taking it because of the danger of having seizures! YES. We need a suit against this product! And YES, I want to be a part of it!
Thanks,
LaDonna Miller
1288 S. Hardin Rd.
Harrod, OH 45850
I just found out that neurontin could causes suicide. Last week, my son attempted suicide by overdosing on his Neurontin, prescribed for migraines. Please help me find any information that could help us. Could it really be the Neurontin that made him suicidal? Please contact us soon.
Writing on behalf of my 19 year old daughter who is in jail for assault and battery. While taking Neurontin for bi-polar, she became very aggressive and eventually found herself in trouble with the law…completely out of character with zero previous violent episodes until put on this med. Is there any info on neurontin and aggression?
I have been taking Nuerontin for over a year for tarsal-tunnerl & carpal tunnel pain, dosing up to the 800 mg daily took several months and several hundreds of dollars. I was very optimistic that eventually, I would notice some benefit. During this time, I never reached the dose level did any good for my “problem”. The only benefit I recieved from the drug was a good nights sleep. Unfortunatley, I couldn’t shake the sleep off in the day. Finally I could take it no more, and simply ceased taking the drug. I suffered an agonizing 3 days of migrane headaches and the shakes. But now, I and my wallet, are feeling much better.
I was prescribed NEURONTIN for “Anger Control” in January 2001….3,600mg per day.
Now, three years into it my ENTIRE LIFE IS IN COMPLETE DISSARAY.
I am PHYSICALLY ADDICTIED to NEURONTIN.
I have IBS due to Neurontin
I have a WELT TYPE RASH that appears spontaineously on different parts of my body due to Neurontin.
My simple “Anger” turned into UNCONTROLLABLE ANGER, RAGE & HOSTILITY……….WITH NO REMORSE.
My (new) Doctor had to put me on PERMANENT DISABILITY due to Neurontin.
I have “weened” myself down to 800mg per day……….I wait until the “Witdrawal Symptoms” set in…….about 6-8 hours……..low and behold the “Withdrawal Symptoms” subside in 30 to 40 minutes.
For me, there wasn’t a “high” or “feel good” with Neurontin, so I would often “forget” to take it……..UNTIL THE WITHDRAWAL SYMPTOMS would set in. This is when I KNEW that I was Physically Addicted to Neurontin.
Each & every Doctor, Nurse & Healthcare Provider, dismissed my “complaints” and my “attributing” them to Neurontin………..until NOW.
I was even FORCED by my new Doctor to take weekly “drug tests” for illegal “street drugs”………all of which were NEGATIVE.
NOW, my Doctor BELIEVES ME……….AND so does the rest of the Psychiatric Community I belong to.
NEURONTIN SUCKS……….IF PFIZER, thinks I will just “Go Away” they are WRONG………..I WILL DOG THEM ‘TILL THE DAY I DIE.
They took my LIFE from me.
I will NEVER be the “same”.
I will FOREVER be an “Addict”.
THOSE SCUM DRUG GIANTS.
I have the MSNBC Dateline Transcripts. They are included in the “Paper” I have written.
If you want a Copy please email me at mail4debbie@sbcglobal.net
Your 19 year old daughter is INNOCENT.
I know, because it happened to me.
Neurontin CAUSES Uncontrollable ANGER, RAGE & HOSTILITY………ACCOMPANIED BY NO REMORSE.
Although I was not “Arrested”, I did cause SERIOUS BODILY HARM to another human being.
I am a 48 year old Mom, who has worked all her life.
I am now on PERMANENT DISABILITY due to Neurontin.
All “other” medications have been ruled out by my Doctor, BECAUSE I DON’T TAKE ANY.
My Doctor was even “forced” to make me “Drug Test” for “Illegal Street Drugs”………..ALL NEGATIVE……..I DON’T USE STREET DRUGS, but I did “understand” her need for eliminating ALL OTHER POSSIBLE FACTORS.
NEURONTIN HAS RUINED MY LIFE.
I WILL FOREVER BE AN ADDICT.
I WILL NEVER BE “THE SAME”.
Please email me………I am “concerned” about your Daughter.
My son is 24……..he too was placed on Neurontin……..but he is soooooo intelligent, that he “knew” something was WRONG………..he stopped taking Neurontin about 8 months ago………he is STILL feeling ill with the “side effects” of withdrawal.
PFIZER………I’M COMING TO GET YOU.
I am currently taking 2000mgs. of neurontin daily.And like many others I have read about,I too have noticed these terrible side affects.Although like some,I wasn’t sure of the cause.I desperatley need some answers. Please contact me and give me more info. as well as someone I might contact. ASAP
I am currently taking 1200mg of neurontin a day for bipolardisorder. I was at one time up to 3200mg a day, until i was hospitalized for a psychotic episode when i ran out of medication and started to withdrawl, in which my boyfriend had to call the police and I tried to grab an officers gun in order to get them to kill me so i didn’t have to do it myself, upon arrival at the ER the dr’s refused to administer the dose of neurontin i was on stating it was just too high… I am now suffering from blinding headaches, muscle and joint pain, blurry vision, severe depression, and I also have seizures which i have never had prior to the withdrawls. I have lost my 2 children, my husband, my job of 5 years, and i feel my health and sanity.. yet I can’tstop taking the drug because I fear hte withdrawl once again.. By the way pfizer pays for my neurontin as part as a “medication assistance program” through my mental health center. Basically I have been used as a guinea pig in a medicine trial. None of this added up until now. please someone e-mail me with an attorney or firm handling this case.
Zaraglittergirl@sbcglobal.net
I had been on Nuerontin for a period of 3 years. I recently stopped taking it but still hav ad man y problems. In that period of time I have had multiple violent and uncontrollable rages. I attempted and succeeded to harm myself by beating walls and objects. I was in two physical altercations that took many people to control me. I became emotionally and intellectually unstable. I was removed from a career advancement course because of instability, emotional outburst, anger and finally a blackout to where I couldn’t rememeber where I was and didn’t show for school. I have since had two to three more blackouts. I am unable to remember simple things or read and comprehend instructions I have short term memory problem and I have begun to stutter. I have been hospitalized for anxiety attacks and now have to go to psychiatric care. I have lost my marriage because of the anger and outbursts and now have a very short temper and prone to voilent outbreaks. My children have become afraid that I may snap. Now my military career is in jeapordy as I may lose my rank from the problem I had in school. The prescription was given for pain mgmt. I now find myself cursing and screaming, I throw things and have destroyed many doors an walls and broken many objects. I cannot cncentrate and find my mind drifting and my thoughts turn to dying. I have been afraid to tellan yone about teh suicidal tendencies because I am military and may lose my career. Can you imagine giving me a loaded weapon on a range. I have another friend who is in teh same situation and is now being medically boarded and losing hi career. I am not being offered any compensation because no one believed there was any problem. I may lose 17 years because of actions I have done while on this medications. Anyone who has a legitimate referral to assist me in finding reprsentation please contact me ASAP. Time for em is running out.
I was put on Neurontin (300mg 3x a day) for the past 6 mos. I was on it for Migraine pain. I was healthy before, but since then I’ve had extreme feelings of suspicion, paranoia, low-self worth and even thoughts of suicide. I drove my partner crazy with accusation of infidelity and other extreme behavior. I went off Neurontin very recently and my emotional outbursts, feelings of anger and paranoia are gone. I am left with thoughts of how this drug could be put out on the market without any studies or side effects. My life is left in shambles with only myself to pick up the pieces. I will never rest until the makers of this drug pay and pay dearly for the pain they have caused not only myself, but of my loved ones. I will see to it that a lawsuit will follow this posting of my comments.
After reading these comments that are on here of the side affects and everything, it makes me realize what happened to my husband. He too was on Neurotin and he became abusive and psychotic. This explains why since he became someone else and not the man I met. He died 12-26-2000. Of an accidental drug overdose of Neurotin and left me with 3 children and alot of debt considering the man was only 35 at the time. I really loved him and will never love anyone else like that again. He loved his children who now are psychotic due to thier fathers death. I hope they do something about this for all the other wives and children and even husbands out there if anyone knows what I can do please e-mail me. diannagalligar@aol.com
After reading these comments that are on here of the side affects and everything, it makes me realize what happened to my husband. He too was on Neurotin and he became abusive and psychotic. This explains why since he became someone else and not the man I met. He died 12-26-2000. Of an accidental drug overdose of Neurotin and left me with 3 children and alot of debt considering the man was only 35 at the time. I really loved him and will never love anyone else like that again. He loved his children who now are psychotic due to thier fathers death. I hope they do something about this for all the other wives and children and even husbands out there if anyone knows what I can do please e-mail me. diannagalligar@aol.com
i have taken neurontin for 18 months after stopping the medications i have developed sever headaches , memory loss, studdering , and blackouts this was never told to me that this could happen. i was given the drug to relieve pain fron a foot injury. i wish i knew then what i know now about this drug . there are times that im a raving lunatic yelling and screaming at my kids and then crying episodes wishing i was dead this is no way to live is there hope after neurontins
Like Caroline Petroski, I would like to join a class-action suit against Parke-Davis Warner-Lambert Co. for off-label uses of Neurontin. I live in Illinois. Does anyone know where I can join such a suit? No scams, please.
In response to , First, I would like to “Thank You” for dedicating your life to Serving & Protecting The United States of America.
For “That” alone, you are to be Commended………..But, after ALL YOU HAVE DONE FOR YOUR COUNTRY, you’re going to tell me that “Your Country” is going to “Turn Its Back On YOU”????????
OVER MY DEAD BODY!!!!!!!!!
This Neurontin “Situation” is NOT YOUR FAULT………WE WERE ALL LIED TO BY PFIZER, a.k.a. Warner-Lambert/Parke-Davis.
YOU ARE INNOCENT…….I have “Mountains” of EVIDENCE PROVING that Neurontin CAUSES UNCONTROLLABLE ANGER, RAGE & HOSTILITY…….WITH NO REMORSE.
I am on PERMANENT DISABILITY due to the use of Neurontin. I have worked ALL MY LIFE. NOW my life is in RUINS.
My Friend, this is a WAR ON NEURONTIN……and I’m “fighting” it right here on our own soil.
I GUARANTEE YOU WILL NOT “LOSE” YOUR MILITARY BENEFITS…………this is NOT YOUR FAULT…….I HAVE PROOF.
I will go before ANY GOVERNMENT ENTITY who will ALLOW ME TO TELL THE TRUTH ABOUT NEURONTIN.
It is my “Mission”……It is my “Purpose”………..I will NOT grow weary in my Pursuit of Justice.
I have never, in my entire life, seen one Drug wreak such havoc on so many.
Stop worrying about “time limits” for filing a Lawsuit……..and the Government should, and better, appoint you a Lawyer……..after all, isn’t it the “Government Doctor(s)” who PRESCRIBED YOU NEURONTIN??????
I urge you to go to the FDA’s (Food & Drug Administration) website and file an “Adverse Reaction” report……I did……It’s the ONLY way the FDA can protect us and regulate the Drug Manufacturer’s.
Attorney’s “Monitor” the FDA Adverse Reaction site ALL THE TIME……searching for HUGE MEDICAL ADVERSE ANOMOLIES.
But, be smart, and remember, it is AGAINST THE LAW for an ATTORNEY to Solicite Business……so if someone, claming to be an Attorney, contacts you, just “beware”.
There is also a website called FindLaw.Com. I used to use it when I was a Legal Secretary.
You can find out just about anything on an Attorney………and there’s MOUNTAINS of information at that site also.
WE WILL STAND BY YOU……WE WILL STAND UP FOR YOU…….YOU ARE NOT ALONE.
You deserve better from our Government. You should NOT have to “Fear” our Government………if you do, then “that” needs to change.
I understand the Military is a “separate entity”…….in other words, you are not a civilian and must live by a “different” set of rules.
But, that STILL DOESN’T GIVE THEM THE RIGHT TO TURN THEIR BACKS ON YOU.
Trust me, they wouldn’t get “Away” with that type of treatment towards one of our Dedicated Soldiers………the “Public”, when they hear the TRUTH, would not “tolorate” that type of injustice towards one of our “Troops”. Especially NOW, when Society is Proud to Back our “Individual Soldiers”……..no matter what anyone’s “view point” on the War may be, we still want our Troops to be properly taken care of, and properly compensated for, PROTECTING AMERICA.
YOU ROCK!!!!!!!
To add to what Debra said about the adverse event reporting to the FDA, it is important that you also send a copy of the report to Pfizer. Unfortunately, not all of the reports that go to the FDA get back to the manufacturer. It is also important to indicate on the form that it is being sent to both the FDA and the manufacturer. This will keep the reports from being duplicated. I am currently in the process of analyzing the FDA data. The more data, the better. To give some of you statistics from the data here are some counts of reactions:
Depressions About 200
Suicidal Ideation About 85
Suicide Attempts About 85
Suicides About 45
This data is through the end of 2002. It is estimated that between 1 in 10 and 1 in 100 adverse events actually get reported. Therefore these numbers may be much higher. That is why it is so important for you to send in MedWatch Reports. Here is the link to fill out the report online for the FDA: https://www.accessdata.fda.gov/scripts/medwatch/
In the interim, I am continuing to analyze the data. Anyone that would like more details can contact me at altmanm@optonline.net
how do we get better does anyone have any suggestions i have been off them for a couple of years but the syptoms are getting worst more headaches and the studdering is getting really terrible please help
I’m extremely interested in this lawsuit because I was given this drug at 300mg, 3 times a day and have had a well known serious bi-polar disorder and was never informed that it would negatively effect me. Not knowing what was wrong at the time, I held a loaded gun in my mouth hoping to end the awful suffering I had, but I prayed and held on not even knowing why I wanted to end my life so desperatly. I feel very strongly the Neurontin was that reason, and I think the makers or distributers should be held 100% accountable for the years of misery I and my family went through. It truly was agony every day and it should be stopped. Please contact me if there is any possible way to enter this lawsuit against them, my life was almost ended over this drug, and someone should be held accountable. Thank You for listening. Tammy L. Herman
Rose, Speech therapy can help with the stuttering, however, noisy situations, situations requiring alot of concentration, will make speech more difficult. (It also makes thinking more difficult) the specialist I have seen believe it is because the Central Auditory Processing part of the brain as been damaged, there fore the harder it is required to work the more it slows down and eventually stops. I also have a great deal of difficulty on the phone and with numbers, (we are working on this in speech) Try to visualize things you need to remember, carry a tape recorder for taping conversations, doctor’s appointments, etc. anything that you need to remember later.
One of the best suggestions I can give you is to have a really good pair of ear plugs made (they can be fit for inside your ear, and are very descreet) – wear them in public (malls, etc, resturants, rooms full of people)
they do not prevent you from hearing the person next to you but they do filter out some of the background noise – I have found this helps me to be able to speak better and concentrate a little longer. It’s not perfect but it does help.
Situations with alot of visual stimulation have also have a similar effect.
The headaches I can’t offer suggestions for, I have them too, sometimes sharp shooting pains in my head. and I have a pressure that builds in my head when I am trying to do too much, concentrate, etc. They only thing that helps is to take time to lay down and rest. I have also have migraines with double vision, light sensitivity and vomiting, I havent had much success at helping them only riding them out with advil and gravol. (As you proubly understand I am really scared to try any new drugs, for migraines, cronic pain or any thing else for that matter.) Neurontin has changed so much of my life – not for the better.
If you are having memory problems, I have also worked out some”tricks’ to help myself. Let me know. I think we all need to help each other. The feelings of depressions, lack of self worth, etc. are fought on a daily basis.
If you can get a good support system of loved ones, family etc. it will make the biggest difference. Some days I am so miserabe to be with it is like I’m trying to drive them all away ( but they are standing my me, so far)
When I read your first letter I printed it off and showed it to my husband, you described how I feel. Knowing there are other people out there that are struggling, and talking back and forth helps. Don’t give , keep pushing yourself (I had to relearn to repeat words, sounds, talk, manage a house, cook meals, and am still working on basic daily living skills)
I still have trouble reconizing when I am blowing things all out of proprotion, when I become confused I don’t always reconize that I am mixed up , I just know that I’m very agiated, can’t speek and can’t figure out what I’m suppose to do – so I react by crying or screaming at about whatever/whoever is there. Now that I realize this , I’m trying harder to walk away, even if it is just to go cry in my room by myself. It is no fun for any of us (myself,my husband, or my three children.) My doctor has convinced my to try one drug (1/2 a pill in the morning and 1/2 a pill at 3:00 to help me cope, I have only been doing this five days, but they have been the best five days in five months.
Although since I have made everyone in this house miserable for weeks now, and it has been pointed out to me several times, I am trying harder to remove myself before I scream and start things.
(even though I know in my head this is not my fault – my personality and whole life changed after taking neurontin , I now have to live with the guilt too, when I make everyone elses lives miserable, I get awfully tired of saying I’m sorry all the time)
I’m sorry to take up so much space – hope this helps someone, and any thing any one else can suggest would be appreciated. Don’t forget to pray, be good to yourself and do good things for others, even when it is the most difficult for you it WILL HELP.
God Bless, Wendy
I was prescribed nuerontin to help with obsessive compulsive disorder, but I recently learned that it’s an epilepsy drug. Does anyone know why on earth I was given this drug, and so much of it? I’m currently taking 900 miligrams per day. If I don’t take it, I can’t fall asleep at night due to anxiety. If anyone has any information, or knows of any websites that could help me, please contact me.
My daughter (now 17) was put on neurotin, 800 mg tabs x 5 per day. The only side effect (recently) is facial breakouts (stye in eye, and an open sore under her nose) which has left her skin pinkish red in color. She has been on it for about 4 years.
I was first perscribed nuerontin in 1998 as a migraine prenative. they took away the only pill that stooped any of the pain. Telling me that pill was causing rebound headaches, I suffer from daily chronic headaches as well as severe migraines. As time went by the Drs. increased the nuerontin for daibetic nuorpathy and for my Bi-Polar disorder. My memory worsened, I could not read a book like I used too. My moods went wild and out of control. My husband told me ther was just no talking to me any more that I needed to be committed. That infuriateded me more. I had no clue what was going on. The side effect of a drug causeing all of this??? Then I started waking in the middle of the night and could not move my legs on their own and the drs could not explain it. Xrays, cat scans, MRI’s no reason for me not to move on my own. sleep study that showed and irregualr heart beat so off to the heart specialist i go. Then thay do a angogram on me and see my heart is fine but cant explain the irregular heartbeat. How can a 43 yr old woman be on total disability from Bi-polar, arthritis, diabetic, and now irregular heart beat, Now I have kidneystones every year at least once a year. I dont want to live, I have tried three times this year to kill myself, first time was in january with a plastic bag over my head, I passed out and woke up. Second time my husband fought me for all the knives I was trying to use on my wrists. then the last time I took 120 glucophage xl. I am only alive now because my freind called the ambulance and told them I had took those pills. Once I got out of the hospital I saw and ad on tv about nuerontin. Why was I not told about the side effects before? How could a company be allowed to push and lie about a drug this way. Is our lives this unimportant to them. Is the almighty dollar really all that matters. Do they realise the hell I have been through since 1998 since I started this drug. The nights I cant sleep, The days I am here wanting to die. Will I ever get my life back? Will I ever be normal again. Why were they allowed to do this to all of us??? I am in Texas and I want to know if there is a lawsuit and who to contact. I am a rape survivor, but to be raped by a durg company like this really is the worse thing I can imagine. They are supposed to be trying to help us get better and see if we can lead better lives, not this horrible hell that we have been leading. Anyone who can or is willing to help me Please drop me a line.
Thank You So Much
God Bless You all. Lets Make sure they STOP ABUSING US!!! We are not a bunch of lab rats for this company to play with.
I’ve been taking 4800-6000 mg per day of Neutrotin for anxiety and feeling like ending it would be a reasonable consideration— feeling very laise faire about self destruction. Anyone care to comment or advise?
I am a 27 year old female who has had a back problem for 4 years now. I have been prescribe Neurontin for about 3 years on and of. I have been Depressed, have had Insomnia, hearing things that aren’t there, More and more headache’s, I stay awake with my children. My husband says I am acting different every time I do take it. I would like to Know what to do about this medication? Please someone help me. Trust me if you do I will look you up to see if your good enough for the Job! No scams please I already have enough problems.
i have been on 1200 mg of nuerontin for about 1 year. i have noticed that my legs get weak, and the right side of my mouth and teeth hurt. also i feel kinda addicted to them.
i have been on neurontin for about 2.5 years for bipolar disorder. never really felt it caused any of my other problems, severe headaches, etc. however i just attempted suicide and while in the hospital, the dr increased the dosage from 1600mg per day to 3600mg. my headaches have worsened to which the drs say i need to adjust to the new dosage. if i was on meds for so long, how could i possible feel bad enough to attempt suicide ?
I caution you all to make sure what you are saying and doing is accurate and not exagerated. I realize that this was marketed wrong and that many people have suffered as a result. But, do you realize how many people actually benifited from this? I have been a chronic pain sufferer for 2 years now and was ready to end my life when I was placed on this 4 months ago. My life still isn’t normal and have accepted that it never will be again. I was treated with this for neuropathic pain and it has reduced my pain by 1/2. I can do small tasks such as driving, washing my hair and changing my clothes without unbearable pain again. If this drug is pulled from the market a great number of people will commit suicide that wouldn’t have otherwise because effective pain maanagement isn’t available for millions of people. I am one of them. Are their other drugs that would help relieve my pain? The only class I haven’t tried are in the oxycotin range and no doctor I have seen will perscribe these because of the FDA. I know the pfiezer marketed this unfairly and have seen statements from the drug company. Including the one that stated Pain management now that’s money we don’t want a portion of their budget but all of it. Was this a fair statement no, but some people are benifiting greatly from it. Others have been harmed and should be allowed restituition. But please keep it factual so that millions more aren’t harmed. If this was taken from me I don’t know how I would cope going back to the way things were.
I was put on Neurontin about three years ago when I had relasped from 26 months of sobriety. The Dr. Diagnosed with P.T.S.D. and major depression. They said i have been self medicating all my life because of my being abused in orphanges and forster homes during my whole childhood. They also told me that a Neurontin and wellbutrin combination would also help my cravings along with the depression. since then i have not been able to put together more than three months of sobriety. When i do i often feel sucicidal (sometimes homicidal). I’ve been hospitalzed about five diffrent times (Once for six months). The worst part is these feelings are even more stronger when i stop the nerontin. My job as a technical consultant for a national company, fired me (after three years) because i used up all my my Family/med. leave – Now i don’t even have insurance. Nobody has ever warned me of the side effects decribed in these comments. I just learned about all the “Side effects” and problems because i went on line looking for an altenative. I just wish that one of the many many Drs. I’ve seen in the last three years would of mentioned some of these adverse effects cause i would of demanded diffrent Meds. Now I’m stuck – A lot of days I just don’t want to get up and out of bed or face anyone- and others days i’m scared i may hurt myself or some one else.But like i said the feelings get worse when i stop the meds. The only thing that put my thoughts away is when i drink or take other drugs which turns into a whole other problem. I don’t know where to turn or what to do?????
I live in the fort laudedale area either homeless or in a halfway house or a hospital. (which will only keep me one or two day cause i have no insurence anymore.)
If some one knows where i can find real help pls contact me at
Huease@myway.com
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Thank you and God Bless.
WOW,, IN 1998, this was the drug that was for every cure,,,and 2 suicides, 1 electro shock treatment, and ETC. ETC, there are law suits against this BS drug when used in propertly,,, CHARTER HOUSE is one of them,,, if u think that one flew over the kook,kooks nest was a trip of a movie,, that aint nothing compare to the N. drug… too tired to explain tonight,,, but i will return and explain more
I have been on Neurontin now for about 1 yr. This drug has been a life saver for me. As I have been diagnosed with fibromyalgia and severe back pain due to deteriating discs. The only problem I have had with this is some shaking in my hands. No depression, no mood swings, no suicide, period. It would be of great injustice to us who have been helped by this drug for the FDA to take this from us. I am so sorry for those who have been hurt by it, but for most of you who have, it seems have had way too high of doses prescribed to you which I believe goes back to medical community. Dr’s. get away with way too much these days are all too eager to hand out drugs as an alternative for every ailment.
I have gotten so weak, I do stutter ( I did not, I do now). I feel so desperate and miserable, it is not just pyschological side effects, I am physically tapped out @ 39. I spend days just lying in bed, I have a natural aptitude for writing, I am in the upper 1% of the entire nation for vocabularry and now that I am flat out all I can do is wonder how in the Hell my life came to this. I am erratic, I do cry, I feel lost and helpless (my doc, I do not trust him @ all, I want a private doctor , I want my life back ) I also feel bad for all the pain that has been inflicted on so many. We must summon up strength from our weakened selves to cry out for help and for justice. This is abuse and I am appalled that this was set loose on people and condolences to those who died. I honestly do not know if I will make it through this to the other side, hanging on by a thread I push myself forward, it is a mission of mercy, not just for myself but for all who have been wronged in such a cruel manner. May this law suit prevail, may we blow the lid ride off of this thing, it may be hard to see but IF you refuse to succumb there is light, Uncle Sam wants his money. Persevere and BE BRAVE…
Now I am afraid to take Neurotin for Charcot Marie Tooth Disease what do I do.
Sylvia Erisman
I am just begining mu search fo find out all obout Neurontin. We have been trying to find out the reason our daughter tried to commit suicide three times and on the fourth try she passed away . we began to notice a change in her after she had been on Nuerontin for about a year. She hd just finished nursing school and had received her RN degree and started working at the hospital and she began to have problems of numbing around her mouth and then later on her personality began to change. Brooke was a very kind and sweet girl but began to be abusive and talk terrible and get mad at everything. After Brook’s first try at killing herself she was put in a mental ward for a while and was told she had a personality dissorder . We could all see this but no one could tell us why they just continued to giver more and more medication she finally reached a stage a few months later where she had adema, became partialy parilized on wthe right side of her face and arm and was having double vision but they could find nothing wrong even after the cat scans and MRI they could not find a thing causing her problems,well after reading all of the side effects of Neurontin I know what was wrong and her family will not rest until this company pays for all the pain and suffering to her and her family and we will be seeking compinsation for her son who is 14 this month because of this drug we are left without a daughter,Mother and sister. Brook passed away May 29th 2002 and I will never forgive this company.
my neurologist gave me 300mg of neuronitin 3x aday i hear so many bad things its for migraines ihavent taken it i dont think i will im on tons of meds & just lost 30 pds i heard it also puts weight on you thanks please help ginny meyer
I just stumbled across all this info on neurontin and I’m so thankful I did. I’ve been on neurontin for close to 5 months for body aches, pain & depression. Recently my muscles in my legs became very weak, almost rendering them useless. I have complained about the problem to my doctor on 2 ocassions and he assured me that it had nothing to do with the neurontin I was taking. Yesterday I went back to the doctor because I was alarmed with the muscle weakness getting worse. He took me completely off the medicine. My bloodwork results were in from the prior weeks visit and he informed me that my muscle enzymes were elevated, but he still doesn’t think it’s due to the neurontin because muscle weakness isn’t a symptom. I just wasn’t satisfied with his opinion so my wife decided to get on the internet to see what we could find out about neurontin. Lo and behold not only do I find that a side effect is muscle weakness, but I find a wealth of information. I knew I didn’t have the problem before I started taking the drug, nor did it help the depression I’d been battling. I just want to thank whomever is out there looking out for us little guys. Unsuspecting patients caught up in a web of deception by the big drug companies and doctors out to make a little extra by promoting drugs that are ineffective and harmful in some situations. I realize there may be some people out there who have benefited from neurontin, and I’m happy for you, but the doctors & pharmaceutical companies need to stop prescribing this medicine as a “cure all”. My wife has been living in pure hell ever since I’ve been on that medicine. I would have bouts of rage and anger that was uncontrollable. I’m just thankful that I didn’t harm my family or myself physically. Strength comes in numbers, so if we all stick together, and press on, maybe something good can come of this. Once again, thanks to all of you for sharing & caring!
Dale Washington, Lexington, KY
My daughter was put on neurontin for RSD and shortly after that she totally lost contorl of her legs they were spastic only when standing or walking. After months of therapy she was almost back to normal. She was taken off the neurontin immediately and now 8 months later the spacticity and tremors are back. Any one with any of these problems.
Hello, I was just prescribed neurontin a few days ago…300mg 3x daily for lower back pain….It works for that…but after reading all these posts
I am reluctant to take it anymore…should I ask my doctor to prescribe a different Medicine or should I discontinue his advise?
worried?
Brad
MY BROTHER PASSED AWAY UNEXPECTEDLY AT THE AGE OF 26 THIS PAST NOVEMBER.IT HAS RUINED MY PARENTS AS WELL AS MY LIFE.THE CAUSE OF HIS DEATH WAS ACUTE OPIATE INTOXICATION.HE WAS SEEING A PHYSYCHIATRIST FOR ANXIETY AND WAS PRESCRIBED NEURONTIN.HE WAS ALSO PRESCRIBED OTHER ANTI ANXIETY MEDICATION AS WELL.WE ARE NOT SURE YET WHY HE WAS PRESCRIBED THE NEURONTIN BUT IT MUST HAVE BEEN FOR AN OFF LABEL USE BECAUSE HE DID NOT HAVE ANY OF THE ILLNESSES THAT IT WAS SUPPOSED TO BE PRESCRIBED FOR.THERE WAS NEVER ANY INDICATION OF HIM TAKING ILLEGAL DRUGS AS THAT THEY SAY WAS THE CAUSE OF HIS DEATH.THE PYSCHIATRIST SAYS HE WAS NOT ON ANYTHING ILLEGAL AND SHE BELIVED HIM.CAN ANYONE TELL ME IF THERE ARE CASES OF SOMEONE TAKING ILLEGAL DRUGS OR DOING SOMETHING THAT STUPID BECAUSE OF NEURONTIN.THERE WAS NO WAY HE WAS SUICIDAL AS HIS LIFE WAS VERY GOOD AND WAS LOVED BY EVERYONE.THANK YOU.PLEASE ADVISE.
Does anyone know about a class action lawsuit for this drug. I never had so many problems till I got on it.
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